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Discussions (470)
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Treatment Decision - Radical Prostatectomy versus Radiation Therapy
Recently diagnosed and now stuck in that frustrating "no man's land" between surgery and radiation therapy. Diagnosed after an increase in my PSA to 5.2...
PSA never reaching undetectable
My partner was diagnosed with PSA 92, stage 3a in Nov 2023. Started Orgovyx March of 2024, did 40 sessions of radiation, finishing in June...
Is your Oncologist an positive cheerleader or more negative?
I have had denovo metastatic high volume prostate cancer to the bone for 3 years now. No matter how good my results are my oncologist...
Went in T2a, came out T3a — anyone else blindsided by post-op path?
Greetings all. Long-time reader, first-time poster. I had my RALP nine days ago. Headed into surgery feeling cautiously optimistic: PSA of 6.0, clean PSMA PET...
Naturally low testosterone and still aggressive tumor?
I have had naturally low testosterone rates all my life. If it’s true that prostate cancer “feeds” on testosterone, and that testosterone is naturally low,...
Gene variants: Anyone dealt with ATR and HSD381 with any success?
I had a comprehensive Germline panel done before my RP in January of 23 . Unfortunately I had two variants ATR which it seems no...
How to interpret PSA
A little background. GS 8, stage pT3b. RP in September 21, SRT in Spring of 2024. 18 months ADT including 12 months of Abiraterone ending...
"Sexual Problems" Top Concern After Prostate Cancer Treatment
A UK study of 650 men (ages 50 and up, diverse ethnicities and sexual orientations) found "sexual problems" the top concern after prostate cancer treatment....
Choice: 28 full-intensity or 39 lower-intensity radiation sessions?
I’m coming up soon to the beginning of my radiation for my PC. I have started ADT already so this is next. My radiologist said...
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
‘Big Guns’ - Triple Therapy with Double Chemo - How to prepare?
About to start treatment for what our medical team feels is a ‘sneaky’ metastasis due to low PSA + lung mets only situation. PSA 0.36...
Recent PSMA PET does not detect cancer, what’s next?
I had a prostatectomy in May of 2016. Gleason of 7 = 4+3, psa of 10.5 . First post op psa was .01 and remained...
Surgery or Radiation for Intermediate Prostate Cancer?
I was diagnosed with low-grade and low-volume cancer in 2018, and placed on surveillance. 6/24/2024: Prostate biopsy after MRI Now with third biopsy, cancer is...
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
The hypochondria cycle
This happened to me today briefly with my left collarbone — I convinced myself that it was sticking out slightly further than my right collarbone:...
Newby in PNW Favorable vs Unfavorable Intermediate
66 year old - healthy & active. PSA 5.03 (9/23) then 7.48 (9/24). MRI: T2 with extracapsular extension. Biopsy: Gleason 3+4/7, Cribriform aprox. 40% of...
Lost in Translation
“Lost in Translation: Or, How ADT and the English Language Became Co-Conspirators in My Public Humiliation” by Hans Casteels, reluctant polyglot and hormonal hostage I...
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
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