Support Groups

Prostate Cancer Support Group

Public Support Group
2,189 total results
Discussions (166)
Did your doctors get a baseline blood panel before starting treatment?
Is it normal for your urologist (radiation oncologist) to request a full blood panel (CBC) prior to starting treatment with salvage radiation and Orgovyx? I...
Support Group: Prostate Cancer
Last active: Nov 14, 2024
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19 9:41am
Which ADT medication is best?
Which ADT medication is best? My medical oncologist first suggested six months of Lupron, but she was fine with Orgovyx when I mentioned that prostate...
Support Group: Prostate Cancer
Last active: Feb 17 9:27am
Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for...
Support Group: Prostate Cancer
Last active: Jun 14 12:28pm
ADT Recovery: How long for testosterone levels to improve?
I was on Eligard for 6 months prior to and during salvage radiation treatment. Then I was on Orgovyx plus Abiraterone for 12 months. One...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
ADT and Castrate Resistance
Diagnosed Nov 2021. Gleason 9, Decipher .99, stage 4a (spread to seminal vesticles and 1 of 12 lymph nodes tested). I had prostatectomy in January...
Support Group: Prostate Cancer
Last active: 6 days ago
2.5 Yrs After Proton Rad PSA reached 1.05
Hematologist suggested orgovyx and zytyga, been on for 2-months PSA this week < .1, also previous psma/pet showed small lymph node metastasis, was going to...
Support Group: Prostate Cancer
Last active: 1 day ago
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Mar 30 9:34am
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jun 15 10:43am
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11, 2024
Adding a second medicine question
I am told by doctors they would like to add second medicine to Orgovyx which I have been doing ok on for about 2 1/2...
Support Group: Prostate Cancer
Last active: Jun 25 10:13am
Completed EBRT recently, first blood test readings done. Any advice?
I was a Gleason 9 when I began taking Orgovyx in September 2024. Testosterone was 825, PSA 6.0 Had 28 sessions of EBRT which concluded...
Support Group: Prostate Cancer
Last active: May 8 11:23pm
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Jun 20 8:07am
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22, 2024
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
Numbers After SRT/ADT
I just received my post treatment results after SRT with 6 months of Orgovyx. PSA < 0.05. Had been 0.18 before treatment. T = 688....
Support Group: Prostate Cancer
Last active: May 19 9:04pm
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: Apr 6 4:21pm
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12, 2024
Hormone Therapy
I am getting ready to start hormone therapy with orgovyx and have read that it can cause brain fog. Can anyone who has experienced this...
Support Group: Prostate Cancer
Last active: 12 hours ago