Support Groups

Prostate Cancer Support Group

Public Support Group
1,180 total results
Discussions (91)
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: Oct 17 2:02pm
Recovery from Orgovyx?
I took orgovyx for about 1 year. Had 28 IBRT treatments for Gleason 6-7 prostate cancer. While on orgovyx my PSA was undetectable. I have...
Support Group: Prostate Cancer
Last active: Mar 30 3:55pm
Orgovyx done. What to expect?
I have been off Orgovyx for 7 days. Having increased number of hot flashes and still having leg pain at night. Libido still gone. Anyone...
Support Group: Prostate Cancer
Last active: Oct 25 5:24pm
Recent Orgovyx Validation
Recent validation of Orgovyx benefits vs Lupron. https://www.urologytimes.com/view/relugolix-plus-radiotherapy-shows-safety-efficacy-in-prostate-cancer
Support Group: Prostate Cancer
Last active: Mar 21 8:54am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Aug 13 9:21am
Orgovyx and zytiga side effects
I’m a 69 year old, who finished IMRT 5 weeks go and I’ve been on these ADT medications for 4 months now. This last week...
Support Group: Prostate Cancer
Last active: Oct 28 5:12pm
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Sep 13 7:10am
Testosterone replacement after radiation and Orgovyx?
I had an RP in 2008 and a recurrence last year. I was treated with 5 months of Orgovyx and 37 radiation sessions, both of...
Support Group: Prostate Cancer
Last active: 2 days ago
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: 1 day ago
Anyone on Orgovyx have a raging appetite?
Since being in Orgovyx - 2 months - I have been constantly hungry no matter how much I eat or how full I feel. Weird...
Support Group: Prostate Cancer
Last active: Oct 4 7:50am
On Orgovyx and abiraterone: Radiation with or after ADT?
Hi,I have been diagnosed prostate cancer Gleason Score of 9 High risk.One Doc wants to start radiation therapy immediately. The other Doc wants to wait...
Support Group: Prostate Cancer
Last active: Mar 20 6:25pm
COVID: Paxlovid and Orgovyx drug interaction
I tested positive for Covid and went to urgent care to get checked out and request a prescription for Paxlovid.Guess what? There is a major...
Support Group: Prostate Cancer
Last active: Sep 15 10:16am
Looking for feedback - Lupron vs Orgovyx
I discussed changing from Lupron to Orgovyx with my Oncologist today. I am having good results on Lupron with minimal side effects. I would like...
Support Group: Prostate Cancer
Last active: Oct 16 9:07am
Orgovyx extreme fatigue side effects
I have been using Orgovyx several years for prostate cancer and am now have in extreme fatigue side effects during the afternoon. I take Orgovyx...
Support Group: Prostate Cancer
Last active: Sep 26 2:04pm
Starting Orgovyx - any advice based on experience?
I will be starting Orgovyx Monday, April 22. 1000mg Abiraterone and 5mg Prednisone will be added about a week later. The plan is 24 months...
Support Group: Prostate Cancer
Last active: Apr 23 3:49pm
Pros and cons from changing from Degeralix to Orgovyx
My husband after his loading dose of degeralix with no side effects is thinking about changing to Orgovyx for the less heart issues, time of...
Support Group: Prostate Cancer
Last active: Jun 28 7:52am
Orgovyx and the timeline for return of normal testosterone level
I’ve been taking Orgovyx since 11.09.23. How long does it take for Testosterone levels to return to normal once I stop taking this drug? What...
Support Group: Prostate Cancer
Last active: Oct 6 7:37pm
Anyone stopped Orgovyx and started again if PSA rises?
Hello All:I am 78 year old man, active with exercise and golf. I had my prostate removed over three years ago. Using Viagra and Trimix...
Support Group: Prostate Cancer
Last active: Nov 24 8:45pm
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Support Group: Prostate Cancer
Last active: Aug 8 10:25am
Hot flashes, fatigue 4 months after radiation and Orgovyx
Husband still experiencing debilitating hot/cold flashes, fatigue, various aches and pains 4 months after successful treatments ended. Is there any relief available?
Support Group: Prostate Cancer
Last active: May 26 11:42am