Support Groups

Prostate Cancer Support Group

Public Support Group
969 total results
Discussions (56)
Hot flushes and the vagus nerve
Has anyone had any luck using vagal maneuvers to manage hot flushes while on ADT? https://en.wikipedia.org/wiki/Vagal_maneuver The huge vagus nerve is involved when people go...
Support Group: Prostate Cancer
Last active: Sep 24, 2024
Relugolix and Sleep
Hello All: I have been on this drug for over two months. Tests indicated I went from a .93 PSA to a PSA of <...
Support Group: Prostate Cancer
Last active: Jul 14, 2024
Orgovyx done. What to expect?
I have been off Orgovyx for 7 days. Having increased number of hot flashes and still having leg pain at night. Libido still gone. Anyone...
Support Group: Prostate Cancer
Last active: Oct 25, 2024
Side effects three days post prostate radiation ?
Just finish 35 rad. treatment for raising PSA. I'm also about two month into lupron therapy. Have had the hot flashes, joint pain, diarrhea but...
Support Group: Prostate Cancer
Last active: 3 days ago
Any diet restrictions with radiation? What were your side effects?
Starting 40 treatments mapping appointment next Monday.. just curious what diet restrictions and other requirements are typical? Currently on 2nd month ADT some mild fatigue...
Support Group: Prostate Cancer
Last active: Dec 6, 2024
Recovery from Orgovyx?
I took orgovyx for about 1 year. Had 28 IBRT treatments for Gleason 6-7 prostate cancer. While on orgovyx my PSA was undetectable. I have...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Starting Orgovyx - how long for side effects to occur?
I've been taking Orgovyx for about 3 weeks and so far have zero side effects: no hot flashes, no fatigue or tiredness, no weight gain,...
Support Group: Prostate Cancer
Last active: Mar 10 9:53am
After Lupron Depot, which med?
I've been given Lupron depot at a 12-week dosage (22.5mg, into the butt), but still have significant side effects of over a dozen hot flashes...
Support Group: Prostate Cancer
Last active: Feb 11 7:50pm
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Support Group: Prostate Cancer
Last active: Aug 3, 2021
Orgovyx Holiday
So, I just finished 12 months of Orgovyx and as of today, I begin a Holiday. Of course, how long that lasts depends on when...
Support Group: Prostate Cancer
Last active: Jan 1 12:29pm
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: Mar 21 8:18am
Is PSA rise inevitable after hormone therapy?
In 2024 I had a prostatectomy & PSA rose, am a Gleason 9, stage 4. PSMA detected lung nodules (only area) that disappeared after Eligard...
Support Group: Prostate Cancer
Last active: 3 days ago
Prostate cancer treated with Leuprolide
I had 43 days of prostate cancer radiation about 5-6 years ago. My PSA becgan to rise in summer of 2014. Suddenly it went from...
Support Group: Prostate Cancer
Last active: Dec 1, 2022
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Support Group: Prostate Cancer
Last active: Oct 6, 2024
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Support Group: Prostate Cancer
Last active: 2 days ago
Does anyone have experience with Trazodone and prostate cancer?
Does anyone have experience with Trazodone? I searched this site and got 847 results, but none in the Prostate Support group. My Primary Doctor prescribed...
Support Group: Prostate Cancer
Last active: Feb 17 5:39pm
Disability for cancer treatment side effects
My 50 year old husband has aggressive Gleason 9 prostate cancer, staged at IIIB, with lymph node involvement. After prostate removal and 10 weeks of...
Support Group: Prostate Cancer
Last active: Dec 21, 2023
Eligard: What symptoms can I expect?
Good morning folks. I had prostate cancer 23 years ago and had it removed. PSA was zero for about 6 years, then started going up....
Support Group: Prostate Cancer
Last active: Sep 7, 2024
Side effects after stopping Eligard
I have stage 4, advanced, aggressive, Gleason 9, Grade 5 Prostate Cancer. One year ago, I went through radiation and started hormonal therapy, which brought...
Support Group: Prostate Cancer
Last active: Jul 6, 2024
Shortest term of ADT needed for G9, non metastatic PCA?
I’m 69 and been on Orgovyx and Zytiga for 5 weeks; and started my 40 radiation treatments a week ago. My side effects so far...
Support Group: Prostate Cancer
Last active: Jul 25, 2024