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Discussions (289)
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Nutrition & more for living well with metastatic prostate cancer?
62 year old male diagnosed with metastatic Prostate cancer with a PSA level 36. Prostate was removed May 2024. Cancer is now in ribs, Pelvic...
PSA Rise After ADT
I've been posting and following a few months now. I was stage 4a, Gleason 9, Decipher .99. I've had prostatectomy, followed by radiation and ADT...
Endocrinology for ADT Side Effects
It's been 2 years since I completed a 4 months regimen of Orgovyx. I had been advised that Orgovyx was easier to recover from than...
Has anyone experienced profound hypotension with exercise while on ADT
About 5 months into ADT (Orgovyx) I began to feel light headed during exercise, it was accompanied by a sensation bright lights and colors. I...
Is there a need to stay close to the clinic during radiation treatment
My dad is 84, Gleason 9 (aggressive), PSMA scan shows contained within the prostate. He started Orgovyx one week ago. He will start radiation treatments...
Post treatment: What to expect next? What role does diet play?
I just finished 28 treatments of radiation therapy and have been on Orgovyx for 4 months. My psa will be tested next week by my...
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
Anybody finding that ADT has compromised their flexibilty?
https://connect.mayoclinic.org/discussion/anybody-finding-that-adt-has-compromised-their-flexibilty/
I'm 4 1/2 months ( of 6) in on Orgovyx. In addition to HIT to offset the effects of ADT, I do 20-30 minutes of...
Does ADT actually kill cancer cells?
It seems like a simple question, but finding a definitive answer is not so easy. My MO says yes - the combination of Orgovyx and...
Hubby’s Exhausted
Hi everyone, Wife here! Some of you may remember me from before asking questions. Hubby has had the trifecta thrown at him since his original...
Diagnosis and treatment (proton beam therapy plus hormonal therapy)
Hi. About 4 years ago I was diagnosed with PSA around 6. At the time didn't even know what PSA was. Today my PSA is...
How long does your oncologist have you on ADT?
I had surgery in March 2020. I was undetectable for 3 years, then started to see some PSA. .05.....06 ... Eventually climbed to .25 in...
What treatment did you have for Gleason 9 (G9) no spread?
Had G9 but pet scan and mri found it was local and had not spread. Been on orgovyx for 15 months (will take if for...
Is it ok to take Viagra while on ADT? Alcohol?
Started ADT- Orgovyx 01/19/26, scheduled for Fiducial Markers & Barrigel 02/19, waiting on start date for Rad.1. Was wondering about drinking alcohol while on ADT2....
SHEEESSHHHH - oh well ... : (
I just hate when my worry proves to be "correct" *sigh. We got new uPSA results today and it is 0.05 : (((. PSA rose...
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
ADT duration after Radiation
During the PCRI conference, talking about the side effect of radiation on the penis, a doctor stated that you should ask your oncologist what is...
Preventing muscle atrophy
My husband has been exercising for a year since his cancer diagnosis with a trainer to ensure and prevent muscle atrophy due to his Orgovyx...
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