Connect
Public Support Group 3,838 total results
Discussions (233)
Metastatic Castration Resistant Prostate Cancer
Has anyone after having brachytherapy, ADT, Casodex and abiraterone tried a cannabinoid with any success?
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
Hip Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
After radiation: Any advice on next steps, what to expect next 12 mos?
I finished radiation treatment (45 low dose treatments over 9 weeks). ADT shot was in mid-June. Any advice on next steps, what to expect over...
It's Almost offical
Completed my second biopsy and they found a small lesion in my prostate. It could be cancer or it might be something else. I get...
Considering stopping Eligard after first injection and radiation.
My special friend is considering stopping ADT after the first injection (6 months) and radiation treatment. Has anyone made this decision, and what are the...
Has anyone tried the ArteraAI test?
Today I ran across a new test, developed using artificial intelligence, that gives data on chances of metastasis after radiation with and without short term...
Treating de-novo metastatic prostate cancer
This 2023 paper reviews recent studies on the treatment of de-novo metastatic prostate cancer — cancer that had already metastasised when first discovered — and...
Low baseline testostrone and overall survival after treatment
My husband has a baseline testosterone of 202. He started ADT and will be doing internal and external radiation for stage 4 A advanced regional...
PET Scan Lighting-up 4 Months after Treatment
Hi, I had a Mayo PET scan in January 2023 that showed a lymph node lighting up. I then started 18 months of ADT and...
3rd time around. Now stage IVb: What are my treatment options?
In april of 2023 found that PC returned and has metastasized in pelvic area lymph nodes. In 2016 was diagnosed with PC gleason 4+4. Prostectomy...
Salvage radiation therapy with 6 months Eligard
I'm starting salvage radiation therapy with 6 month Eligard injection, My care provider is a bit vague about how long before starting radiotherapy I should...
How long after radiation treatment did you repeat the PSMA/PET?
How long after radiation treatment did you repeat the PSMA/PET? Does anyone know how long to wait for the PET after ADT?Thanks
Urine leakage during sexual activity
I had RP in March 2022, BCR in Sept 2022 and 28 SBRT treatments in Jan-Feb 2023 with ADT. Now that the ADT has left...
Apalutamide vs abiraterone: which is more effective?
My husband has been recommended ADT + abiraterone + prednisone for two years. My friend who is an oncologist suggested apalutamide instead as it doesn't...
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Muscle loss and muscle building
Since starting my ADT treatments in February, I've been concerned about muscle loss due to the lowering of my testosterone. I'm not a body builder...
Anyone else on Megace (Megestrol)?
I guess I'm just cranky and hard to please. I'm on ADT, so the Megace is to stop the hot flashes. It's working. But the...
Darolutamide Impact on Testosterone Utilization
I did 13 months of ADT (Lupron injections) with darolutamide (Nubeqa) while doing chemo then radiation. Now I’m on darolutamide only. While my testosterone is...
Connect