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Prostate Cancer Support Group

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Discussions (201)
Surgery number 3? Really?
I'm just getting over the AUS surgery, but still have pain, mainly near the left testicle. The pump was installed on the right because of...
Support Group: Prostate Cancer
Last active: Jun 26, 2025
Time for some good news
Just offering a bit of hope for others. I've just seen the surgeon 6 weeks post-prostatectomy. All clear. The cancer was contained completely within the...
Support Group: Prostate Cancer
Last active: Feb 24, 2025
Pain in days following after getting catheter out
Had robotic surgery 2.5 weeks ago and got catheter out 8 days ago. Did the 3 days of antibiotics and felt pretty good the first...
Support Group: Prostate Cancer
Last active: Aug 10, 2024
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18, 2024
HoLEP procedure experiences?
Background: 62 yo in good health, no meds or other conditions other than 3,3 Gleason and 4.8 PSA. Had my first visit to Mayo (Jacksonville)...
Support Group: Prostate Cancer
Last active: Aug 20, 2025
When to switch doctors? Anyone take this step?
Anyone taken steps to switch doctors? My surgeon is well respected but his office is difficult to navigate. Aside from biopsy and surgery I have...
Support Group: Prostate Cancer
Last active: Aug 22, 2025
Leakage from suture site
So I had my RP 26 days ago. On day 8 went in for systogram imaging and it showed significant leakage around suture site and...
Support Group: Prostate Cancer
Last active: Nov 28, 2023
Am I Under-Reacting to my Prostate Cancer Proposed Treatment?
I just had a post-Fusion Biopsy follow-up with my Urologist. I have two lesions of interest. The first lesion is rated a Gleason 3+3=6. The...
Support Group: Prostate Cancer
Last active: Jul 12, 2024
Operation number 2... AUS
Fairly quick meeting with the surgeon yesterday. I showed him my bladder diary from last week & he was a bit horrified. But it gave...
Support Group: Prostate Cancer
Last active: Mar 12, 2025
Surf is UP !!!! @@
So- here we go ! 😣 The time has FINALLY come, but at the same time "suddenly” ... This Tuesday (tomorrow) my husband is having...
Support Group: Prostate Cancer
Last active: Mar 17 4:02pm
Prostate Cancer Gleason 6 Group 1 + Hypogonadism
I recently was diagnosed with PC Gleason (3+3) 6 Group 1. I also have been on Testosterone Replacement Therapy for over 10 years. As soon...
Support Group: Prostate Cancer
Last active: Jan 5 11:24am
SF Bay Area provider recommendations
My husband will be switching to Medicare in January. We are long time Kaiser members and would like some recommendations as to where to go....
Support Group: Prostate Cancer
Last active: Sep 27, 2025
Can the chance of nerve sparing be assessed from MRI images?
Should my Urologist be able to provide a prediction on whether nerves could be spared during my RALP, based on the MRI images and the...
Support Group: Prostate Cancer
Last active: Aug 31, 2025
Expected side effects of adjuvant radiotherapy after prostatectomy?
Given my high risk profile of pT3b disease and .75 Decipher score, I expect my surgeon to propose adjuvant radiotherapy when I meet with him...
Support Group: Prostate Cancer
Last active: Oct 8, 2025
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Jul 18, 2025
exercise after surgery
today marks exactly 6 weeks since my surgery, the exact time my surgeon and care team recommended for me to wait to begin doing exercise...
Support Group: Prostate Cancer
Last active: Jul 18, 2025
I'm alive and back!
Hello all! I'm back and as promised I'm updating everyone. I don't have my Path report yet, but I'm doing well. The surgery went well...
Support Group: Prostate Cancer
Last active: May 31, 2025
Just diagnosed gobsmacked looking for advice
Offically diagnosed with prostate cancer 6/21/24. PSA is 15.25 (up from 2.8 six months ago). PI-RADS 5 score from MRI. Biopsy score was Gleason 8...
Support Group: Prostate Cancer
Last active: Jul 29, 2024
Selecting Active Survelliance based on GG1 and small GG2 in biopsy?
67 years old, PSA of 7.8 and MPMRI with three PI RADS lesions…one 3, one 4 and one 5. Fusion biopsy of 15 areas indicate...
Support Group: Prostate Cancer
Last active: Dec 8, 2023
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Oct 27, 2025