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Prostate Cancer Support Group

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Discussions (192)
Small PSA Rise: What might be the cause?
I completed proton beam therapy October 30th 2023 for one core Gleason score 3+6 and I took my third PSA test last week having a...
Support Group: Prostate Cancer
Last active: Apr 30, 2024
Calypso radiation
The Nebraska Med Center is using a new radiation procedure called Calypso has anyone had experience with this how does it compare to Proton? I...
Support Group: Prostate Cancer
Last active: Oct 10, 2023
How soon should treatment start for aggressive cancer?
Hi everyone. I have Gleason 9 prostate cancer spread to pubic bone. My local urologist was unenthusiastic when I mentioned the possibility of pursuing proton...
Support Group: Prostate Cancer
Last active: May 16, 2024
Today’s PSA Test Results
Today was my 6-month PSA test (4-1/2 years after proton radiation treatment). As usual, I experienced a little anxiety when the MyChart text message popped...
Support Group: Prostate Cancer
Last active: Dec 16, 2025
SpaceOAR causing issues
I just spoke with my urologist today and he indicated that the hospital affiliated with his practice is no longer using SpaceOAR. Doctors in various...
Support Group: Prostate Cancer
Last active: Aug 26, 2025
It’s Been A 26-Year Long PSA Journey
(At 71y/o….) It’s been 26 years since my very first PSA test, 14+ years since I was diagnosed with prostate cancer, and 5+ years since...
Support Group: Prostate Cancer
Last active: 19 hours ago
Hormone Therapy (ADT) when ArteraAI Test says it's not necessary
My background: 67 years old; physically fit; not over weight; no diabetes; diagnosed in January 2026 with a Gleason of 7 (4+3); no metastasis shown...
Support Group: Prostate Cancer
Last active: May 19 8:50am
Prostate Artery Embolization (PAE) with Prostate cancer
I have a meeting with a Dr at Moffitt in Tampa to discuss Prostate Artery Embolization (PAE) to improve urinary function prior to radiation treatment....
Support Group: Prostate Cancer
Last active: Nov 19, 2025
Recurrent prostate cancer after 7 years
My doc has suggested short term adt. ..Has anyone used short term ADT therapy. I’m concerned about the side effects. I’m also considering proton therapy...
Support Group: Prostate Cancer
Last active: Sep 17, 2025
Looking for info on HDR Brachytherapy to ask Radiation Oncologist
I’m trying to decide on IMRT, Proton Therapy 5 fractions, or HDR for localized Gleason 4+4 PC. PSMA came back clean. I keep wavering. Looking...
Support Group: Prostate Cancer
Last active: May 28, 2025
PSA jumped from 2 to 2.4 after four years from treatment??
Does this jump in PSA from 2 to 2.4 a cause for alarm. Had 20 proton beam treatments nearly four years ago and it dropped...
Support Group: Prostate Cancer
Last active: Jun 5, 2024
What would be best course of treatment
My MRI: Large lowADC lesion throughout the right peripheral zone with extra prostatic extension and involvement of the right neurovascular bundle categorized as a PI-RADS...
Support Group: Prostate Cancer
Last active: May 31, 2025
ADT injection: Benefits worth the toll it will take on my body?
I’m 62 and will start Proton Therapy next week. My psa is 8, with a 3+4 Gleason 7. my doctor is suggestion ADT for 6months....
Support Group: Prostate Cancer
Last active: May 20 1:57pm
Radiation instead of removal (surgery delayed due to illness)
I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled...
Support Group: Prostate Cancer
Last active: Mar 14, 2024
Support for wives with the Orgovyx tornado: Needing an olive branch
This spring, my husband will have been taking Orgovyx for 2 years. He was diagnosed a few months after a forced retirement, we sold our...
Support Group: Prostate Cancer
Last active: Feb 22 2:08pm
Anyone have experience with Dr. Abdul-Muhsin at Mayo Phoenix?
Getting a second opinion soon and just wondering if anyone has had any experiences with Dr. Abdul-Muhsin. Looking into robotic surgery vs Proton. Any doctors...
Support Group: Prostate Cancer
Last active: Jul 14, 2024
Getting approval from Insurance Companies
Need any idea's, I am 63 so no Medicare. I applied for 28 Proton Treatments thru Blue Cross of Il., if I cannot get that...
Support Group: Proton Beam Therapy
Last active: Jan 4, 2023
Prostatitis after radiation? Treatment?
Asking for info my overseas doctor sister. She has an elderly friend who received radiation treatment for PCa (I assume traditional photon radiation- I don’t...
Support Group: Prostate Cancer
Last active: Feb 21, 2025
Flomax side effects
During proton therapy for prostate cancer, I took Flomax to address urinary issues. However, I experienced headache, dizziness, low blood pressure, and even fainted after...
Support Group: Prostate Cancer
Last active: May 17 8:51am
Finished treatment. Ok to get Covid booster now?
Finished proton treatment 5 weeks ago, scheduled for follow up PSA test in about 7 weeks. Have plans for cruise two weeks from today. Is...
Support Group: Prostate Cancer
Last active: Apr 16, 2024