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Prostate Cancer Support Group

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Scans
My biopsy revealed a Gleason 9 and 12 of 16 cores with cancer and cribriform is evident. Mostly 4 + 3 with a small percentage...
Support Group: Prostate Cancer
Last active: Feb 8 6:48am
Effects of Proton Therapy Without SpaceOAR
I have a gleason of 7 (4+3) with an adjusted PSA of 15 (doubled 7.5 due to longtime finasteride use) and an MRI showing extraprostatic...
Support Group: Prostate Cancer
Last active: May 21, 2022
I think we have a record (in very bad way)
Very disturbing news for us, trying to keep it all together for the sake of my husband. We got Decipher score - he is in...
Support Group: Prostate Cancer
Last active: Mar 30 12:32pm
Has anyone had PC that is very aggressive and a very low low PSA?
My cancer is now chemical reoccurring after five years of ADH and Zytiga. My PSA rose to .5 and we did a PSMA scan, which...
Support Group: Prostate Cancer
Last active: Jul 23, 2023
Profile history
Taking a lead from @dpfbanks , I think it is useful to see the core details in a person's profile. I've added the following to...
Support Group: Prostate Cancer
Last active: Aug 23 11:01am
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Support Group: Prostate Cancer
Last active: Oct 27 5:14am
PCRI Conference interesting points made
Grade group, one HIGH volume likely to proceed to treatment. 5-10% of GG1 within 5 years before progression
Within 10 years 51% of Gleason 6 on...
Support Group: Prostate Cancer
Last active: Apr 3 9:38am
Is anyone else oligometastatic with low PSA, post surgery?
I have a decision to make. Last PSA was 0.145, had a second PSMA PET that shows 2 small bone lesions, scapula and hip. 56...
Support Group: Prostate Cancer
Last active: May 7 12:25pm
New (to me) PCRI Resource and 2022 review
Background: I had PBT therapy in early 2020; with a PSA of 8.3, and I did a 4 month course of ADT. When I was...
Support Group: Prostate Cancer
Last active: Jan 16, 2023
Next Steps after chemo
Hello, I am 52. Diagnosed in March with prostate cancer 9 Mets to bones. Mainly on sacrum. One on skull. PSA 220. Gleasons 7s &9s....
Support Group: Prostate Cancer
Last active: Aug 18 12:19pm
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
Hybrid Approach to metastatic prostate cancer
Have one lymph node with cancer. Is there a good reason to not choose having the prostate surgically removed, recover, and then start oral treatments...
Support Group: Prostate Cancer
Last active: Jun 9 11:55am
prostatectomy vs radiation?
Seeing radiation oncologist Monday Surgeon says I am okay for prostatectomy, although age is a bit of concern, parents lived til mid 90s CHOICES? Quality...
Support Group: Prostate Cancer
Last active: Jul 17 7:48pm
What does Capsular Invasion mean? What are the next treatment options?
I’m having recurrence after triplet treatment (Lupron and darolutamide, then Chemo, then IMRT) for Gleason 9 metastatic. Thirteen months of Lupron ended last February. Continuing...
Support Group: Prostate Cancer
Last active: Jan 5 1:15pm
Monitoring PSA post surgery with Gleason 9
49 yo, Gleason 9, surgery in 6 weeks. My PSA was around 1 for years and then in Jan ‘25 went to 4.3. Seems like...
Support Group: Prostate Cancer
Last active: Apr 12 1:10pm
Quality of life feed back . Radiation vs.surgery 54 years old
Have my results from pet scan finally. Newly diagnosed know faced with the decision of surgery or radiation treatment. IMPRESSION: No PET/CT evidence of metastatic...
Support Group: Prostate Cancer
Last active: Aug 8 7:16am
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26 7:37am
ADT before surgery: Good idea?
I have been working with 3 COE’s . I have decided on surgery. 62 yrs G9, non metastatic, localized PC. PSMA pet 2/10th. Surgery 3/26....
Support Group: Prostate Cancer
Last active: Apr 1 4:37pm
Rise in PSA after 4 years on ADH & Zytiga
My first post with this group. My PS has been.007 undetectable for 4 years. It has now rose to .19 . Dr ordered a PSMA...
Support Group: Prostate Cancer
Last active: Oct 14, 2022
Lower abdomen, side, and lower back pain
Was diagnosed with 7 (3+4) prostate cancer in April, PSA is around 4.5, biopsy confirmed 1 of 12 cores in area of concern (70%, 4...
Support Group: Prostate Cancer
Last active: Oct 6 4:14pm