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Prostate Cancer Support Group

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Discussions (181)
Information on limiting ADT
Anyone wishing to get a better handle on whether and when (if ever) he should use ADT, I suggest considering enrolling this clinical trial.NCT05588128 It's...
Support Group: Prostate Cancer
Last active: Aug 23 7:38pm
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20 8:24am
BCR after RP inconsistent rise in PSA
I had a RP in January 2023. PSA was 35 at the time and I was stage T3b with Gleason 9 (4+5) and N1, as...
Support Group: Prostate Cancer
Last active: Apr 28 8:37am
T3b L1 Gleason 9 Question
So newly diagnosed as a Gleason 9, and one of the lymph nodes they took out during my RALP tested positive as well. ADT and...
Support Group: Prostate Cancer
Last active: Feb 11 2:59pm
Does age influence choice of radiation + ADT over srugery?
Age 77, cribriform 4+3 Gleason score, grade 4, PSA 4.3, Pet Scan no spread, Genetic Test, low risk. 16 core biopsy 4 positive. Would prefer...
Support Group: Prostate Cancer
Last active: Mar 11 7:06am
Effects of Proton Therapy Without SpaceOAR
I have a gleason of 7 (4+3) with an adjusted PSA of 15 (doubled 7.5 due to longtime finasteride use) and an MRI showing extraprostatic...
Support Group: Prostate Cancer
Last active: May 21, 2022
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4 11:50am
Should I be seeking extra treatment?
Hey guys and wives, this is my first post here but have been lurking a couple months. I have a pretty good heath plan at...
Support Group: Prostate Cancer
Last active: Aug 1 6:50pm
Gleason 7 (4+3) radiation, but ADT also? Over treatment?
Hello,I will be 80 next August and apart from newly diagnosed PC am in good overall health. I have a diagnosis of Gleason 7 (4+3)...
Support Group: Prostate Cancer
Last active: Jun 12 5:00pm
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Support Group: Prostate Cancer
Last active: Dec 16, 2023
A different report: I can stop ADT
Hello; as I scanned the posts for today’s reading I thought it’s a good time to share my status. I just returned from my MO...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Support Group: Prostate Cancer
Last active: Apr 16 11:29am
ADT and Blood Lipids
Just got my blood test results from my PCP, which do not test for PSA and T - the oncology team handles that. In early...
Support Group: Prostate Cancer
Last active: Apr 11 8:24pm
How accurate are the PSA Tests?
I posted earlier that after 2+ years post surgery, my PSA had been undetectable < .006 on all my tests. Then my test 2 weeks...
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Lung metastasis: Curiosities from VATS to BATS
“Metastasis to the lung is present in more than 40% of men with metastatic prostate cancer (3); however, lung metastases without any bone or lymph...
Support Group: Prostate Cancer
Last active: Aug 10 8:28pm
Management of ADT hot flashes?
(This is not medical advice; just mine and my brother’s different prostate cancer treatment experiences as it relates to minimizing hormone therapy side-effects.) Diagnosed with...
Support Group: Prostate Cancer
Last active: Sep 4 1:19pm
Adverse effects of ADT for aggressive tumors
Quick question - it’s been nagging me for a while and would appreciate any insight. In my case, I have a PSA reading of 25,...
Support Group: Prostate Cancer
Last active: Jan 5 5:31pm
Newly diagnosed stage 4, how long on ADT before adding ARSI?
My dad (83 and otherwise relatively healthy) was recently diagnosed with stage 4 prostate cancer that's spread to his bladder, urethrae, possibly rectum, pelvic lymph...
Support Group: Prostate Cancer
Last active: May 4 11:19am
Is ED after radiation without ADT permanent?
I was watching Dr Scholz (PCRI) speak about RT and he briefly mentioned that men who experienced ED up to 2 years after treatment, would...
Support Group: Prostate Cancer
Last active: Jul 22, 2023
Bone Metastasis: What treatment did you have?
My last PET scan showed a "sclerotic lesion on my right acetabulum" measuring 1.5 x 1.5 cm (PSA was 0.18 and testosterone 37 at the...
Support Group: Prostate Cancer
Last active: May 13 6:17pm