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Prostate Cancer Support Group

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Discussions (200)
First PSA 1 month post-Proton Therapy higher than I would like
So, status update and gut check. I completed 5 sessions of high-dose Proton therapy at OU Stephenson on February 9. It took a few missed...
Support Group: Prostate Cancer
Last active: Mar 9 7:10pm
Rising PSA after SBRT - worrysome or to be expected?
Five years ago, I was diagnosed with Gleason-9 PC and had a prostatectomy. Shortly thereafter, I had a biochemical recurrence and had 39 IMRT treatments...
Support Group: Prostate Cancer
Last active: Nov 3, 2025
Advice for further treatment
I’m sorry if I’m submitting this again. Internet interruption. So, I’ll try again. I would like your advice on further treatment. History Robotic assisted radical...
Support Group: Prostate Cancer
Last active: Aug 8, 2025
How to decide what next for ADT?
My husband had a prostatectomy in 2016 when PSA was 22. Gleason score 7 (4+3). Cancer was autopsied as mildly aggressive. Residual afterwards was PSA...
Support Group: Prostate Cancer
Last active: Aug 4, 2024
Input on PSA rise 3 yrs Post RP
Radical Prostatectomy May 2020. Original Gleason Score at time of biopsy was 4+3. Post RP pathology report stated high risk, confirmed 4+3 score, positive margins,...
Support Group: Prostate Cancer
Last active: Sep 4, 2024
Surgeon appointment for Robotic Prostatectomy: Questions to ask?
Tomorrow I will have an appointment with a surgeon for possible robotic surgery (prostatectomy).59yrs oldGleason score 3+4=7One positive core 1.6cmAcinar adenocarcinomaPSA 6/12/23= 4.24PSA 12/12/23=5.13BPH on...
Support Group: Prostate Cancer
Last active: Jun 3, 2024
Knowing ASAP if with recurrence - Your Thoughts, Please!
My husband had planned radiation (HDR Brachy or SBRT) for 3+4=7. But since we have learned of cribriform and now a Decipher "high risk" score,...
Support Group: Prostate Cancer
Last active: Sep 11, 2024
With regional lymph node metastasis what is the progression?
From the following summary what should I expect going forward other than Androgen Deprivation Therapy (ADT)? SUMMARY 2020-06 Prostatectomy Pathology: Gleason 4+3 T3 Positive surgical...
Support Group: Prostate Cancer
Last active: Jul 14, 2025
How long after biochemical failure for positive PSMA PET scan?
Robotic radical prostatectomy April 2015. PSA: .1 Jan. 2023; .44 Nov. 2024 and .5 March 2025 (from a different lab so not sure if this...
Support Group: Prostate Cancer
Last active: Mar 27, 2025
PSA Rise After ADT
I've been posting and following a few months now. I was stage 4a, Gleason 9, Decipher .99. I've had prostatectomy, followed by radiation and ADT...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Choline C11 PET scan: Anyone had it? Is it useful?
Hi, I had a prostatectomy 2006, and salvage radiation 2015, now the PSA is rising again (2023, I'm 74) I've been reading about the Choline...
Support Group: Prostate Cancer
Last active: Jul 5, 2023
Just got my prostatectomy pathology results
It’s been a while since I last posted. I was diagnosed with prostate cancer in April of last year, Gleason 7 (3+4). PSA was 6.8...
Support Group: Prostate Cancer
Last active: Feb 26, 2024
Continued Monitoring or Biopsy?
My PSA has fluctuated all year: January: 8.1 and 7.8 March: 5.4 June: 4.4 September: 7.1 Dec: 6 %Free PSA between 15% and 16.6% First...
Support Group: Prostate Cancer
Last active: Dec 8, 2025
Salvage radiation decision: with or without hormone therapy?
I had a prostatectomy in 2021. PSA was undetectable for 2 years. Then PSA went to 0.1 in 2023, and then 0.2 in 2024. I...
Support Group: Prostate Cancer
Last active: Feb 22 5:36pm
Unusual Treatment Plan?
I was diagnosed in August of 2021 at the age of 59. I had a PSA of 23 and my Gleason was 8 (4+4). PET/PSMA...
Support Group: Prostate Cancer
Last active: Jun 22, 2023
Gleason Grade 2
Age 56, PSA increased from 1.4 to 2.4 to 3.5 last three years. Latest PSA was 3.3 (October 2024). DRE negative. Leison found in MRI...
Support Group: Prostate Cancer
Last active: Apr 24, 2025
active surveillance no longer recommended?
I"m not a Mayo patient. I'm 62 and was just diagnosed with prostate cancer, PSA 4.7, Gleason 3+3. I have no symptoms and am otherwise...
Support Group: Prostate Cancer
Last active: Jun 16, 2024
Just joined, biopsy shows 4+4 (Group 4)
My rising PSA, 5 years after Proton treatment prompted a PSMA/PET scan, followed by biopsy at Johns Hopkins. Biopsy shows 4+4 (Group 4) cancer, Can...
Support Group: Prostate Cancer
Last active: Oct 16, 2025
PSMA PET scan: then what?
I had a prostatectomy in July 2022. The pathology report showed clean margins and no spread to 12 sampled lymph nodes. PSA tests were <...
Support Group: Prostate Cancer
Last active: Sep 13, 2025
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Support Group: Prostate Cancer
Last active: Apr 16, 2025