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Prostate Cancer Support Group

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Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help If so he...
Support Group: Prostate Cancer
Last active: Jul 22, 2025
Test results after 6 weeks of Eligard
Just got some blood test results after being on Eligard for 6 weeks. Do the numbers sound good for this stage? Testosterone = 5.7 ng/dL...
Support Group: Prostate Cancer
Last active: Apr 26, 2025
Gleason 6 But high decipher score.
Treatment suggestions for newly diagnosed 69-year-old Gleason 6 In 2 out of 15 Biopsy samples. Both malignant samples were in a small nodule. Had high...
Support Group: Prostate Cancer
Last active: Dec 13, 2024
Lab result differences
File this under Good to Know (and WTH!).... I had labs for PSA and Testosterone done recently - results came back as follows: PSA =...
Support Group: Prostate Cancer
Last active: Oct 7, 2025
Urinary Retention after Biopsy and continuing
Was diagnosed with Geason Score 8 Regional spread to 1 lymph node and 1 seminal vessel, coupled with Enlarged Prostate. Needed a Foley catheter ever...
Support Group: Prostate Cancer
Last active: Jul 15, 2023
Anyone else on Megace (Megestrol)?
I guess I'm just cranky and hard to please. I'm on ADT, so the Megace is to stop the hot flashes. It's working. But the...
Support Group: Prostate Cancer
Last active: Feb 22, 2025
IMRT (Intensity-Modulated Radiation Therapy)
I haven’t read much about IMRT (Intensity-Modulated Radiation Therapy). In 1-2020, I was diagnosed with pc. Gleason score 7 (3+4) and psa of 8.7. Had...
Support Group: Prostate Cancer
Last active: Oct 15, 2020
How could they get my diagnosis so wrong.
August 8, 2022 diagnosed with Stage 4 metastatic PC. GS 8, Cancer spread to lymph nodes, seminal veseciles, and bone. After 8 months of ADT...
Support Group: Prostate Cancer
Last active: Sep 20, 2023
Intermediate-Risk: Do You Need Hormone Therapy With Radiation + 80yrs.
Just been watching an interview on You Tube with Dr Mark Scholz of the Prostate Cancer Research Group ( LA ) where he questions the...
Support Group: Prostate Cancer
Last active: Jan 6, 2025
T3b L1 Gleason 9 Question
So newly diagnosed as a Gleason 9, and one of the lymph nodes they took out during my RALP tested positive as well. ADT and...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
Prunes and Bone Density
Sharing information for those of you on ADT and concerned about bone density and maybe are not aware of the 'prune study' in 2022. The...
Support Group: Prostate Cancer
Last active: Oct 1, 2025
Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches
Does anyone have experience with these two drugs? My partner was recently prescribed Zytiga along with Orgovyx plus a 7 week radiation treatment. I have...
Support Group: Prostate Cancer
Last active: Jan 16 9:57pm
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8, 2025
A PSA question
I started Eligard in March this year (2025). PSA dropped from 10 to 0.6 a month later. Then in May it crept up to 0.7....
Support Group: Prostate Cancer
Last active: Jul 31, 2025
After Lupron Depot, which med?
I've been given Lupron depot at a 12-week dosage (22.5mg, into the butt), but still have significant side effects of over a dozen hot flashes...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
Support Group: Prostate Cancer
Last active: Feb 24 2:16pm
Should PSA Super Dive Warrant Updated Imaging?
My PSA back on October 16, 2025 was 24.6. MRI/PET/CT scans were done in September 2025. I've been on ADT since November, roughly 2.5 months...
Support Group: Prostate Cancer
Last active: Jan 17 11:59am
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
Support Group: Prostate Cancer
Last active: May 8, 2025
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20, 2025
Recurrence after brachytherapy - looking for the best option
Looks like prostate cancer recurrence is now suspected but not yet confirmed. My original diagnosis - G7 4+3 PSA7.6 in May 2019. Treated with low...
Support Group: Prostate Cancer
Last active: May 6, 2025