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Prostate Cancer Support Group

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Discussions (311)
Difficulty In Deciding on IMRT or Proton Therapy
Hey all glad to find this postings and be in the group. Very helpful and comforting! I'm a 64 years old. Just diagnosed with prostate...
Support Group: Prostate Cancer
Last active: Feb 22, 2025
Recovery from Orgovyx?
I took orgovyx for about 1 year. Had 28 IBRT treatments for Gleason 6-7 prostate cancer. While on orgovyx my PSA was undetectable. I have...
Support Group: Prostate Cancer
Last active: Mar 1 12:08pm
Has anyone had the PMSA PET/CT Pylarify scan?
I had a rising PSA (up to 5.7) which lead to MRi which showed a RAD 4 and a RAD 3, subsequent trans perrineal biopsy...
Support Group: Prostate Cancer
Last active: Apr 14, 2023
Prostate Cancer: The waiting to get going on treatment is killing me
I just received the diagnosis of prostate cancer from my urologist on March 25. PSA 4 months ago was 5 and gland felt normal. Then...
Support Group: Prostate Cancer
Last active: Nov 12, 2025
Looking for Recommendations for a Urologist Second Opinion
I was recently diagnosed with Gleason 4+3=7 prostate cancer, with "potential" extracapsular extension (ECE) with a PSA of approximately 3 and I'm 63 years of...
Support Group: Prostate Cancer
Last active: Sep 16, 2025
Prostate Biopsy Complication
Diagnosed in October 2023 with low volume Gleason 3+4, decipher 0.22. Post biopsy PSA’s have average 6.2, compared to 7.8 prebiopsy. My 12 month mpMRI...
Support Group: Prostate Cancer
Last active: Aug 9, 2025
Biochemical Recurrence: Questions about PSMA PET scan & radiation
After robotic RP in April 2019 PSA pre op 7.5 Gleason (4+5) pT3a evidence of perineural invasion , clear margins no additional treatment after RP...
Support Group: Prostate Cancer
Last active: Dec 26, 2022
New Member of the Brotherhood
Greetings All. I've been following this group since early October when my GP referred me to Urology for an MRI after receiving the results of...
Support Group: Prostate Cancer
Last active: Dec 16, 2024
Second opinion given my diagnostic?
Hello, I have been going through the topics in this forum for a few weeks now and have found very useful and supportive information. During...
Support Group: Prostate Cancer
Last active: Aug 21, 2025
Unusual Treatment Plan?
I was diagnosed in August of 2021 at the age of 59. I had a PSA of 23 and my Gleason was 8 (4+4). PET/PSMA...
Support Group: Prostate Cancer
Last active: Jun 22, 2023
pT3b - what were your radiation outcomes after radical prostatectomy?
I would like to read comments from anyone who was categorized a pT3b after radical prostatectomy (RP), and had radiation after their PSA started to...
Support Group: Prostate Cancer
Last active: Aug 11, 2025
Did Decipher GRID report help guide your treatment decisions?
I'm 67 years old with a prebiopsy PSA of 7.8, three mpMRI PIRADS lesions of 3, 4, & 5 and my MRI fusion biopsy found...
Support Group: Prostate Cancer
Last active: Jun 6, 2025
Rising PSA years after radical prostatectomy
I am 60 years and I had radical prostatectomy on 23rd Nov 2018. I was told out of the 15 lymph nodes taken only one...
Support Group: Prostate Cancer
Last active: Mar 22, 2025
Has anyone had these atypical features with their Metastatic PC???
I am 65 years old and was diagnosed with metastatic prostate cancer in January 2025 with PSA = 70; prostate biopsy showing fairly low volume...
Support Group: Prostate Cancer
Last active: Sep 8, 2025
Patient movement during proton therapy more problematic than photon?
I am now 68 yrs old. My PSA level went beyond normal range in 2023 with a PSA of 4.3. Saw a urologist and had...
Support Group: Prostate Cancer
Last active: Aug 11, 2024
Incidental findings on MRI's when beginning PCa treatment.
I had my RALP in Aug of 22 at 60 yo. I had a Gleason 4 + 3 with a PSA of 3.46 in March...
Support Group: Prostate Cancer
Last active: Jul 21, 2023
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19, 2025
PSA Doubling Time Under Active Surveillance
Dear Group Members, I was diagnosed as a case of BPH in 2011. With a rising PSA from 2011 to 2017 (app 5.5 to 8)...
Support Group: Prostate Cancer
Last active: Apr 1, 2019
How long between IMRT and brachytherapy boost?
My treatment plan called for an LDR brachytherapy "boost" followed by 5 weeks of IMRT. I realize this is the reverse of the usual order...
Support Group: Prostate Cancer
Last active: Dec 4, 2024
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25, 2025