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Prostate Cancer Support Group

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2,503 total results
Discussions (191)
Puzzled by drug prices
Firmagon and Orgovyx would cost the same in Canada if I were uninsured (about US$240/month), but it looks like Orgovyx is 5× as expensive as...
Support Group: Prostate Cancer
Last active: Aug 27, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Jun 15 12:44pm
Can low testosterone cause testicular pain?
I started with Eligard , the 3 month injection last year in December 2024. Among the side effects that I noticed was testicular pain. Now...
Support Group: Prostate Cancer
Last active: Jun 30 11:46am
Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for...
Support Group: Prostate Cancer
Last active: Aug 11 2:06pm
Being treated for Gleason 9
I was diagnosed wth Gleason 9 prostate cancer. A petscan and MRI both showed the cancer was localized and had not spread. I know that...
Support Group: Prostate Cancer
Last active: Jul 22 11:42am
Does anyone have experience with Trazodone and prostate cancer?
Does anyone have experience with Trazodone? I searched this site and got 847 results, but none in the Prostate Support group. My Primary Doctor prescribed...
Support Group: Prostate Cancer
Last active: Feb 17 5:39pm
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Jun 23 2:48pm
Dr Mark Scholz/PCRI
Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Did your doctors get a baseline blood panel before starting treatment?
Is it normal for your urologist (radiation oncologist) to request a full blood panel (CBC) prior to starting treatment with salvage radiation and Orgovyx? I...
Support Group: Prostate Cancer
Last active: Nov 14, 2024
Which ADT medication is best?
Which ADT medication is best? My medical oncologist first suggested six months of Lupron, but she was fine with Orgovyx when I mentioned that prostate...
Support Group: Prostate Cancer
Last active: Feb 17 9:27am
ADT Recovery: How long for testosterone levels to improve?
I was on Eligard for 6 months prior to and during salvage radiation treatment. Then I was on Orgovyx plus Abiraterone for 12 months. One...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19 9:41am
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29 6:50am
ADT and Castrate Resistance
Diagnosed Nov 2021. Gleason 9, Decipher .99, stage 4a (spread to seminal vesticles and 1 of 12 lymph nodes tested). I had prostatectomy in January...
Support Group: Prostate Cancer
Last active: Aug 6 3:51pm
Anyone experiencing nausea/vomiting with Abiraterone?
I will be starting Abiraterone and Orgovyx this week. My doctor also prescribed compazine for nausea and vomitting. Reading the List of possible side effects...
Support Group: Prostate Cancer
Last active: May 11, 2024
Has anyone heard of or participated in a trial for Debio 4228-201
They are offering me a trial for this ADT to testosterone blocker it’s a trial for to get the correct dosage for the extended treatment...
Support Group: Prostate Cancer
Last active: Aug 27 12:06pm
ADT and Open Heart surgery
My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within...
Support Group: Prostate Cancer
Last active: Jul 18 9:20am
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jun 15 10:43am
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22, 2024