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Prostate Cancer Support Group

Public Support Group
617 total results
Discussions (47)
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12 3:04pm
Urologist only offers Degarelix or Eligard, so what....
Urologist only offers Degarelix or Eligard, so what am I missing that she's convinced these injectables are the only way to go for recurrent PC...
Support Group: Prostate Cancer
Last active: Apr 14 2:14pm
3 Month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8...
Support Group: Prostate Cancer
Last active: Apr 14 8:01am
Penile Numbness after Prostate Cancer treatment: What can be done?
I had prostate cancer. I went through 18 weeks of radiation. Afterward I was placed on orgovyx. I am still able to have an erection...
Support Group: Prostate Cancer
Last active: Apr 7 7:01am
Using supplements post treatment
I just completed 3 months adt on orgovyx and 36 ebrt treatments. My last tes was 42 and my psa dropped fm .28 to undetectable...
Support Group: Prostate Cancer
Last active: Nov 8, 2021
I want to learn more about ADT
I am an 83-year-old male who is in good health and had a radical prostatectomy on 9/22/2009. I had salvage radiation on 1/15/2012 and I'm...
Support Group: Prostate Cancer
Last active: Apr 20 1:10pm
Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I...
Support Group: Prostate Cancer
Last active: Jan 18 5:00pm
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Support Group: Prostate Cancer
Last active: Apr 3 3:42pm
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
Support Group: Prostate Cancer
Last active: Feb 3 10:00am
can I survive PC (Gleason score 7) with just external beam radiation?
I was diagnosed with PC in Jan of this year. it appears from my biopsy that i am in a high-risk category and my urologist...
Support Group: Prostate Cancer
Last active: Jun 19, 2023
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
Support Group: Prostate Cancer
Last active: 18 hours ago
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Support Group: Prostate Cancer
Last active: Jul 3, 2023
Decipher Results are in... ADT recommendations?
Decipher test results just in and unfortunately I'm in the high-risk range for metastasis at .69. Awaiting discussion with RO. Anxious to find out if...
Support Group: Prostate Cancer
Last active: Jun 26, 2023
Metacure trial not successful for me
My oncologist informed me this week that the Metacure trial for oligometastatic PC that I was participating had failed for me and that I would...
Support Group: Prostate Cancer
Last active: Mar 17 8:06am
Can we talk about boobs please? Man Boobs. ADT induced gynecomastia.
I ended a 24 weeks of ADT (Orgovyx and Erleada) on Aug.28 2023. About 12 weeks into the treatment I had lost about 70% of...
Support Group: Prostate Cancer
Last active: Apr 7 12:49pm
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Support Group: Prostate Cancer
Last active: May 6 11:27am
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with...
Support Group: Prostate Cancer
Last active: Jan 2 1:57pm
Just finished the Metacure Trial
One week ago today I finish up with the 6 month Metacure trial. It was for men with aggressive Prostate cancer that had metastasis to...
Support Group: Prostate Cancer
Last active: Sep 4, 2023
Day 8 post SBRT
For those Brothers currently doing, or are going to do SBRT here is an update. I will likely do a weekly (or there abouts) update....
Support Group: Prostate Cancer
Last active: Jan 9 11:33am
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Apr 9 7:57am