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Prostate Cancer Support Group

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Discussions (191)
Getting HIFU tomorrow: Worried about the catheter mostly
Tomorrow is the big day for me. HIFU for two tumors confined to the right spot in the prostate. Orgovyx shrunk the prostate enough to...
Support Group: Prostate Cancer
Last active: Oct 14, 2024
Using supplements post treatment
I just completed 3 months adt on orgovyx and 36 ebrt treatments. My last tes was 42 and my psa dropped fm .28 to undetectable...
Support Group: Prostate Cancer
Last active: Nov 8, 2021
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
Support Group: Prostate Cancer
Last active: Jan 26 4:29pm
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Support Group: Prostate Cancer
Last active: Jul 11 3:37pm
Has anyone gone off hormone therapy (ADT) after radiation?
My husband has completed 5 weeks of radiation and 4 months of hormone therapy, 3.5 months ADT. His PSA is less than .2 The doctor...
Support Group: Prostate Cancer
Last active: 15 hours ago
I want to learn more about ADT
I am an 83-year-old male who is in good health and had a radical prostatectomy on 9/22/2009. I had salvage radiation on 1/15/2012 and I'm...
Support Group: Prostate Cancer
Last active: Apr 20, 2024
Testosterone recovery after ADT
I'm ending Orgovyx this month. I want to do whatever I can afterward to recover testosterone to my pre-ADT level of 650. I know not...
Support Group: Prostate Cancer
Last active: May 9 8:48pm
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3, 2024
Incontinence during/following treatment?
Anyone having issues with urinary or bowel incontinence? I completed 44 radiation treatments of prostate and pelvis in April and am on month 7 of...
Support Group: Prostate Cancer
Last active: Jul 7 12:36pm
ADT and Blood Lipids
Just got my blood test results from my PCP, which do not test for PSA and T - the oncology team handles that. In early...
Support Group: Prostate Cancer
Last active: Apr 11 8:24pm
Need help deciding which radiation treatment system i should go with.
Hi. Recently diagnosed with PC. GL 7(3+4). PSA around 19. High intermediate group risk. Minimal extra capsular extension. PET shows no detectable metastasis. Been on...
Support Group: Prostate Cancer
Last active: Jul 3 8:24am
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
Support Group: Prostate Cancer
Last active: Aug 28, 2024
Treatment after prostatectomy
Husband had prostatectomy last April. He is 53 years old. Gleason was 9 and deciphering at .99. His bone scan and ct were neg, with...
Support Group: Prostate Cancer
Last active: Apr 3 7:55pm
Has anyone done fractionated/metronomic chemotherapy?
I've recently been diagnosed with stage 4, Gleason 7-9 castration sensitive. My PSA was 105 and then after one month on Orgovyx now down to...
Support Group: Prostate Cancer
Last active: Aug 10, 2024
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16, 2024
PSA never reaching undetectable
My partner was diagnosed with PSA 92, stage 3a in Nov 2023. Started Orgovyx March of 2024, did 40 sessions of radiation, finishing in June...
Support Group: Prostate Cancer
Last active: Feb 25 1:50pm
Learned Something New Last Week
While meeting with my NP 3 months post IMRT and HDR treatment for Gleeson 4 +3, PSA 7.1 I learned something new. When I asked...
Support Group: Prostate Cancer
Last active: Jul 30 9:03am
Shortest term of ADT needed for G9, non metastatic PCA?
I’m 69 and been on Orgovyx and Zytiga for 5 weeks; and started my 40 radiation treatments a week ago. My side effects so far...
Support Group: Prostate Cancer
Last active: Jul 25, 2024
End of treatment (I hope)
First diagnosed in April 2023 at age 66, after blood work for a routine physical came back with a PSA of 8.2. Urologist re-ran the...
Support Group: Prostate Cancer
Last active: May 5 7:09am
Osteoporosis and Osteopenia treatment and prostate cancer?
I am not recovering from Orgovyx as quickly as expected and my post treatment DEXA scan shows osteopenia and osteoporosis that was not present pre-treatment....
Support Group: Prostate Cancer
Last active: May 7 11:31am