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Prostate Cancer Support Group

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Discussions (112)
Has anyone experienced leg pain while taking Orgovyx?
I am 77 in good health except for PC, my PSA was 27.4, Gleason score 4+4=8, and decipher score was .84. I am into my...
Support Group: Prostate Cancer
Last active: Mar 28 7:42pm
Trying to decide on treatment for prostate cancer
Being new to prostate cancer and from all my research it has become a hard decision what treatment to start! I have been seen by...
Support Group: Prostate Cancer
Last active: Apr 12 10:36am
Radiation and Blood Cells
In addition to my full metabolic panel, I just received results of my Red and White blood cell counts. Without getting too far into the...
Support Group: Prostate Cancer
Last active: Apr 14, 2025
Doublet Therapy Holiday - Option for Oligorecurrent Prostate Cancer?
My dad was originally diagnosed with Gleason 7 (4+3) prostate cancer in Dec. 2019. After a RP and IMRT over the course of the next...
Support Group: Prostate Cancer
Last active: Oct 13, 2025
A different report: I can stop ADT
Hello; as I scanned the posts for today’s reading I thought it’s a good time to share my status. I just returned from my MO...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
PCRI Conference interesting points made
Grade group, one HIGH volume likely to proceed to treatment. 5-10% of GG1 within 5 years before progression
Within 10 years 51% of Gleason 6 on...
Support Group: Prostate Cancer
Last active: Apr 3, 2025
Please share your salvage radiation experience, especially on VMAT
I posted several weeks ago about my husband's prostate cancer recurrence on one PSMA-Positive lymph node almost 5 years post prostatectomy. After meeting three different...
Support Group: Prostate Cancer
Last active: Apr 1 10:28pm
New Member
Greetings! I've just joined here due to the American Cancer Society's CSN (Cancer Survivors Network) forum has announced they are terminating their website. It was...
Support Group: Prostate Cancer
Last active: Apr 19 4:39pm
Warmth in back? Not hot flashes...I had those, after Lupron shot
I was treated with IMRT from Oct-Dec 2019 for prostate cancer contained within----no spread. Had one Lupron shot (to last 6 months---tho I am aware...
Support Group: Prostate Cancer
Last active: Jul 18, 2020
SHEEESSHHHH - oh well ... : (
I just hate when my worry proves to be "correct" *sigh. We got new uPSA results today and it is 0.05 : (((. PSA rose...
Support Group: Prostate Cancer
Last active: Apr 28 9:20pm
Help finding a study re treatment: EBRT plus ADT vs ADT alone
First visit with RO yesterday re: treatment of my "low volume mCSPC". I came away with two things he stated in the "studies have shown"...
Support Group: Prostate Cancer
Last active: Jul 16, 2025
Radiation after RARP
As you may know from my previous discussions, I am 45yrs old, just had RARP in March, after being diagnosed with stage T3bN1R0, Gleason 9(4+5),...
Support Group: Prostate Cancer
Last active: May 15 7:20am
PC journey
: In July 2024, I was diagnosed with aggressive prostate cancer after experiencing leg pain, weight loss, nocturia, and a PSA of 62. A biopsy...
Support Group: Prostate Cancer
Last active: May 28, 2025
Any advice or shared experiences with SpaceOAR Hydrogel?
Question: My urologist has presented the option of using the Boston Scientific SpaceOAR Hydrogel between my prostate and rectum. It can be injected during the...
Support Group: Prostate Cancer
Last active: Mar 4, 2025
PSA at 6 months after salvage RT—not so good
I underwent salvage RT last year (38 sessions of IMRT, Sept-Nov). My usPSA going into RT was 0.094 but I had a palpable nodule in...
Support Group: Prostate Cancer
Last active: May 23 7:45am
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Support Group: Prostate Cancer
Last active: May 6, 2024
Confusing PSA results: Is it possible side effects could inflate PSA?
I had prostate cancer in 2018. I had brachytherapy and 5 1/2 weeks of IMRT Radiation. My original gleason score was 3+4 and out of...
Support Group: Prostate Cancer
Last active: Jan 18 5:46pm
Is anyone else getting these side effects months after radiation ?
I had 28 sessions of external beam radiation therapy, IMRT, that ended 7 months ago for prostate cancer. I passed on taking Lupron or anything...
Support Group: Prostate Cancer
Last active: Sep 13, 2025
Should I try using TRIMIX while on ADT?
ATTN MODERATOR: I’m aware that there is another post here related to TRIMIX. I’ve gone through it and could not find an answer that applies...
Support Group: Prostate Cancer
Last active: Sep 12, 2025
Is treatment for 88-year old Dad too aggressive for his age?
Hello all. I am learning so much from your posts! They are informative, and heartfelt. This is a compassionate group.I would love to hear your...
Support Group: Prostate Cancer
Last active: Jan 27, 2025