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Prostate Cancer Support Group

Public Support Group
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Discussions (143)
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: Apr 6 4:21pm
Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)
I wish there was more info. on 'drug holidays' or 'intermittent use of ADT', with or without concurrent or prior surgery or radiation; especially as...
Support Group: Prostate Cancer
Last active: Jan 31 7:10am
Prostate cancer care team
I finished SBRT 5 radiation treatments at UCLA. I want to choose a Medical oncologist in Orange county to manage my Hormone therapy(ORGOVYX). Any of...
Support Group: Prostate Cancer
Last active: Apr 22, 2024
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Just an update...
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come...
Support Group: Prostate Cancer
Last active: Jul 21, 2024
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Mar 15 10:06am
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12, 2024
25 Fractions IMRT PROSTATE RADIATION Completed Yesterday
Iam so happy that I can stay home today! I went 25 times over 5 weeks. I finally "went along" with Oncologists insisting on IMRT....
Support Group: Prostate Cancer
Last active: Jan 26 10:32am
Hypothyroidism: Could this be related to my treatment?
Brief summary :RP 9-21Persistent PSAEligard 12/23SR completed 5/24Switched to Orgovyx + Abiraterone + Prednisone 6-24, coming off treatment in 75 daysHad bloodwork yesterday for cardiologist...
Support Group: Prostate Cancer
Last active: Mar 21 10:11am
Has anyone had to discontinue Zytiga due to side effects?
I’m 7 months into an 18 month treatment with ORGOVYX and Zytiga. Everything has been manageable until the last few weeks when I started to...
Support Group: Prostate Cancer
Last active: Dec 6, 2024
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
New here! 4 months into my cancer journey.....
I have a Gleason score of 8(4+4). My PSA was 4-5 for several years then took off earlier this past spring to 16. PET scan...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
PSA Nadir main deciding factor when one can start on Intermittent ADT?
I have been on orgovyx from April 1st,2024(11months). I had SBRT 5 sessions started on April 8th and finished on April 18th.My PSA on October...
Support Group: Prostate Cancer
Last active: Mar 5 4:19pm
Diagnosis and treatment (proton beam therapy plus hormonal therapy)
Hi. About 4 years ago I was diagnosed with PSA around 6. At the time didn't even know what PSA was. Today my PSA is...
Support Group: Prostate Cancer
Last active: Mar 23 2:50pm
Post-treatment update
It's been a year and two months since I started treatment (Gleason 7 4+3). I had three months of Casodex and Lupron with 5 sessions...
Support Group: Prostate Cancer
Last active: 11 hours ago
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Support Group: Prostate Cancer
Last active: Sep 12, 2024
End of treatment (I hope)
First diagnosed in April 2023 at age 66, after blood work for a routine physical came back with a PSA of 8.2. Urologist re-ran the...
Support Group: Prostate Cancer
Last active: May 5 7:09am
Post treatment: What to expect next? What role does diet play?
I just finished 28 treatments of radiation therapy and have been on Orgovyx for 4 months. My psa will be tested next week by my...
Support Group: Prostate Cancer
Last active: Dec 13, 2024
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20 7:16am