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Public Support Group 1,967 total results
Discussions (155)
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
IMRT Radiation and ADT
My husband Jeff was recently diagnosed with prostate cancer. He is 62 yo and mostly in good health- walks, runs, bikes, pickleball, lifts weights. He...
MRI-linac question about BCR
I am aware of the mirage trial and the decreased side effect profile with sbrt mri-linac. I am wondering what are the numbers for biochemical...
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
PSMA negative, Biopsy positive
My husband (71) has a Gleason 8, PSA 8 (4+4). His recent MRI-guided biopsy revealed 9/18 positive cores, four of those 4+4. PSMA showed no...
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Have you stopped then restarted taking Orgovyx? If so how was it.
I have an aggressive type of Prostate cancer. Over the past 36 months I have had RRP (post surgery PSA 0.37) then followed 6 months...
Switching from Orgovyx to Bicalutamide
Hi everyone, I’m looking for insight or personal experiences with Bicalutamide as a follow-up or alternative to Orgovyx. I’ve been on Orgovyx (relugolix) for about...
Unusual Triple therapy sequence, Nubeqa and Fatigue
HX in profile, and update to unusual application of triple therapy. Lung only Mets 17 yrs post RARP and no treatment, so he was treatment...
Docetaxel and steroids, how did you feel?
My husband had his first dose of Docetaxel chemo last thursday, with strong steroids the night before and the morning of, plus I think more...
Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for...
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Got my ArteraAI Prostate Test results
Artera AI test results :Hey. Just wanted to follow up on getting my results yesterday from my Artera A I test. The test is similar...
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
Reversal of penile shortening after stopping Lupron
I am a 71 yo diagnosed with Gleason 9 PC in August2021. Had RP 10/21. Six months post op PSA rose to 0.37 and a...
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Newby in PNW Favorable vs Unfavorable Intermediate
66 year old - healthy & active. PSA 5.03 (9/23) then 7.48 (9/24). MRI: T2 with extracapsular extension. Biopsy: Gleason 3+4/7, Cribriform aprox. 40% of...
Sling (or other treatment/prodedure) for climaturia following RP
I had a RP just over 3 years ago for G9 and subsequently had triple therapy plus whole pelvic radiation for oligo metastatic disease. My...
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