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Prostate Cancer Support Group

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Discussions (156)
Looking for exercise suggestions prior to robotic prostatectomy.
I hope I'm not re-asking a common question... I recently got my prostate biopsy results back and had a Gleason score of 6 (3/3). I...
Support Group: Prostate Cancer
Last active: Jun 6, 2023
Prostate cancer recurrence: RT advised concerned about quality of life
After 10 years my prostate cancer has come back. PSA went from 0 to 0.4(from 0.2 to 0.4 in last 6 months). PET/CT TEST was...
Support Group: Prostate Cancer
Last active: Feb 25, 2025
RP yesterday at NYU Langone
Fellas: Just wanted to update you. 62 yrs ( my birthday today) G9. Don’t have pathology back yet. Surgeon said everything went well. Spent the...
Support Group: Prostate Cancer
Last active: Mar 28, 2025
Breathing and kegel exercises
In preparation for an upcoming prostate surgery within weeks, I have pro-actively started kegel exercises to minmize the impact and duration of incontinence post-surgery. Different...
Support Group: Prostate Cancer
Last active: Aug 2, 2025
Who saw Dr. Ram Pathak at Mayo Jacksonville for Tulsa Pro?
Discussed both removal and Tulsa Pro with Dr Ram Pathak at Mayo Jacksonville for my localized Gleason 3+4=7 cancer, PSA 4.5. Have been on AS...
Support Group: Prostate Cancer
Last active: 5 days ago
Question you wished you had asked before your Prostatectomy
I've made a list of questions to review with my Dr. regarding my upcoming Prostatectomy. I don't know what treatment they will want to do...
Support Group: Prostate Cancer
Last active: Mar 12, 2025
RARP scheduled: what to expect for recovery & day-to-day life?
My RARP surgery is scheduled for early August at Mayo in Rochester. Wondering what to expect for a recovery. I know the incontinence and ED...
Support Group: Prostate Cancer
Last active: May 31, 2025
Anyone recently experience sudden diaper rash using "Shields"?
Bottom line question first, then the detail:Has anyone noticed a change in the "feel" of their incontinence "Shields", such that they are getting irritation and...
Support Group: Prostate Cancer
Last active: Mar 27 9:02pm
Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
Hello. Just wondering if anyone has a long-ish term experience with either the sling or AUS. I had a partial nerve sparing prostatectomy in 2018....
Support Group: Prostate Cancer
Last active: Feb 26 12:56pm
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13, 2025
Difficulty urinating: What helps with urination reluctance?
Age 65. PSA rose steadily over several years. Biopsy revealed grade GG2. I opted for LAPR, which took place 2 weeks ago. Pathology upgraded to...
Support Group: Prostate Cancer
Last active: Feb 22 1:31pm
Persistent urgency even after urinating, 3 months after prostatectomy
My prostatectomy was 3 months ago. My incontinence has been complicated by an unrelenting urgency to pee. Oddly, it's most acute right after emptying my...
Support Group: Prostate Cancer
Last active: Apr 13 9:15am
How do you deal with your friends' ignorance about your condition?
I have been open and frank with my golf and pickleball buddies about my incontinence after my RALP of several months ago. They have come...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Pelvic Floor muscle training post-prostatectomy
I hate incontinence and have been spending some time researching treatmentone issue that has come up has to do with how many Kegels a day...
Support Group: Prostate Cancer
Last active: Apr 5, 2025
Catheter Removal Day is World Cancer Day And So Far So Good!
Might be too soon to tell, but the catheter came out finally, and of course I felt like I needed to pee the whole way...
Support Group: Prostate Cancer
Last active: Feb 5, 2025
Questions about MRI report
I had an abnormal PSA for my age and so I was referred to an urolgist who did a digital rectal exam and didn't feel...
Support Group: Prostate Cancer
Last active: May 24, 2023
Finding the right dosage of Trimix
Since my RARP was non-nerve sparing, I'm permanently impotent. I've tried everything with no usable results, so now it's Trimix. I started at 0.1 ml...
Support Group: Prostate Cancer
Last active: Oct 11, 2025
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Apr 4, 2025
Total Gland Ablation Experiences w' TULSA-PRO?
Greetings All, I'm seeking feedback on others' experiences w' PC who had total gland ablation via TULSA-PRO. Cured? ED? Incontinence? Complications? Other? My PC is...
Support Group: Prostate Cancer
Last active: Feb 7, 2025
Apprehensive, and asking for your advice pre RP
Hello there, in the span of a week I have had a biopsy with positive PC results and scheduling of surgery 8 days from now...
Support Group: Prostate Cancer
Last active: Dec 7, 2025