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Prostate Cancer Support Group

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Discussions (283)
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Support Group: Prostate Cancer
Last active: Jun 18, 2025
PSA Rise After ADT
I've been posting and following a few months now. I was stage 4a, Gleason 9, Decipher .99. I've had prostatectomy, followed by radiation and ADT...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Endocrinology for ADT Side Effects
It's been 2 years since I completed a 4 months regimen of Orgovyx. I had been advised that Orgovyx was easier to recover from than...
Support Group: Prostate Cancer
Last active: Dec 8, 2025
Nutrition & more for living well with metastatic prostate cancer?
62 year old male diagnosed with metastatic Prostate cancer with a PSA level 36. Prostate was removed May 2024. Cancer is now in ribs, Pelvic...
Support Group: Prostate Cancer
Last active: Sep 11, 2024
Is there a need to stay close to the clinic during radiation treatment
My dad is 84, Gleason 9 (aggressive), PSMA scan shows contained within the prostate. He started Orgovyx one week ago. He will start radiation treatments...
Support Group: Prostate Cancer
Last active: Aug 12, 2025
Post treatment: What to expect next? What role does diet play?
I just finished 28 treatments of radiation therapy and have been on Orgovyx for 4 months. My psa will be tested next week by my...
Support Group: Prostate Cancer
Last active: Dec 13, 2024
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
Support Group: Prostate Cancer
Last active: Feb 24 2:16pm
Does ADT actually kill cancer cells?
It seems like a simple question, but finding a definitive answer is not so easy. My MO says yes - the combination of Orgovyx and...
Support Group: Prostate Cancer
Last active: Aug 9, 2024
Has anyone experienced profound hypotension with exercise while on ADT
About 5 months into ADT (Orgovyx) I began to feel light headed during exercise, it was accompanied by a sensation bright lights and colors. I...
Support Group: Prostate Cancer
Last active: Feb 24 10:00am
Diagnosis and treatment (proton beam therapy plus hormonal therapy)
Hi. About 4 years ago I was diagnosed with PSA around 6. At the time didn't even know what PSA was. Today my PSA is...
Support Group: Prostate Cancer
Last active: Mar 23, 2025
Anybody finding that ADT has compromised their flexibilty?
I'm 4 1/2 months ( of 6) in on Orgovyx. In addition to HIT to offset the effects of ADT, I do 20-30 minutes of...
Support Group: Prostate Cancer
Last active: Aug 16, 2025
What treatment did you have for Gleason 9 (G9) no spread?
Had G9 but pet scan and mri found it was local and had not spread. Been on orgovyx for 15 months (will take if for...
Support Group: Prostate Cancer
Last active: Nov 24, 2025
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
How long does your oncologist have you on ADT?
I had surgery in March 2020. I was undetectable for 3 years, then started to see some PSA. .05.....06 ... Eventually climbed to .25 in...
Support Group: Prostate Cancer
Last active: Sep 28, 2025
ADT duration after Radiation
During the PCRI conference, talking about the side effect of radiation on the penis, a doctor stated that you should ask your oncologist what is...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: Mar 18 10:56pm
Preventing muscle atrophy
My husband has been exercising for a year since his cancer diagnosis with a trainer to ensure and prevent muscle atrophy due to his Orgovyx...
Support Group: Prostate Cancer
Last active: Aug 6, 2025
Anyone Else Have my Prostate Radiation Side Effects?
Hello Folks, Just an update here on prostate radiation side effects for what it's worth... 73 yo. Gleason 4+3 7 unfavorable. Have taken 114 Orgovyx...
Support Group: Prostate Cancer
Last active: Jan 30, 2025
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7, 2024
Radiation result interpretation
How long does radiation continue to "work" after treatment? Gleason 8 Biopsy in Jan. PET in March showed two potential bone metastases both small --...
Support Group: Prostate Cancer
Last active: Oct 11, 2025