Prostate Cancer Support Group

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Comments (1,915)

I was on active surveillance for three years. When PSA started rising again (6.4) and a...

https://connect.mayoclinic.org/comment/795679/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 12, 2023

You might never experience any side effects beyond the basic ones (like losing some body hair...

https://connect.mayoclinic.org/comment/1239319/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 17 3:18pm

Yes I can. Had prostrate removed 12/15/22. Psa 1.8 then 2.3 by march23. Dr put me...

https://connect.mayoclinic.org/comment/980645/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Dec 14, 2023

@ava11 What treatment did you have? I hope your choice went well. I just found this...

https://connect.mayoclinic.org/comment/1311007/

Discussion: Surgery or Radiation?

Support Group: Prostate Cancer

Posted: May 23 9:54am

My husband and I made the decision to switch to Orgovyx from the monthly Degarelix shot...

https://connect.mayoclinic.org/comment/1037278/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 20, 2024

I also like the idea of throwing the kitchen sink at it early on if you're...

https://connect.mayoclinic.org/comment/1036101/

Discussion: Survival Rates By Cancer Stage

Support Group: Prostate Cancer

Posted: Mar 18, 2024

My Salvage Radiation treatment was IMRT at Johns Hopkins; 37 txs; total 66.6 gy to whole...

https://connect.mayoclinic.org/comment/1223776/

Discussion: Rising PSA years after radical prostatectomy

Support Group: Prostate Cancer

Posted: Jan 28 9:52am

I think the ADT has a lot to do with it. I’ve been pretty much impotent...

https://connect.mayoclinic.org/comment/1254501/

Discussion: Trouble with vacuum pumps

Support Group: Prostate Cancer

Posted: Mar 10 7:04am

Just something to think about. If you are on Lupron or Orgovyx Or equivalent and it...

https://connect.mayoclinic.org/comment/1189726/

Discussion: Intraductal Prostate Cancer: Any info about recurrence rates?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

What do you want to do? Have you spoken with your Dr? How long is your...

https://connect.mayoclinic.org/comment/1313870/

Discussion: PSA test results, should I start my treatment sooner?

Support Group: Prostate Cancer

Posted: May 27 8:47am

ojosverde, sorry about your son's cancer. Cancer treatments are never easy. Stereotactic in SBRT means the...

https://connect.mayoclinic.org/comment/977666/

Discussion: Anyone had the 5 treatment proton therapy for prostate cancer?

Support Group: Prostate Cancer

Posted: Dec 9, 2023

Hey @gbvetracer, your situation may be somewhat unique, we all respond a little differently to things,...

https://connect.mayoclinic.org/comment/1120453/

Discussion: Does ADT actually kill cancer cells?

Support Group: Prostate Cancer

Posted: Aug 9, 2024

Yes, we wanted to be very aggressive when he started treatment for his prostate cancer …...

https://connect.mayoclinic.org/comment/1275816/

Discussion: Protocol over person -The Quiet Tyranny of Standardized Care

Support Group: Prostate Cancer

Posted: Apr 6 3:43pm

As far as cost to the patient goes, we're somewhere in-between the U.S. and Switzerland/Germany here...

https://connect.mayoclinic.org/comment/1282223/

Discussion: The arbitrary economics of life and death

Support Group: Prostate Cancer

Posted: Apr 15 6:46am

Hi Cal77, I thought that Apautamide and Erleada are the same medication. I was on Erleada...

https://connect.mayoclinic.org/comment/1049293/

Discussion: Apalutamide (Erleada) for a year but PSA is now rising

Support Group: Prostate Cancer

Posted: Apr 12, 2024

Hello, my name is Keith and I started my cancer prostate cancer journey 3 years ago...

https://connect.mayoclinic.org/comment/1292763/

Discussion: Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?

Support Group: Prostate Cancer

Posted: Apr 29 12:45pm

Well, with the clinical data you describe, doing nothing, or what I call actively monitoring through...

https://connect.mayoclinic.org/comment/1252349/

Discussion: BCR Prostate cancer. Need Opinions

Support Group: Prostate Cancer

Posted: Mar 7 8:33am

So after reading your comments, I’ve come away somewhat discouraged by the current state of salvage...

https://connect.mayoclinic.org/comment/1170950/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Nov 10, 2024

Hello, just coming up on 7 months on Orgovyx and 6 months on xtandi RP 2014...

https://connect.mayoclinic.org/comment/1154381/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 9, 2024

Hey Paul, You have been thru the proverbial wringer - but you gotta be a tough...

https://connect.mayoclinic.org/comment/1124687/

Discussion: ADT/ ORGOVYX Day 45; Told Radiation Is Next

Support Group: Prostate Cancer

Posted: Aug 16, 2024

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