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Prostate Cancer Support Group

Public Support Group
2,296 total results
Discussions (187)
Has anyone had PC that is very aggressive and a very low low PSA?
My cancer is now chemical reoccurring after five years of ADH and Zytiga. My PSA rose to .5 and we did a PSMA scan, which...
Support Group: Prostate Cancer
Last active: Jul 23, 2023
What?!? "Curing" oligometastatic prostate cancer???
I'm reading Dr Walsh's book cover to cover now, after skipping around to just the bits relevant to me the first time through. I noticed...
Support Group: Prostate Cancer
Last active: 9 hours ago
New (to me) PCRI Resource and 2022 review
Background: I had PBT therapy in early 2020; with a PSA of 8.3, and I did a 4 month course of ADT. When I was...
Support Group: Prostate Cancer
Last active: Jan 16, 2023
Additional radiation treatment for 2nd recurrence
My PSA was 5.53 and my Gleason score was 3+4 =7. I had a robotic prostatectomy in 2006. Went undetectable until 2013. I then Had...
Support Group: Prostate Cancer
Last active: Feb 6, 2024
What does Capsular Invasion mean? What are the next treatment options?
I’m having recurrence after triplet treatment (Lupron and darolutamide, then Chemo, then IMRT) for Gleason 9 metastatic. Thirteen months of Lupron ended last February. Continuing...
Support Group: Prostate Cancer
Last active: Jan 5 1:15pm
PET scan explanation, findings & personal conclusion
Background: Diagnosis of prostate cancer 2010. Gleason 3+3; PSA: 6.46 noted as slow growth cancer. Underwent proton radiation therapy at Loma Linda Hospital, a pioneer...
Support Group: Prostate Cancer
Last active: Feb 26 7:37am
ADT before surgery: Good idea?
I have been working with 3 COE’s . I have decided on surgery. 62 yrs G9, non metastatic, localized PC. PSMA pet 2/10th. Surgery 3/26....
Support Group: Prostate Cancer
Last active: Apr 1 4:37pm
Rise in PSA after 4 years on ADH & Zytiga
My first post with this group. My PS has been.007 undetectable for 4 years. It has now rose to .19 . Dr ordered a PSMA...
Support Group: Prostate Cancer
Last active: Oct 14, 2022
New Blood Test Detects 50 Types of Cancer at an Early Stage
https://grail.com/our-products/ Three days ago my GP recommended the Galleri blood test which one pays for out of pocket. She told me that it picks up...
Support Group: Prostate Cancer
Last active: Feb 11 8:18am
Help-what treatment plan has anyone selected for Perineural invasion?
Age 74, diagnosed December 2024 with Gleason 4+4=8. PSA 2.001 June 2024, PSA 2.28 4K Score September 2024. October 2024, Prostate MRI PIRADS 4 High...
Support Group: Prostate Cancer
Last active: May 4 5:37pm
SBRT left common iliac node
OK, ready to make a decision on the next step of this battle. Prostatectomy 10 years ago. Biochemical recurrence with 30ish Radiation Treatments and that...
Support Group: Prostate Cancer
Last active: Feb 10 11:37am
BCR after 5 years Prostatectomy now questions about SRT
This forum has been very helpful. I just discovered I have BCR after 5 years no levels of PSA tests. Had the Prostatectomy with little...
Support Group: Prostate Cancer
Last active: May 27 9:20am
Need Radiotherapy guidance
Hi I went for RP last year Feb-2022. The pathology report came with a Gleason score of 3+5 and one pelvic node positive. PSA test...
Support Group: Prostate Cancer
Last active: Jul 3, 2023
Appropriate standard of care or just poor treatment? What can I do?
I was diagnosed 23 months ago. I am confused, After the radiation was over the radiologist told me he could not finish it, that is...
Support Group: Prostate Cancer
Last active: Mar 20, 2024
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
Support Group: Prostate Cancer
Last active: May 7, 2024
What to do? In limbo after radiation + Lupron, now rising PSA
(discovered cancer 3 years ago: PSA of 28, Gleason 9, then 6 weeks radiation, 3 years Lupron, I'm 63)My PSA got down to 0.05 after...
Support Group: Prostate Cancer
Last active: Jan 22, 2024
urologist and radiation oncologist aren't on the same page
Urologist: There's a bit of cancer still there in the prostate, but all I need to do is to stay on ADT for the rest...
Support Group: Prostate Cancer
Last active: Jan 28 8:42am
Gleason score 3+4 plus perineural invasion
Last year I had a 3+3 biopsy in one core but that was in a random core. This year the MRI found a new target...
Support Group: Prostate Cancer
Last active: Apr 21 9:41pm
Reversal of penile shortening after stopping Lupron
I am a 71 yo diagnosed with Gleason 9 PC in August2021. Had RP 10/21. Six months post op PSA rose to 0.37 and a...
Support Group: Prostate Cancer
Last active: Feb 13 4:07pm
Gleason 9 SO wants me to stop ADT @6 Mos for look see
My SO wants to stop ADT after 6 months and wait 2 months then test to see if PSA rises? Does this make sense? Just...
Support Group: Prostate Cancer
Last active: 6 days ago