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Prostate Cancer Support Group

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Discussions (264)
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
Support Group: Prostate Cancer
Last active: Jul 26, 2025
Treating de-novo metastatic prostate cancer
This 2023 paper reviews recent studies on the treatment of de-novo metastatic prostate cancer — cancer that had already metastasised when first discovered — and...
Support Group: Prostate Cancer
Last active: Mar 21, 2025
Prostate cancer-related abbreviations: What acronym would you add?
There are so many acronyms related to prostate cancer. When newly diagnosed these can be overwhelming and frustrating. As you become more familiar with the...
Support Group: Prostate Cancer
Last active: Apr 18 12:43pm
Parenteral Estrogen: an ADT alternative?
Here is a link where this question was examined: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4052190/ Key points I learned: -Oral estrogens were the treatment of choice for carcinoma of the...
Support Group: Prostate Cancer
Last active: Jan 16, 2024
ADT and Blood Lipids
Just got my blood test results from my PCP, which do not test for PSA and T - the oncology team handles that. In early...
Support Group: Prostate Cancer
Last active: Apr 11, 2025
End of treatment (I hope)
First diagnosed in April 2023 at age 66, after blood work for a routine physical came back with a PSA of 8.2. Urologist re-ran the...
Support Group: Prostate Cancer
Last active: May 5, 2025
ADT. Afraid of it
I’m 4+ 3 Gleason in one core. But recent mri shows tumor growth. New biopsy coming. They want to add ADY and I’m scared to...
Support Group: Prostate Cancer
Last active: Apr 7, 2025
Test results after 6 weeks of Eligard
Just got some blood test results after being on Eligard for 6 weeks. Do the numbers sound good for this stage? Testosterone = 5.7 ng/dL...
Support Group: Prostate Cancer
Last active: Apr 26, 2025
SBRT on T8 Only vs Lower Dose Pluvicto and ADT
I am a Care Partner for husband whom has Aphasia from 2 stroke 14 years ago. He is past the Medicare full retirement age. Diagnosed...
Support Group: Prostate Cancer
Last active: Apr 25, 2025
Gleason 7 (4+3), ECE, PSA 3 – Considering IMRT + ADT vs. Surgery –
Hi everyone, I’ve recently been diagnosed with Gleason 4+3=7 prostate cancer, with extracapsular extension (ECE) and a PSA of 3 I'm 63 year of age....
Support Group: Prostate Cancer
Last active: Jul 31, 2025
Stage 4: What are my options?
The VA used the terms metastasized, incurable and palliative at my latest appointment with these notes after a "PET PSMA demonstrated a tiny 4 mm...
Support Group: Prostate Cancer
Last active: Dec 9, 2024
Lupron/enzalutamide side effects so severe after 36 wks. getting off
RP 2018, RT 2020, psa rising Mar2025. PSMA shows 3 small nodes in pelvic area but one so close to bowel stereotactic radiation too risky....
Support Group: Prostate Cancer
Last active: Jan 12 10:49am
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29, 2025
BCR after 5 years Prostatectomy now questions about SRT
This forum has been very helpful. I just discovered I have BCR after 5 years no levels of PSA tests. Had the Prostatectomy with little...
Support Group: Prostate Cancer
Last active: May 27, 2025
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16, 2025
T3b L1 Gleason 9 Question
So newly diagnosed as a Gleason 9, and one of the lymph nodes they took out during my RALP tested positive as well. ADT and...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
Advice from the Trenches for New Members of this Cursed Club
So, you’ve just heard the words: prostate cancer. Welcome to the club no one wants to join — there’s no handshake, no jacket, and the...
Support Group: Prostate Cancer
Last active: Apr 10, 2025
Should PSA Super Dive Warrant Updated Imaging?
My PSA back on October 16, 2025 was 24.6. MRI/PET/CT scans were done in September 2025. I've been on ADT since November, roughly 2.5 months...
Support Group: Prostate Cancer
Last active: Jan 17 11:59am
Should Zapping The Entire Prostate Replace Updated Imaging?
The last imaging scans I had were back in September 2025. Based on them, 8 grays of radiation per session for 5 weeks in a...
Support Group: Prostate Cancer
Last active: Mar 4 6:40am
Who prescribes ADT?
I’m working with Cleveland clinic and went to Mayo Jax last week to start the 2nd opinion process. I’m working on getting all my scans...
Support Group: Prostate Cancer
Last active: Feb 25, 2025