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Public Support Group 1,151 total results
Discussions (140)
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Two years post proctectomy with pelvic floor pain
Hello, I had radical proctectomy via da Vinci robot two years ago. At first, I was fully incontinent, using 10 pads per day for about...
TAV after post surgery PSA test
My Urologist-Surgeon has ordered a PSA test to be completed 2 months after a robot assisted radical prostatectomy. I am currently 18 days post surgery....
Headaches increased since radiation
72 high risk w 2 lesions. Biopsy confirmed. Retired health professional. Sought out the best center of excellence closest with a strong brachytherapy program. Consulted...
Recent diagnosis with some questions and looking for feedback
Hi, I have enjoyed reading everyone's comments and found them so helpful while my husband has been undergoing testing and diagnosis. He is A 73...
Prostate Cancer Working Group 4 - New Terminology and Definitions
Those who know me, know I talk about learning the language, terms, definitions, so that you can speak the language and have graduate level discussions...
Prostate cancer: What treatments did you choose? Results?
Hello all,I’m 73 and healthy with no conditions but Recently I have had PSA of 5.8 and then a biopsy that resulted in T2a grade...
Lack of feeling despite erection from Bimix
I could use some advice, my PA has no compassion in her blood , I’m 10 months post surgery, radiation and 2 Lupron shots ,...
Welcome to Prostate Cancer. A Playbook for the un-initiated
It always begins harmlessly. A checkup. A blood draw. Then the call: “Your PSA is a bit elevated.” Calm voice, a hint of tension. Like...
A quick Question
why is dying from prostate cancer more dramatic than dying from good health? by Someone Who’s Had Just About Enough of It If dying is...
Where to draw the line between active surveillance, removal, radiation
Where do you draw the line between active surveillance and removal or radiation? Gleason 3+3, 4 cores positive out of 12 in biopsy. No more...
Advice on pursuing second opinion/treatment at UCSF.
Hello all. I have a few threads started since being diagnosed a few months ago (PSA 9, Gleason 7, Stage 2, no signs of spread...
Chronic Kidney Failure? MRI with contrast
My Primary just added Stage 3a chronic kidney disease (HRC) to my chart. Last few blood draws show high Creatinine; numbers are not high enough...
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
RARP Scheduled After Transperineal Biopsy
Started my PC journey in Feb 2025 and so grateful for finding this support group and reading your stories/insights. My story (Age 56): following an...
Testosterone as fuel, let's think about it together ...
Friends, I'm curious about your thoughts on the best strategy to keep testosterone levels low. I'll share what I've read and the conclusions I've reached...
What helps to slow testosterone growth?
Good afternoon, dear friends.I'm 49 years old. My cancer is genetic (ATM gene mutation).Three years after diagnosis, initial PSA 530 (Gleason 4+5), three bone metastases,...
My TURP experience blog
DADDY’S DRAIN PAINThe bladder - muscular, hollow, balloon-like – is our body’s waste reservoir, designed by the creator to store unwanted fluid that ultimately needs...
A users guide to PCa treatment side effects
A dark, cynical, and painfully honest guide to treatment side effects—because someone has to say it. Treatments offer similar chances of survival. When you need...
Fifteen Years of PCa Treatment Progress - and the next 15 Years
Fifteen years ago, a prostate cancer diagnosis came with two immediate options: radical prostatectomy or external beam radiation. Both were effective-ish, depending on the stage....
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