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Prostate Cancer Support Group

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Best Kegel App?
Inquiring for my husband (71, G8, PSMA PET clean, surgery scheduled 9/7). Has been doing his kegels religiously, but would like an app to keep...
Support Group: Prostate Cancer
Last active: Nov 7, 2024
After insurance approval, how long did it take to receive Orgovyx?
After insurance approval, about how long did it take to receive Orgovyx? MO told us will come from a specialty pharmacy. Think it will be...
Support Group: Prostate Cancer
Last active: 5 days ago
Rut Roh Rorge - PSA wrong direction
ADT / ARSI since June 2025 IMRT Oct 2025 PSA: 4/21/25 - 30.11 7/9/25 - 0.55 8/26/25 - 0.19 12/3/25 - 0.23 3/17/26 - 8.80...
Support Group: Prostate Cancer
Last active: Mar 18 1:33pm
Metastatic Prostate Cancer: Where do I go from here?
PSMA PET scan revealed radiotraser uptake in the right 7th and 9th ribs consistent with osseous metastasis. . Where do I go from here. I...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
Looking for info on HDR Brachytherapy to ask Radiation Oncologist
I’m trying to decide on IMRT, Proton Therapy 5 fractions, or HDR for localized Gleason 4+4 PC. PSMA came back clean. I keep wavering. Looking...
Support Group: Prostate Cancer
Last active: May 28, 2025
Metastatic prostate cancer request for advice
I am 72 years old diagnosed with metastatic prostate cancer in January 26 - Gleason Score 4+3=7 - PSA 13 My PSMA-PET scan revealed the...
Support Group: Prostate Cancer
Last active: 1 day ago
MRI Side effects
Yesterday I had my pre surgery MRI with contrast and this morning I woke up and had a bout of Diarrhea. I looked it up...
Support Group: Prostate Cancer
Last active: Feb 27, 2025
ARX517 trial
There is a PSMA targeted medicine in phase 1 trials called ARX517 from Ambrx Pharmaceuticals that sounds promising. Ambrx is now owned by Johnson and...
Support Group: Prostate Cancer
Last active: May 4, 2025
It's Official I have Prostate Cancer
Yesterday I got the results, I have two small lesions. I was given a Gleason score of 8 and typing of 4. Next steps are...
Support Group: Prostate Cancer
Last active: Aug 3, 2025
Went in T2a, came out T3a — anyone else blindsided by post-op path?
Greetings all. Long-time reader, first-time poster. I had my RALP nine days ago. Headed into surgery feeling cautiously optimistic: PSA of 6.0, clean PSMA PET...
Support Group: Prostate Cancer
Last active: 5 days ago
Concerned procrastinating will affect future prognosis
After RP April 2019 Gleason 9 negative margins pt3a lymph nodes clear, BCR aug 2022 confirmed pet positive lymph node (SUV 1.9) PSA 0.22 was...
Support Group: Prostate Cancer
Last active: Jun 23, 2023
Nuclear Medicine Bone Scan
I have to go for a Nuclear Medicine Bone Scan in a couple weeks. I just had a PSMA PET scan and a DEXA Bone...
Support Group: Prostate Cancer
Last active: Aug 17, 2025
Treatment after rp radiation and 2 bcrs
Psa .24 December- .51 in august. Psma pet in April negative. Urologist prescribed bicultamide and finestride. Anyone do this combo or either one. Should I...
Support Group: Prostate Cancer
Last active: Nov 16, 2023
Second opinion for husband's stage 4A prostate cancer? And update
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Prostate removed in 2008: What are treatments options for rising PSA?
Hello all, I had my Prostate removed 2008. Gleason 4+3 Age 60. Follow up PSA readings always low. I assumed they never got it all....
Support Group: Prostate Cancer
Last active: Mar 5 8:19pm
Pluvicto treatment dangers to caregivers?
Hi, They are doing a PSMA Pet scan for my husband in 2 weeks. I guess this is done before Pluvicto treatment... They sent a...
Support Group: Prostate Cancer
Last active: Feb 27 4:52pm
The right time to start radiation post RP with an increasing PSA?
I'm 57 years old and had a Robotic Radical Prostatectomy on 12/1/2022. Since then I've been diligent in my post operation blood work and PSA...
Support Group: Prostate Cancer
Last active: Jan 12 12:09pm
Stage 4: What are my options?
The VA used the terms metastasized, incurable and palliative at my latest appointment with these notes after a "PET PSMA demonstrated a tiny 4 mm...
Support Group: Prostate Cancer
Last active: Dec 9, 2024
Any experiences with going with the Estrogen instead of the Orgovyx?
Have Gleason 8 stage four with PSA 2.62 Latest PSMA PET CT scan negative.Had radiation to two lymph nodes below the kidneys over a year...
Support Group: Prostate Cancer
Last active: Feb 17 9:54am