Support Groups

Prostate Cancer Support Group

Public Support Group
1,967 total results
Discussions (155)
Decipher Results are in... ADT recommendations?
Decipher test results just in and unfortunately I'm in the high-risk range for metastasis at .69. Awaiting discussion with RO. Anxious to find out if...
Support Group: Prostate Cancer
Last active: Jun 26, 2023
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Support Group: Prostate Cancer
Last active: Sep 23, 2024
Lost in Translation
“Lost in Translation: Or, How ADT and the English Language Became Co-Conspirators in My Public Humiliation” by Hans Casteels, reluctant polyglot and hormonal hostage I...
Support Group: Prostate Cancer
Last active: Jun 19 10:41am
One year past prostatectomy, in waiting mode.
A year ago I had my prostatectomy- Gleason 8, age 71. Path report indicated ECE, but surgeon removed lymph nodes, seminal vesicles and bundled nerves....
Support Group: Prostate Cancer
Last active: Oct 14, 2024
Radiation + ADT
Like many of you, I am weighing my options regarding surgery vs radiation. 61yo, healthy and active guy. PSA 5.5, MRI negative for any spread...
Support Group: Prostate Cancer
Last active: Feb 15, 2024
Orchiectomy and PSA decline waiting for Liver Transplant
Hello Guys, Greetings to each and every one of you. I have a story to tell, a little mixed but I wanted to share our...
Support Group: Prostate Cancer
Last active: May 24 2:38pm
Should I try using TRIMIX while on ADT?
ATTN MODERATOR: I’m aware that there is another post here related to TRIMIX. I’ve gone through it and could not find an answer that applies...
Support Group: Prostate Cancer
Last active: Jun 13, 2024
A Quandry between two medical recommendations for mPCa to lung only
History is in profile and I have asked a few questions here already. The gist is we went to a large research center and got...
Support Group: Prostate Cancer
Last active: May 14 7:33am
After Eligard success is "Triple" chemo advised?
I am 79 and had a radical prostatectomy July 24, 2024 with Gleason 9, all positive margins not able to be removed. Two PET scans...
Support Group: Prostate Cancer
Last active: Feb 2 6:10pm
A 15 year Wife's Roadmap to Deal With Your PCa Husband
Your Husband's PSA Is Elevated: A Wife’s 15-Year Roadmap to Mild Panic, Medical Jargon, and Unsolicited Advice from Hans at the Golf Club It starts,...
Support Group: Prostate Cancer
Last active: May 4 6:52pm
Active Surveillance vs Radiation for Unfavorable Intermediate R. Grp.
I am 74 yr old, in relatively good health & weight, except I also deal with RA. and have recently been given a diagnosis of...
Support Group: Prostate Cancer
Last active: Apr 28, 2024
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
Support Group: Prostate Cancer
Last active: Dec 3, 2024
Has anyone else moved from Firmagon to Orgovyx?
I have stage 4 (oligometastatic) prostate cancer, and will be on ADT and androgen-reception inhibitors, basically, forever. I've been on monthly Firmagon (Degarelix) injections for...
Support Group: Prostate Cancer
Last active: Jun 13 11:02am
New (to me) PCRI Resource and 2022 review
Background: I had PBT therapy in early 2020; with a PSA of 8.3, and I did a 4 month course of ADT. When I was...
Support Group: Prostate Cancer
Last active: Jan 16, 2023
Any advice or shared experiences with SpaceOAR Hydrogel?
Question: My urologist has presented the option of using the Boston Scientific SpaceOAR Hydrogel between my prostate and rectum. It can be injected during the...
Support Group: Prostate Cancer
Last active: Mar 4 10:47am
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
The Waiting Room: A Post Treatment Parable for the Terminally Stable
So you did it. You checked your PSA, because you’re responsible like that—or more likely, because a doctor with an unnecessarily cheerful tone suggested it...
Support Group: Prostate Cancer
Last active: Apr 23 7:24am
Change in Incontinence after Salvage Radiation
Incontinence after Salvage Radiation I had a RP in May 2018 and while my PSA post RP was undetectable, I did suffer from fairly significant...
Support Group: Prostate Cancer
Last active: Nov 22, 2024
Recurrent Cancer - conflict with numbers and scans
Quick Background: I had a RP completed in September 2016. Undetectable PSA 2 years after, but started creeping up. Made a 2x jump in mid...
Support Group: Prostate Cancer
Last active: Jan 9 7:00pm