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Prostate Cancer Support Group

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Discussions (206)
Been on Orgovyx for four months. Should I stop taking finasteride?
Diagnosed with prostate cancer via a biopsy August 2024. Six cores were negative, one core Gleason 7, five cores Gleason 9. Negative for perineural invasion....
Support Group: Prostate Cancer
Last active: Feb 3 11:47am
Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?
I am experiencing stomach pain after takingOrgovxy for 10 daysAny suggestions?
Support Group: Prostate Cancer
Last active: Apr 29 12:45pm
T and PSA levels 6 month post SBRT and 1 month post Orgovyx
Prior to any treatment my PSA was 7.8 and my testosterone was 517. After 9 days of Orgovyx my testosterone was 27.17 At six months...
Support Group: Prostate Cancer
Last active: Jul 4, 2024
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Support Group: Prostate Cancer
Last active: Apr 22 9:50am
PSA increase from .01 to .06 Should I be concerned?
Hello All: I am a 79 year old male. Gleason score was 9, prostate removed and I was two years with a of PSA <...
Support Group: Prostate Cancer
Last active: Sep 26 7:01pm
Puzzled by drug prices
Firmagon and Orgovyx would cost the same in Canada if I were uninsured (about US$240/month), but it looks like Orgovyx is 5× as expensive as...
Support Group: Prostate Cancer
Last active: Aug 27, 2024
Who is a good candidate for Intermittent ADT?
Who is a good candidate to take a holiday from ORGOVYX until psa start rising and then go back to taking ORGOVYX again?Is it only...
Support Group: Prostate Cancer
Last active: Jun 15 12:44pm
just diagnosed 2 mos ago Gleason 8 2 lymph nodes
so I was prescribed orgovyx and erleada ..started July 11 with great aplomb in doc's office..3 orgovyx and 4 erleada..however..the side efects have forced me...
Support Group: Prostate Cancer
Last active: Aug 21 2:19am
Can low testosterone cause testicular pain?
I started with Eligard , the 3 month injection last year in December 2024. Among the side effects that I noticed was testicular pain. Now...
Support Group: Prostate Cancer
Last active: Jun 30 11:46am
Being treated for Gleason 9
I was diagnosed wth Gleason 9 prostate cancer. A petscan and MRI both showed the cancer was localized and had not spread. I know that...
Support Group: Prostate Cancer
Last active: Jul 22 11:42am
Does anyone have experience with Trazodone and prostate cancer?
Does anyone have experience with Trazodone? I searched this site and got 847 results, but none in the Prostate Support group. My Primary Doctor prescribed...
Support Group: Prostate Cancer
Last active: Feb 17 5:39pm
Dr Mark Scholz/PCRI
Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Did your doctors get a baseline blood panel before starting treatment?
Is it normal for your urologist (radiation oncologist) to request a full blood panel (CBC) prior to starting treatment with salvage radiation and Orgovyx? I...
Support Group: Prostate Cancer
Last active: Nov 14, 2024
ADT and Castrate Resistance
Diagnosed Nov 2021. Gleason 9, Decipher .99, stage 4a (spread to seminal vesticles and 1 of 12 lymph nodes tested). I had prostatectomy in January...
Support Group: Prostate Cancer
Last active: 5 days ago
Which ADT medication is best?
Which ADT medication is best? My medical oncologist first suggested six months of Lupron, but she was fine with Orgovyx when I mentioned that prostate...
Support Group: Prostate Cancer
Last active: Feb 17 9:27am
ADT Recovery: How long for testosterone levels to improve?
I was on Eligard for 6 months prior to and during salvage radiation treatment. Then I was on Orgovyx plus Abiraterone for 12 months. One...
Support Group: Prostate Cancer
Last active: Oct 18, 2024
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Jun 23 2:48pm
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19 9:41am
Fun with ADT and testosterone
I know I’ve mentioned to people on here that I quit taking Orgovyx. I was on Lupron for seven years and then took Orgovyx for...
Support Group: Prostate Cancer
Last active: Aug 11 2:06pm
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29 6:50am