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Prostate Cancer Support Group

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Discussions (375)
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Feb 13 8:09am
How does the treatment team come together?
I have submitted my reports scan etc to Mayo clinical team in Jax. I’m waiting to hear back from them. Will they review everything and...
Support Group: Prostate Cancer
Last active: Feb 24 3:16pm
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20 8:24am
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Newby in PNW Favorable vs Unfavorable Intermediate
66 year old - healthy & active. PSA 5.03 (9/23) then 7.48 (9/24). MRI: T2 with extracapsular extension. Biopsy: Gleason 3+4/7, Cribriform aprox. 40% of...
Support Group: Prostate Cancer
Last active: Mar 11 8:41am
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25 11:58am
How accurate are the PSA Tests?
I posted earlier that after 2+ years post surgery, my PSA had been undetectable < .006 on all my tests. Then my test 2 weeks...
Support Group: Prostate Cancer
Last active: Sep 27, 2023
MRI-linac question about BCR
I am aware of the mirage trial and the decreased side effect profile with sbrt mri-linac. I am wondering what are the numbers for biochemical...
Support Group: Prostate Cancer
Last active: May 25 7:45am
BCR after 5 years Prostatectomy now questions about SRT
This forum has been very helpful. I just discovered I have BCR after 5 years no levels of PSA tests. Had the Prostatectomy with little...
Support Group: Prostate Cancer
Last active: May 27 9:20am
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
Lupron and Medicare Part D
Hello Hopefully someone can steer me to an archived thread, or to some other resources. I'm 64 and 4 months old, so I'm starting to...
Support Group: Prostate Cancer
Last active: Jul 18, 2024
ED after prostatectomy? Any first hand experiences overcoming it?
I originally had brachytherapy in 2020. I chose that so I could continue my active sex life with my wife. The cancer responded favorably and...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: Aug 17 10:14am
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29 4:46pm
Newly diagnosed and looking for treatment advice.
Hi, everyone. I’m 66 years old and am newly diagnosed with prostate cancer. I currently have no continence or erectile dysfunction, I take no medications,...
Support Group: Prostate Cancer
Last active: Oct 11 12:12pm
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Support Group: Prostate Cancer
Last active: Feb 17 4:00pm
Typical Treatment Option Question
My recent biopsy revealed Gleason 9. No lymph node involvement or bone. CT scan was clear for chest, abdomen, and pelvis. No PSMA done. There...
Support Group: Prostate Cancer
Last active: Feb 17 11:22am
How long do the side effects of Lupron/Eligard last?
This Monday I am getting my number 3 and last injection of 6 month duration Eligard/Lupron. This is after 39 Proton Beam sessions which began...
Support Group: Prostate Cancer
Last active: Jul 3 9:21am
Why is volume of the cancer not used?
Compare two situations: * One has a 3+4 lesion at 2.1 cc of total volume, the 4 at 49% and the 3 at 51%. So...
Support Group: Prostate Cancer
Last active: Sep 22, 2023
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
Support Group: Prostate Cancer
Last active: Feb 13 6:08am