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Prostate Cancer Support Group

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Discussions (226)
Knowing ASAP if with recurrence - Your Thoughts, Please!
My husband had planned radiation (HDR Brachy or SBRT) for 3+4=7. But since we have learned of cribriform and now a Decipher "high risk" score,...
Support Group: Prostate Cancer
Last active: Sep 11, 2024
With regional lymph node metastasis what is the progression?
From the following summary what should I expect going forward other than Androgen Deprivation Therapy (ADT)? SUMMARY 2020-06 Prostatectomy Pathology: Gleason 4+3 T3 Positive surgical...
Support Group: Prostate Cancer
Last active: Jul 14, 2025
Rising PSA after SBRT - worrysome or to be expected?
Five years ago, I was diagnosed with Gleason-9 PC and had a prostatectomy. Shortly thereafter, I had a biochemical recurrence and had 39 IMRT treatments...
Support Group: Prostate Cancer
Last active: Nov 3, 2025
PSA Rise After ADT
I've been posting and following a few months now. I was stage 4a, Gleason 9, Decipher .99. I've had prostatectomy, followed by radiation and ADT...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Just got my prostatectomy pathology results
It’s been a while since I last posted. I was diagnosed with prostate cancer in April of last year, Gleason 7 (3+4). PSA was 6.8...
Support Group: Prostate Cancer
Last active: Feb 26, 2024
Choline C11 PET scan: Anyone had it? Is it useful?
Hi, I had a prostatectomy 2006, and salvage radiation 2015, now the PSA is rising again (2023, I'm 74) I've been reading about the Choline...
Support Group: Prostate Cancer
Last active: Jul 5, 2023
Input on PSA rise 3 yrs Post RP
Radical Prostatectomy May 2020. Original Gleason Score at time of biopsy was 4+3. Post RP pathology report stated high risk, confirmed 4+3 score, positive margins,...
Support Group: Prostate Cancer
Last active: Sep 4, 2024
Recurrence Post RALP: Did a second opinion change your plan?
Hi all,I’m looking for some perspective as I work through the next steps after prostatectomy.**Brief background:*** Age 67* Radical prostatectomy: August 2025* Pathology: Gleason 4+3...
Support Group: Prostate Cancer
Last active: Apr 11 10:39am
Misleading PSA and PSMA Test Results
My GP did a yearly PSA. My one and only “abnormal” result was 4.4, Jan of ‘25. He said I could re-test in 6 months...
Support Group: Prostate Cancer
Last active: Apr 20 12:39pm
Biochemical recurrence, On / Off treatment with Orgovyx only
Hello good people! Feel better already reading all the knowledge shared on this support group. Can I get direction on if my choice is sound?...
Support Group: Prostate Cancer
Last active: Sep 7 12:20pm
Adjuvant radiation and ADT after radical prostectomy: Thoughts?
Hi folks - I am 73 years old and physically active and fit. I had a PSMA PET scan and biopsy done in April 2025....
Support Group: Prostate Cancer
Last active: Mar 29 12:51pm
How long after biochemical failure for positive PSMA PET scan?
Robotic radical prostatectomy April 2015. PSA: .1 Jan. 2023; .44 Nov. 2024 and .5 March 2025 (from a different lab so not sure if this...
Support Group: Prostate Cancer
Last active: Mar 27, 2025
When do testosterone & side effects improve after Orgovyx?
I completed 38 Sessions of Imrt for prostate reoccurrence 3 years after prostatectomy and completed 6 months of Orgovyx on June 18. My age is...
Support Group: Prostate Cancer
Last active: Jul 12 3:08pm
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Support Group: Prostate Cancer
Last active: Apr 16, 2025
Continued Monitoring or Biopsy?
My PSA has fluctuated all year: January: 8.1 and 7.8 March: 5.4 June: 4.4 September: 7.1 Dec: 6 %Free PSA between 15% and 16.6% First...
Support Group: Prostate Cancer
Last active: Dec 8, 2025
Salvage radiation decision: with or without hormone therapy?
I had a prostatectomy in 2021. PSA was undetectable for 2 years. Then PSA went to 0.1 in 2023, and then 0.2 in 2024. I...
Support Group: Prostate Cancer
Last active: Feb 22 5:36pm
Unusual Treatment Plan?
I was diagnosed in August of 2021 at the age of 59. I had a PSA of 23 and my Gleason was 8 (4+4). PET/PSMA...
Support Group: Prostate Cancer
Last active: Jun 22, 2023
active surveillance no longer recommended?
I"m not a Mayo patient. I'm 62 and was just diagnosed with prostate cancer, PSA 4.7, Gleason 3+3. I have no symptoms and am otherwise...
Support Group: Prostate Cancer
Last active: Jun 16, 2024
Xtandi or Xtandi + Hormone Shots? I am trying to make a decision.
I am 79 years old. I had a prostatectomy 13 years ago. Gleason score was 8. My PSA has been rising. Latest readings are: Jun...
Support Group: Prostate Cancer
Last active: Jul 26 9:14am
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Support Group: Prostate Cancer
Last active: Dec 16, 2023