Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

3,699 total results

Comments (3,416)

Orgovyx has all the same side effects as other ADT meds. However, many on the forum...

https://connect.mayoclinic.org/comment/1314592/

Discussion: For Newly Arrived Bros: A Day In The Life With ADT

Support Group: Prostate Cancer

Posted: May 28, 2025

I'm a year out from treatment with six months of Orgovyx and still have testosterone well...

https://connect.mayoclinic.org/comment/1390197/

Discussion: Recovery from Orgovyx?

Support Group: Prostate Cancer

Posted: Sep 9, 2025

Orgovyx was covered under my Medicare Part D drug plan at a 25% coinsurance (together with...

https://connect.mayoclinic.org/comment/991450/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Jan 4, 2024

Thanks. I asked because I am taking Orgovyx. I started taking Orgovyx daily in Oct 2024...

https://connect.mayoclinic.org/comment/1333070/

Discussion: Stopping ADT Scared and Anxiety Update

Support Group: Prostate Cancer

Posted: Jun 22, 2025

I read in more than one webpage that Orgovyx can cost almost US$3,000 in the United...

https://connect.mayoclinic.org/comment/1295390/

Discussion: Stopping ADT

Support Group: Prostate Cancer

Posted: May 2, 2025

Orgovyx is newer, your urologist is using what she has had success with. I've spoken with...

https://connect.mayoclinic.org/comment/1037419/

Discussion: Urologist only offers Degarelix or Eligard, so what....

Support Group: Prostate Cancer

Posted: Mar 20, 2024

@dpfbanks If you are prescribed Orgovyx and have private (non-VA or Medicare in the U.S) you...

https://connect.mayoclinic.org/comment/1425314/

Discussion: Mighty pricey, this Prostate Cancer stuff.

Support Group: Prostate Cancer

Posted: Oct 28, 2025

After 11 months on Orgovyx, my psa is 0.03 I am thinking of discontinuing Orgovyx after...

https://connect.mayoclinic.org/comment/1248379/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Mar 1, 2025

Dd2312: How has your recovery from Orgovyx progressed? Fatigue and "wooziness " are my issues 4...

https://connect.mayoclinic.org/comment/894394/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: Jul 12, 2023

I am able to stay on Orgovyx but could not stay on the abiraterone and prednisone....

https://connect.mayoclinic.org/comment/1330224/

Discussion: Stopping ADT Scared and Anxiety Update

Support Group: Prostate Cancer

Posted: Jun 18, 2025

I have only been on Orgovyx for three months. It gives me more joint pain but...

https://connect.mayoclinic.org/comment/1532373/

Discussion: Has anyone experienced leg pain while taking Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 21 7:47pm

I am post Orgovyx 4 months and have not fully recovered. That said, I had significant...

https://connect.mayoclinic.org/comment/1516027/

Discussion: How quickly do you recover 'yourself’ after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Feb 27 5:01pm

I wouldn’t let 18 days of Orgovyx Decide what your long-term results are going to be,...

https://connect.mayoclinic.org/comment/1514501/

Discussion: Quandry on my chosen pathway

Support Group: Prostate Cancer

Posted: Feb 25 2:09pm

@firespooks Insurance covers most of it. How much they cover varies a lot. If you think...

https://connect.mayoclinic.org/comment/1507223/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 16 11:02am

The way Orgovyx works is it takes your testosterone down to Below 20. If you stop...

https://connect.mayoclinic.org/comment/1469618/

Discussion: Has anyone else had tachycardia with Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 28, 2025

I'll second that. 2½ years of Firmagon shots in my abdomen was a nasty experience: three...

https://connect.mayoclinic.org/comment/1144713/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20, 2024

Both drugs work very similarly. While Firmagon is good for the very first shot, you should...

https://connect.mayoclinic.org/comment/1396149/

Discussion: Who has been on lupron for a long time, and/ or firmagon?

Support Group: Prostate Cancer

Posted: Sep 18, 2025

Hi, I’m fairly new to the site and just into my treatment and have been on...

https://connect.mayoclinic.org/comment/1224628/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Jan 29, 2025

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

toolbelt, did you start orgovyx prior to SBRT? My CT Simulation is on April 1st and...

https://connect.mayoclinic.org/comment/1042659/

Discussion: 3 Month post SBRT PSA

Support Group: Prostate Cancer

Posted: Mar 30, 2024

Aging Well

14883

29 minutes ago

Cancer: Managing Symptoms

5608

4 hours ago

Osteoporosis & Bone Health

14438

4 hours ago

Visiting Mayo Clinic

6719

4 hours ago

Bladder Conditions

778

6 hours ago