Connect
Public Support Group 8,317 total results
Discussions (470)
Recurrence after brachytherapy - looking for the best option
Looks like prostate cancer recurrence is now suspected but not yet confirmed. My original diagnosis - G7 4+3 PSA7.6 in May 2019. Treated with low...
Radiation therapy
Hello everyone I hope you are doing well, I have a question regarding radiation therapy, it has been 10 months since my diagnosis and seven...
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
Hot flushes and the vagus nerve
Has anyone had any luck using vagal maneuvers to manage hot flushes while on ADT? https://en.wikipedia.org/wiki/Vagal_maneuver The huge vagus nerve is involved when people go...
Salvage radiation aftermath
Can anyone share their experience with salvage radiation/ADT after what was told to me as a very successful DaVinci surgery? I’m a 71 year old....
Newly diagnosed with Advanced PC
Well, maybe not newly. Back in Spring. Found in checkup and PSA tests. It was in places I wish it were not, and would be...
Calcium and Vitamin D for bone strength
Today my RO told me I should be taking calcium and Vitamin D now that I am on ADT, and he recommended OS-Cal. Problem is...
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Exercise as Medicine: P.C.R.I. Q&A with Rob Newton
Rob Newton's most recent explanation of his research. I can't understand why most doctors pretend that exercise isn't something they should be prescribing for their...
What PSA to expect 2-3 months after ending Radiation?
I had 23 sessions of IMRT and 2 sessions of SBRT boost while still being on ADT. I will have my PSA checked in a...
Ablation Therapy - Does It Lead To Metastases?
In trying to research ablation therapies such as TULSA-PRO, at least one source suggests that ablation leads to circulating tumor cells, which tend to establish...
Orgovyx and zytiga side effects
I’m a 69 year old, who finished IMRT 5 weeks go and I’ve been on these ADT medications for 4 months now. This last week...
How long do the side effects of Lupron/Eligard last?
This Monday I am getting my number 3 and last injection of 6 month duration Eligard/Lupron. This is after 39 Proton Beam sessions which began...
Oligo metastatic PC detected
Detected oligo metastatic ( low volume) prostate cancer on 11/08/25. Gleason score 8. PSMA PET shows Meta sized to Left testicle, left acetabulum , para...
Can a short term of taking Orgovyx cause leg pain and weight gain?
I have been on ADT Orgovyx just for four months and half but did not gain any weight while I was on the drug nor...
Rising anxiety: my two doctors don't agree
I may have posted this before, but today my anxiety level is rising, and I have no idea how to decide. My two doctors (urologist...
Brachytherapy AFTER failed radiation?
That's what my oncologist wants to try. Has anyone heard of this strategy? 5 years ago: PSA of 28, Gleason 9, radiation + 3 years...
One year past prostatectomy, in waiting mode.
A year ago I had my prostatectomy- Gleason 8, age 71. Path report indicated ECE, but surgeon removed lymph nodes, seminal vesicles and bundled nerves....
PET Scan Results in
IMHO, this is the best news possible! I haven't talked to my Doc yet, but to me, it sounds good. Results Impression 1. Intense PSMA...
Newly dx ….. starting down the path to treatment
Well here I am….74 years old and fairly healthy Discovered PC, limited to prostate and one gland… Starting ADT this week and meeting with RO...
Connect