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Discussions (174)
Hyperbaric treatment to help with recovery
I had my last proton theraphy in December of 2023. I have been doing o.k. No side effects, except ED. I urinated blood clots on...
What does Mayo say about MRgRT (e.g. MRIdian)?
Do they have a Viewray or an Elekta Unity? I can't find a reference to it online if they do. So do they just try...
Radiation instead of removal (surgery delayed due to illness)
I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled...
Prostatitis after radiation? Treatment?
Asking for info my overseas doctor sister. She has an elderly friend who received radiation treatment for PCa (I assume traditional photon radiation- I don’t...
Flomax side effects
During proton therapy for prostate cancer, I took Flomax to address urinary issues. However, I experienced headache, dizziness, low blood pressure, and even fainted after...
Anyone have experience with Dr. Abdul-Muhsin at Mayo Phoenix?
Getting a second opinion soon and just wondering if anyone has had any experiences with Dr. Abdul-Muhsin. Looking into robotic surgery vs Proton. Any doctors...
Getting approval from Insurance Companies
Need any idea's, I am 63 so no Medicare. I applied for 28 Proton Treatments thru Blue Cross of Il., if I cannot get that...
Photon Radiation Treatment After Effects FYI
I updated a post with this response and then noticed the post was from 2024. This made me want to post my experience with the...
How quickly do you recover 'yourself’ after stopping Orgovyx?
Started Orgovyx Jan ‘25. Have SBRT Proton mid-September ‘25. Everything going reasonably well. I am planning a trip to France May 25. Was thinking of...
Finished treatment. Ok to get Covid booster now?
Finished proton treatment 5 weeks ago, scheduled for follow up PSA test in about 7 weeks. Have plans for cruise two weeks from today. Is...
Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help If so he...
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
My Active Surveillance Journey
This will be a new experience for me on this 13+ year prostate cancer journey —> Tonight (July 30th) at 7:00 (ET), I’ll be presenting...
PC Journey Info
PC in family history, monitoring PSAs since 2005. Results jumping around 2014-2024 based on medications, injuries, etc... March 2025 off ALL meds prior to testing....
When does Mayo stop collecting your PSA?
I got proton treatment in 2019 at PHX, and just got my latest PSA, 0.2 down from 11.0 when I was diagnosed. For several years...
Treatment Path with Simultaneous Radiation, HT and Chemo
After a PSA of 37 which indicated a PSA doubling in 6 months, an MRI with two PIRAD 5 tumors in my prostate, a biopsy...
Burning While Urinating
Had 7 proton prostrate treatments and am going through quite a bit of pain burning when urinating. Tried AZO not much help. Will try tonight...
Rising PSA's after treatment - an answer
First let me reintroduce myself. I'm one of the grade 10's. An aggressive 10 at that so I have to be on top of things...
Today I watched these prostate cancer-related videos
I had some down time today, so I watched these three prostate cancer-related videos:https://youtu.be/9-GLifGfKgg?si=o82ERXaPJoaHVCzLhttps://youtu.be/XXTcYilkPJo?si=KKfeAZX39RPIX9xxhttps://youtu.be/9aJo-4fQrek?si=DfCEs6YdQXchEZ7zI recall that in the 2 or 3 years before getting proton...
Protein intake and ADT
One of the side effects of ADT is muscle loss. I start ADT on May 13. Shortly after I will receive 44 fractions of proton...
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