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Prostate Cancer Support Group

Public Support Group
672 total results
Discussions (115)
Recent PSMA PET does not detect cancer, what’s next?
I had a prostatectomy in May of 2016. Gleason of 7 = 4+3, psa of 10.5 . First post op psa was .01 and remained...
Support Group: Prostate Cancer
Last active: 5 days ago
PSA levels started to rise again but negative PSMA PET
After radical prostatectomy my PSA levels started to rise. At PSA 0.5 I had a PSMA PET CT which showed no radiotacer-avid disease. At PSA...
Support Group: Prostate Cancer
Last active: Mar 24 8:47am
Do you have urinary incontinence after prostatectomy & radiation?
Hello, I underwent a prostatectomy in Sep 2017. Gleason score of 9 with a positive margin. 8 months later began radiation tx with rising PSA....
Support Group: Prostate Cancer
Last active: Jun 6, 2024
Help-what treatment plan has anyone selected for Perineural invasion?
Age 74, diagnosed December 2024 with Gleason 4+4=8. PSA 2.001 June 2024, PSA 2.28 4K Score September 2024. October 2024, Prostate MRI PIRADS 4 High...
Support Group: Prostate Cancer
Last active: Apr 4 6:06am
Negative findings on PSMA scan
Had prostatectomy in 2006 . Because my PSA was 5.53. Gleason 3+4=7. Had 39 radiation treatments to my prostate bed in 2013 for recurrence. Now...
Support Group: Prostate Cancer
Last active: Feb 29, 2024
Worried about recurrence years after radical retropubic prostatectomy
I had RRP in 2008 at Johns Hopkins by Dr. Partin. I was 42. My post-op was Gleason 6 totally contained with no adverse pathological...
Support Group: Prostate Cancer
Last active: Jan 23 7:45am
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Support Group: Prostate Cancer
Last active: Apr 16 11:29am
Overwhelming fear after undetectable to slightly detectable psa
My husband had a prostatectomy in June 2022. Gleason 3+4 (less than 5% 4) organ confined disease. His pre-op PSA was 7. Last week he...
Support Group: Prostate Cancer
Last active: Jan 18, 2024
TAV after post surgery PSA test
My Urologist-Surgeon has ordered a PSA test to be completed 2 months after a robot assisted radical prostatectomy. I am currently 18 days post surgery....
Support Group: Prostate Cancer
Last active: Jun 20, 2023
Anyone had prostatectomy after hormone treatment and chemo?
Has anyone had there prostrate surgically removed after hormone treatment and six sessions of chemotherapy. After all the above PSA is non detectable. Also have...
Support Group: Prostate Cancer
Last active: May 30, 2024
Gleason Grade 2
Age 56, PSA increased from 1.4 to 2.4 to 3.5 last three years. Latest PSA was 3.3 (October 2024). DRE negative. Leison found in MRI...
Support Group: Prostate Cancer
Last active: 5 days ago
Radical prostatectomy vs external Beam and Seeds for Inter. risk PC
I am weighing my options of radical prostatectomy vs external beam radiation and Brachytherapy/Seed Implantation. I have T2A tumor with six out of 12 cores...
Support Group: Prostate Cancer
Last active: Aug 30, 2023
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Support Group: Prostate Cancer
Last active: Mar 16 3:28pm
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
How do you prevent testosterone levels from going up again?
My husband is taking Lupron shots every3 months to control his Psa. He had prostatectomy 4 years ago. Psa began elevated last year. My question...
Support Group: Prostate Cancer
Last active: Nov 28, 2022
Recurrent prostate cancer: It's come back
In 2012 I had a positive Biopsy for prostate cancer. Initial Gleason score of 3+3. Chronology is as follows (w/Chart): *Dec 2012 - Brachytherapy PSA...
Support Group: Prostate Cancer
Last active: Jan 31, 2023
Has anybody had testosterone shots after hormone therapy?
HAD PROSTATECTOMY (GLEASON SCORE 9) 11YEARS AGO. 2 YEARS LATER HAD 45 DAYS OF RADIATION PLUS 2 HORMONE SHOTS..THIS LEFT ME WITH A PERFECT PSA...
Support Group: Prostate Cancer
Last active: Mar 9, 2020
Anyone had salvage radiation treatment followed by Xofigo for mets?
My husband has had a prostatectomy and is taking Nubeqa and Orgovyx, but PSA is on the rise and Dr. has recommended salvage radiation to...
Support Group: Prostate Cancer
Last active: Nov 23, 2024
How long after biochemical failure for positive PSMA PET scan?
Robotic radical prostatectomy April 2015. PSA: .1 Jan. 2023; .44 Nov. 2024 and .5 March 2025 (from a different lab so not sure if this...
Support Group: Prostate Cancer
Last active: Mar 27 12:28pm
Radical prostatectomy completed today.
My screenings before were 4+4 and 15 PSA. Removed prostate ( local malignant) and benign limp nodes. No damage to nerves. Catheter is a bit...
Support Group: Prostate Cancer
Last active: Jan 9 8:47am