Support Groups

Prostate Cancer Support Group

Public Support Group
2,296 total results
Discussions (187)
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: May 9 8:23am
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Support Group: Prostate Cancer
Last active: Apr 1 9:23am
Biopsy results benign. PSA is elevated. What is the next step?
I posted earlier though I can't find my thread. Here is my data: "I was tested with PSA 5.3 on November 2023, and 3T MRI...
Support Group: Prostate Cancer
Last active: Mar 1, 2024
How do I request a VA referral to Mayo Clinic, Jacksonville?
I'm a 59-year-old Army veteran recently diagnosed with prostate cancer at the VA hospital in Augusta, GA. My PSA levels rose rapidly from 3.72 to...
Support Group: Prostate Cancer
Last active: Feb 11 5:24pm
Gleason 3+3 to Gleason 4+5 in 7 months.
Hello The lesion sample from the 3/2024 mpMRI fused biopsy was read as Gleason 3+3. After detailed option discussions, both the urology surgeon and radiation...
Support Group: Prostate Cancer
Last active: Jan 7 11:24pm
So hard to study focal therapy
Right now it is super hard to find a doctor willing to do focal therapy, or information about it, or almost anything really. There seems...
Support Group: Prostate Cancer
Last active: Oct 21, 2024
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Support Group: Prostate Cancer
Last active: Dec 16, 2023
Another Prostate Cancer Anniversary
Another anniversary today —> 13 years ago today (4/27/2012), I was diagnosed with prostate cancer. Having first heard about PSA testing when I was 40y...
Support Group: Prostate Cancer
Last active: May 1 1:36pm
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Support Group: Prostate Cancer
Last active: Apr 10 1:11am
Treatment options for locally advanced prostate cancer?
I have recently been diagnosed with locally advanced prostate cancer in December 2023. I had an MRI that diagnosed my PC with a Gleason 9...
Support Group: Prostate Cancer
Last active: Apr 6, 2024
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
Support Group: Prostate Cancer
Last active: May 8 6:21am
Low dose brachytherapy long term side effect risk
My 55 year old husband has Gleason 7 (4+3) posterior peripheral T2a prostate carcinoma with PSA 5.2. 1 ml more or less volume tumour. PSMA...
Support Group: Prostate Cancer
Last active: Jun 19, 2023
Change in Incontinence after Salvage Radiation
Incontinence after Salvage Radiation I had a RP in May 2018 and while my PSA post RP was undetectable, I did suffer from fairly significant...
Support Group: Prostate Cancer
Last active: Nov 22, 2024
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Support Group: Prostate Cancer
Last active: Sep 23, 2024
Positive margins - Now what?
I got my post-prostatectomy pathology back today. While I did talk to a physician’s assistant, I won’t meet with my doctor until Monday. It seems...
Support Group: Prostate Cancer
Last active: Mar 20 10:36am
NePtune Trial and surgery questions
Some background - last month (Dec 2024) I was diagnosed with aggressive prostate cancer with a Gleason score of 9 . I am BRCA2 positive...
Support Group: Prostate Cancer
Last active: Mar 28 5:35pm
44-yr-old prostate cancer patient seeking advice, thoughts, etc.
Hello all, I’ve just been thrown into this scary world recently. I wanted to share my story and see what advice, wisdom, anecdotes, thoughts, etc....
Support Group: Prostate Cancer
Last active: Jan 28 6:58am
Treatment Dogma - Aggressive is not the same as intelligent
In cancer care, “aggressive” is a word we wear like armor. It suggests boldness, urgency, and strength — the kind of approach that implies we’ve...
Support Group: Prostate Cancer
Last active: Apr 18 3:55pm
Husband's prostate cancer story
My 64 yr old husband was having urination frequency and enlarged prostrate. Visited the urologist for at least two years. His PSA was around 4,...
Support Group: Prostate Cancer
Last active: Sep 21, 2023
Patient movement during proton therapy more problematic than photon?
I am now 68 yrs old. My PSA level went beyond normal range in 2023 with a PSA of 4.3. Saw a urologist and had...
Support Group: Prostate Cancer
Last active: Aug 11, 2024