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Discussions (324)
Post SBRT and ADT PSA Results
Quick update here, had labs today, see RO Wednesday. At diagnosis about a year ago, 68 year old, PSA 7.4, one 4+3, one 3+3, Decipher...
Recurrent Cancer - conflict with numbers and scans
Quick Background: I had a RP completed in September 2016. Undetectable PSA 2 years after, but started creeping up. Made a 2x jump in mid...
Human Chorionic Gonadotropin (hCG) alternative to T supplement
"HCG" treatment for testosterone refers to Human Chorionic Gonadotropin (hCG), a hormone used to stimulate the body's own testosterone and sperm production.I had an interesting...
3 negative PSMA PET scans with PSA doubling every 4 weeks
https://connect.mayoclinic.org/discussion/3-negative-psma-pet-scans-with-psa-doubling-every-4-weeks/
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
New Member
Greetings! I've just joined here due to the American Cancer Society's CSN (Cancer Survivors Network) forum has announced they are terminating their website. It was...
Rising PSA post RARP + new pet scan results
I’m new here and I have greatly appreciated everyone’s input. My husband’s PSA has been rapidly rising since his RARP in early June. We knew...
Osteopenia Supplements that work?
I had my first-ever bone density scan today, now at nine months on Orgovyx and after 44 weekday radiation treatments February-April. The evaluation indicates Osteopenia,...
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
What is the thought process for this?
I'm one year post-Orgovyx and 18 months post SBRT radiation. My testosterone is 220 and has been dropping instead of climbing with my doctor thinking...
Deciding about 2-year ARPI (Xtandi) being added to lupron treatment
Seeing my oncologist today for the 6-month lupron injection. Radiation is scheduled for late October. The doctor says he recommends the ARPI because my recurrence...
Any other methods Better than PSA to monitor prostate cancer?
I've attached my PSA scores since they started saving in EPIC in 2000. While you can seen a marked increase around 2017, my Family Medicine...
Post-treatment testosterone
I was G7 (4+3) and treated two years ago with five sessions of SBRT, two months of doublet therapy and then four months of Orgovyx...
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
New to all of it
Husband (D) 75yrs, active, good health, chronic conditions under control (he is the star patient with all of his doctors). Here we go: 3/2025 PSA:...
First Session of Radiation Called Off While on Radiation Table
Hello, My husband has Gleason 9, cribriform prostate cancer, with PTEN-loss, which appears contained in the prostate based on scans. The cancer is diffused with...
Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches
Does anyone have experience with these two drugs? My partner was recently prescribed Zytiga along with Orgovyx plus a 7 week radiation treatment. I have...
3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?
Hi everyone, Thank you for all the valuable information. My husband has been staged as 3c because of the aggressive, cribriform patterned cells found in...
Should I try using TRIMIX while on ADT?
ATTN MODERATOR: I’m aware that there is another post here related to TRIMIX. I’ve gone through it and could not find an answer that applies...
Treatment options for locally advanced prostate cancer?
I have recently been diagnosed with locally advanced prostate cancer in December 2023. I had an MRI that diagnosed my PC with a Gleason 9...
Guidance to help with ADT decision.
My dad is looking to me to help him understand treatment risks/tradeoffs. After reading posts, blogs, and studies, I am now looking for advice on...
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