Connect
Public Support Group 3,774 total results
Discussions (308)
Prostate cancer treatment delay.
It’s been almost 6 months since I was diagnosed with a prostate cancer. Gleason 7 (4-3). With seminal vesicle invasion. Meeting radiation oncologists in 2...
PSA now .04. What might be next steps?
My husband has now been taking Orgovyx and Nubeqa for five months. His post-prostatectomy persistent PSA has dropped from 4.7 to .04. Before the medications...
Do I need a Urologist?
I keep reading about people visiting a Urologist after surgery. I do not have a Urologist on my Care Team any longer. The Urologist at...
metasized prostate cancer
My husband was diagnosed on 3/27/25 from a PSMA scan and PSA of 32 with metastasized prostate cancer in the lymph nodes and tumors He...
Salvage surgery or salvage radiation?
Hi, I am new to this group. I really need your inputs please. After 5 years of remission, my husband's prostate cancer is back. He...
Abiraterone+Lupron vs (Clinical Trial) Apalutamide+Lupron
Had RP in Jan for typical 4+3=7 PC. PSA is now 10.3 and PSMA Pet shows metastasis to retroperitoneal and hilar lymph nodes which is...
ADT, maybe not? Anyone opted out of ADT?
Has anyone opted out of ADT? I think its effects are possibly too much to sacrifice (at my age, or any age, maybe), but no...
Unusual Treatment Plan?
I was diagnosed in August of 2021 at the age of 59. I had a PSA of 23 and my Gleason was 8 (4+4). PET/PSMA...
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
ADT vs. Estradiol
I had a prostatectomy 4 years ago and my PSA is slowly climbing again. The PSMA/PET scan did not show any areas of cancer growth,...
Next steps for metastatic low volume
My history: Brother prostate cancer at 58 metastatic regional still alive now at 69 after removal and hormone therapy. Now has recurrence after going off...
Gleason 8 - Surgery scheduled in early Sept - timing ok?
My husband (71, active) was diagnosed June 16, Gleason 8, PSA 8, 9/18 positive cores, four 4+4. PSMA PET is clear. He is scheduled to...
metastatic prostate cancer and proton therapy plus hormone treatment
I have been diagnosed with metastatic prostate cancer which apparently involves 3 nodes near my prostate as seen on a psma petscan. Has anyone had...
2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Rare Patient
What makes me unique? I had full prostate ablation done with Tulsa in Jan 2025, not too many in that group. Add to that my...
one year post radiation advice
One year post radiation PSMA PET Redemonstration of mild diffuse heterogeneous radiotracer activity in the prostate gland without significant changes compared to prior study with...
BCR after RP inconsistent rise in PSA
I had a RP in January 2023. PSA was 35 at the time and I was stage T3b with Gleason 9 (4+5) and N1, as...
PSA low: What should I expect with upcoming CT & bone scans?
I just got my psa test result back for today and I’m still undetectable < .02 since late Nov 2025 after prostatectomy, radiation and ADT...
Advice on PSAM-PET/MR 3+4=7
Hello, New to group. HoLEP on 3/27, biopsy indicates 3+4+7, ref to Oncologist who wants to perform a PSMA PET/MR with and without agent of...
Totally confused: How to move forward with my RO & 2nd opinion?
Totally confused67 years, Had HolEP (March 2025) biopsy 3+4=7 Decipher 0.17 TNM=0, PSA 1.2 (8/10/25) PSMA all clear except a small liaison ECE2nd opinion says...
Connect