Support Groups

Prostate Cancer Support Group

Lock icon Public Support Group
Clear Search
697 total results
Discussions (43)
T3b Prostate Cancer with Seminal Vesicle Invasion
I was wondering if anyone had the diagnosis of T3b Stage PCa and had a Prostectomy where Seminal Vesicle Invasion was found. What was the...
Support Group: Prostate Cancer
Last active: Sep 15, 2025
Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
Hello. Just wondering if anyone has a long-ish term experience with either the sling or AUS. I had a partial nerve sparing prostatectomy in 2018....
Support Group: Prostate Cancer
Last active: Feb 26 12:56pm
Does Flomax help even without a prostate?
I had around 39(?) radiation treatments last year for a BCR. I've already had an RP in 2013, but after last year's radiation treatments, it's...
Support Group: Prostate Cancer
Last active: Oct 25, 2023
Interesting Table of Numbers Post Proton Beam Treatment
Unlike surgery with well defined parameters for BCR, radiation seems to have quite a bit of variability. The photo is from Ron Nelson's book, 10...
Support Group: Prostate Cancer
Last active: Dec 8, 2024
Biochemical Recurrence After Prostatectomy
https://www.nature.com/articles/s41391-022-00638-y I came across this article from U of Cal, San Francisco published this year. While I have not done a deep dive into it,...
Support Group: Prostate Cancer
Last active: Oct 30, 2024
First detectable uPSA since surgery 14mos ago
After a few Labcorp tests of < 0.006 since surgery in Nov 2023, I finally got the dreaded detectable value at my most recent test…....
Support Group: Prostate Cancer
Last active: Feb 4, 2025
Diagnosed At 60 - Radiation Thoughts?
I was recently diagnosed at age 60……3 out of 13 cores all in and around what was classified as a pirad 4 lesion. (3+3), (3+3)...
Support Group: Prostate Cancer
Last active: Mar 6 8:21am
Are castration sensitive prostate cancer patients being over treated?
Ancan.Org had a meeting with doctors from the National Cancer Institute to discuss over treatment of patients that had BCR (biochemically, recurrent prostate cancer). They...
Support Group: Prostate Cancer
Last active: Feb 7 10:53am
Concerned procrastinating will affect future prognosis
After RP April 2019 Gleason 9 negative margins pt3a lymph nodes clear, BCR aug 2022 confirmed pet positive lymph node (SUV 1.9) PSA 0.22 was...
Support Group: Prostate Cancer
Last active: Jun 23, 2023
Gleason 9 SO wants me to stop ADT @6 Mos for look see
My SO wants to stop ADT after 6 months and wait 2 months then test to see if PSA rises? Does this make sense? Just...
Support Group: Prostate Cancer
Last active: Nov 10, 2025
PSMA PET scan found cancer in rib and #3 vertebrae. Any experience?
I recently had my 2nd BCR after 11 years post Prostatectomy from Gleason 9 in 2013 when I was 53. Had 1st BCR Nov 21,...
Support Group: Prostate Cancer
Last active: Nov 7, 2025
Urine leakage during sexual activity
I had RP in March 2022, BCR in Sept 2022 and 28 SBRT treatments in Jan-Feb 2023 with ADT. Now that the ADT has left...
Support Group: Prostate Cancer
Last active: Aug 17, 2023
Lupron and Zytiga side effects
In July we learned my husband has BCR 1 year post prostatectomy. Imaging confirmed 2 small tumors in the prostate bed. We're so surprised given...
Support Group: Prostate Cancer
Last active: Dec 22, 2025
Frequency of PSA Test
I just had my two year-post RP PSA test, and it continues to show undetectible. This is especially good news because I am high risk-...
Support Group: Prostate Cancer
Last active: Jan 18 7:24am
Worried about recurrence years after radical retropubic prostatectomy
I had RRP in 2008 at Johns Hopkins by Dr. Partin. I was 42. My post-op was Gleason 6 totally contained with no adverse pathological...
Support Group: Prostate Cancer
Last active: Jan 23, 2025
Information on limiting ADT
Anyone wishing to get a better handle on whether and when (if ever) he should use ADT, I suggest considering enrolling this clinical trial.NCT05588128 It's...
Support Group: Prostate Cancer
Last active: Aug 23, 2025
Timing of ADT + Zytiga - Anyone else start them at different times?
I have locally advanced disease (+ pelvic nodes). My treatment is based on the intensification experiment in one of the arms of the STAMPEDE trial...
Support Group: Prostate Cancer
Last active: Feb 12, 2024
first PSA result post salvage RT — 0.086
Late last year I underwent 38 sessions of salvage IMRT for a local recurrence. At the start of radiation treatments, my PSA was 0.094 (ultra...
Support Group: Prostate Cancer
Last active: Feb 15 6:22pm
Pathology report - bahhhhh :/
Ok - here we go, of course it can not be simple with us - ever !!! Sheeeeshhh ... I mean there is nothing simple...
Support Group: Prostate Cancer
Last active: Aug 25, 2025
Just got my prostatectomy pathology results
It’s been a while since I last posted. I was diagnosed with prostate cancer in April of last year, Gleason 7 (3+4). PSA was 6.8...
Support Group: Prostate Cancer
Last active: Feb 26, 2024