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Prostate Cancer Support Group

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Discussions (186)
Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Some of you might remember my sharing that my husband’s PSA kept rising after his prostatectomy, more positive lymph nodes were found by PSMA pet,...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
The long road
Diagnosed at 48. 14 needle biopsy, all 14 100%. Initial PSA 48. Gleason score 9. I wanted surgery. After 4 denials from cancer treatment centers...
Support Group: Prostate Cancer
Last active: Jun 30, 2024
Is it time for a 4th Biopsy?
Obviously will discuss this with the doctor when he calls on Friday but my wife and I are wondering if I am in for my...
Support Group: Prostate Cancer
Last active: Feb 12, 2023
BCR Prostate cancer. Need Opinions
Hi thanks for reading. Here is my story: Grade 1 Gleason 6. PC doubling time 67 months. 2003 Radical Proctectomy. For over 10 years my...
Support Group: Prostate Cancer
Last active: Mar 9, 2025
PSA results after radiation only treatments
Would really like feedback from others on their PSA tests after getting radiation only treatments. I was 3.75 before treatments and first test at 3...
Support Group: Prostate Cancer
Last active: Jan 27, 2025
Anyone had the same? PC - Micrometastatic recurrence | PSMA PET neg
Just had a detectable PSA rise to 0.09 after been undetectable for 1.5 years after surgery & IMRT + ADT (46 year old). PSMA PET...
Support Group: Prostate Cancer
Last active: Nov 28, 2025
Gleason 9 SO wants me to stop ADT @6 Mos for look see
My SO wants to stop ADT after 6 months and wait 2 months then test to see if PSA rises? Does this make sense? Just...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
High PSA, Three Negative Biopsies. Now what?
Hi! I'm 58, healthy and active. From July 2016 to today my PSA has gone from 6 to 14. Can't remember my 4K score from...
Support Group: Prostate Cancer
Last active: Sep 3, 2022
Another Prostate Cancer Anniversary
Another anniversary today —> 13 years ago today (4/27/2012), I was diagnosed with prostate cancer. Having first heard about PSA testing when I was 40y...
Support Group: Prostate Cancer
Last active: May 1, 2025
ADT, Hot Flashes and Ashwagandha: Is it safe?
I have received 3, three-month Lupron shots and radiation therapy for Gleason 3+4 prostate cancer. After the final shot in June, my PSA was <...
Support Group: Prostate Cancer
Last active: Nov 25, 2025
Stopping Eligard early
I have advanced, aggressive, Gleason 9, Grade 5, Stage 4 prostate cancer. I went through radiation treatments and have been on both Lupron and Eligard...
Support Group: Prostate Cancer
Last active: Jun 12, 2023
Burning and frequent urination beginning 5 months after having salvage
I completed external beam radiation therapy 4 years ago after being diagnosed with prostate cancer. My subsequent PSA's decreased dramatically for 2 years. They began...
Support Group: Prostate Cancer
Last active: Jul 31, 2025
Doublet Therapy Holiday - Option for Oligorecurrent Prostate Cancer?
My dad was originally diagnosed with Gleason 7 (4+3) prostate cancer in Dec. 2019. After a RP and IMRT over the course of the next...
Support Group: Prostate Cancer
Last active: Oct 13, 2025
PSA of 4.1 when never previously higher than 1.0
My apologies for asking such a basic question in a community in which so many are courageously dealing with significant challenges. But I’m filled with...
Support Group: Prostate Cancer
Last active: Jul 9, 2024
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Support Group: Prostate Cancer
Last active: Jan 23, 2025
How do you fire a doctor?
This is a serious question. Recently I drove 11 hours to Mayo, and I've decided to let them treat me from now on. (I was...
Support Group: Prostate Cancer
Last active: Apr 14, 2025
Treatment Options & A Mayo 2nd Opinion Questions
Radical Prostatectomy in 1998 - Gleason 6 - 2000 PSA was rising slowly & prostate bed radiation was performed. PSA dropped to 0.1 and remained...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Gleason score 3+4 plus perineural invasion
Last year I had a 3+3 biopsy in one core but that was in a random core. This year the MRI found a new target...
Support Group: Prostate Cancer
Last active: Apr 21, 2025
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29, 2025
What is the thought process for this?
I'm one year post-Orgovyx and 18 months post SBRT radiation. My testosterone is 220 and has been dropping instead of climbing with my doctor thinking...
Support Group: Prostate Cancer
Last active: Jan 29 10:45am