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Prostate Cancer Support Group

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Discussions (149)
Prostate cancer recurrence: RT advised concerned about quality of life
After 10 years my prostate cancer has come back. PSA went from 0 to 0.4(from 0.2 to 0.4 in last 6 months). PET/CT TEST was...
Support Group: Prostate Cancer
Last active: Feb 25, 2025
Breathing and kegel exercises
In preparation for an upcoming prostate surgery within weeks, I have pro-actively started kegel exercises to minmize the impact and duration of incontinence post-surgery. Different...
Support Group: Prostate Cancer
Last active: Aug 2, 2025
Question you wished you had asked before your Prostatectomy
I've made a list of questions to review with my Dr. regarding my upcoming Prostatectomy. I don't know what treatment they will want to do...
Support Group: Prostate Cancer
Last active: Mar 12, 2025
RARP scheduled: what to expect for recovery & day-to-day life?
My RARP surgery is scheduled for early August at Mayo in Rochester. Wondering what to expect for a recovery. I know the incontinence and ED...
Support Group: Prostate Cancer
Last active: May 31, 2025
Anyone recently experience sudden diaper rash using "Shields"?
Bottom line question first, then the detail:Has anyone noticed a change in the "feel" of their incontinence "Shields", such that they are getting irritation and...
Support Group: Prostate Cancer
Last active: 5 days ago
Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
Hello. Just wondering if anyone has a long-ish term experience with either the sling or AUS. I had a partial nerve sparing prostatectomy in 2018....
Support Group: Prostate Cancer
Last active: Feb 26 12:56pm
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13, 2025
Difficulty urinating: What helps with urination reluctance?
Age 65. PSA rose steadily over several years. Biopsy revealed grade GG2. I opted for LAPR, which took place 2 weeks ago. Pathology upgraded to...
Support Group: Prostate Cancer
Last active: Feb 22 1:31pm
How do you deal with your friends' ignorance about your condition?
I have been open and frank with my golf and pickleball buddies about my incontinence after my RALP of several months ago. They have come...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Catheter Removal Day is World Cancer Day And So Far So Good!
Might be too soon to tell, but the catheter came out finally, and of course I felt like I needed to pee the whole way...
Support Group: Prostate Cancer
Last active: Feb 5, 2025
Pelvic Floor muscle training post-prostatectomy
I hate incontinence and have been spending some time researching treatmentone issue that has come up has to do with how many Kegels a day...
Support Group: Prostate Cancer
Last active: Apr 5, 2025
Questions about MRI report
I had an abnormal PSA for my age and so I was referred to an urolgist who did a digital rectal exam and didn't feel...
Support Group: Prostate Cancer
Last active: May 24, 2023
Finding the right dosage of Trimix
Since my RARP was non-nerve sparing, I'm permanently impotent. I've tried everything with no usable results, so now it's Trimix. I started at 0.1 ml...
Support Group: Prostate Cancer
Last active: Oct 11, 2025
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Apr 4, 2025
Total Gland Ablation Experiences w' TULSA-PRO?
Greetings All, I'm seeking feedback on others' experiences w' PC who had total gland ablation via TULSA-PRO. Cured? ED? Incontinence? Complications? Other? My PC is...
Support Group: Prostate Cancer
Last active: Feb 7, 2025
Apprehensive, and asking for your advice pre RP
Hello there, in the span of a week I have had a biopsy with positive PC results and scheduling of surgery 8 days from now...
Support Group: Prostate Cancer
Last active: Dec 7, 2025
How long were you Incontinent? How did it come back for you?
I realize this is different for most patients but I am fully incontinent after 3 weeks and often hear people say they didn't have the...
Support Group: Prostate Cancer
Last active: Aug 26, 2023
Doc just recommended treatment options, head is spinning! Thoughts?
Hi there! Brand new here after meeting with my urologist today. My basic story: 57 yo white male, good health, no health problems except slightly...
Support Group: Prostate Cancer
Last active: Jan 13 7:46am
SBRT vs. Robot-assisted radical prostatectomy
Well, my last visit to Mayo didn't go as well as I wanted. I'm 72 years old and I had an Ultrasound-guided transperineal prostate biopsy...
Support Group: Prostate Cancer
Last active: Dec 6, 2023
A different kind of scanner
I haven't posted here before in any meaningful way; but want to thank everyone for sharing their stories, and their knowledge, which I have found...
Support Group: Prostate Cancer
Last active: Sep 26, 2025