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Prostate Cancer Support Group

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Discussions (226)
Continued Monitoring or Biopsy?
My PSA has fluctuated all year: January: 8.1 and 7.8 March: 5.4 June: 4.4 September: 7.1 Dec: 6 %Free PSA between 15% and 16.6% First...
Support Group: Prostate Cancer
Last active: Dec 8, 2025
Salvage radiation decision: with or without hormone therapy?
I had a prostatectomy in 2021. PSA was undetectable for 2 years. Then PSA went to 0.1 in 2023, and then 0.2 in 2024. I...
Support Group: Prostate Cancer
Last active: Feb 22 5:36pm
Recurrence in pelvic lymph node
I'm meeting with my radiologist this week, and would appreciate your suggestions about questions I should ask. After a prostatectomy five years ago (Gleason 8),...
Support Group: Prostate Cancer
Last active: Nov 29, 2025
Unusual Treatment Plan?
I was diagnosed in August of 2021 at the age of 59. I had a PSA of 23 and my Gleason was 8 (4+4). PET/PSMA...
Support Group: Prostate Cancer
Last active: Jun 22, 2023
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16, 2025
PSMA PET scan: then what?
I had a prostatectomy in July 2022. The pathology report showed clean margins and no spread to 12 sampled lymph nodes. PSA tests were <...
Support Group: Prostate Cancer
Last active: Sep 13, 2025
Deciding what to do when providers have such different protocols?
Prostate cancer diagnosed 2 1/2 years ago, Gleason 7, 3+4, stage 1. Nerve sparing prostatectomy 2 years ago. PSA tested every three months was always...
Support Group: Prostate Cancer
Last active: Aug 19, 2025
Scheduling quandary: Can I wait 3 months for my Radical Prostatectomy?
A bit of a quandary here. My situation is attached below. My wife just had a procedure done which will prevent her from caring for...
Support Group: Prostate Cancer
Last active: Aug 28, 2023
Reoccurrence: Radiation vs Cryotherapy?
Within 2 years from my prostatectomy, my PSA is up to .27 and a CT PET shows a small lesion near the badder neck and...
Support Group: Prostate Cancer
Last active: Apr 24 6:48pm
Had Radical Prostatectomy last week: What are next steps?
Hi, I just had a Radical Prostatectomy on 8/4/22 and made the unfortunate decision to look at my Pathology Report before my appointment with surgeon...
Support Group: Prostate Cancer
Last active: Feb 26, 2023
Significance of tertiary Gleason pattern 5
I had a prostatectomy 4 months ago. The pathology was Gleason 4+3 with a tertiary Gleason pattern 5. Perineural invasion was present. pT Category: pT2x:...
Support Group: Prostate Cancer
Last active: Dec 18, 2023
Scheduled for a Radical Prostatectomy and having Second Thoughts
Am I doing the right thing? I am 69 years old, in good overall health and was recently, to my utter surprise,diagnosed with prostate cancer....
Support Group: Prostate Cancer
Last active: Jan 10, 2025
One Week After Prostatectomy
I just wanted to update my experience. I had the prostatectomy last week. The surgery went as planned. Pathology confirmed stage 2 cancer. The doctor...
Support Group: Prostate Cancer
Last active: Oct 22, 2024
Seeking your thoughts on PSA of .1 on Orgovyx and Nubeqa
Some of you might remember my sharing that my husband’s PSA kept rising after his prostatectomy, more positive lymph nodes were found by PSMA pet,...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Outcomes and impacts from SBRT and/or Robotics Radical Prostatectomy
Hello. You may know me as JohnnyZ and I am facing the decision for a recommended SBRT by my radiation oncologist, or robotics surgery to...
Support Group: Prostate Cancer
Last active: Sep 2 9:37am
What should I expect moving forward?
Gleason score 8 with pni efe and svi.Psa 110 to 228 in 2 monthsLow hemaglobin, rbc, and hematacrit with wbc dropping fast.Pet scan showed multiple...
Support Group: Prostate Cancer
Last active: Oct 8, 2025
Lower back pain after surgery
Hi after being diagnosed with prostate cancer in December 2019 Gleason score 4+3 then having robotic radical prostatectomy in 2020 blood tests to date psa...
Support Group: Prostate Cancer
Last active: Apr 20, 2023
Post Prostatectomy Two Week Progress
PART 1First of all, I'd like to convey my sincere and heartfelt thanks to all of you on this forum for helping me come to...
Support Group: Prostate Cancer
Last active: Feb 27 3:30pm
Decipher Results and Outcomes: Anyone had similar?
I am curious if others have had similar results on their decipher test and outcome. I have added my results and up to date information.I...
Support Group: Prostate Cancer
Last active: Mar 8, 2025
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25, 2025