Prostate Cancer Support Group

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Comments (737)

@jsh327 we are currently at Sloan. Our oncologist shoots down everything we bring up. Tries one...

https://connect.mayoclinic.org/comment/1532352/

Discussion: Nubeqa vs Lupron

Support Group: Prostate Cancer

Posted: 6 days ago

@scary1 After being on ADT a few months your husband will probably realize the number of...

https://connect.mayoclinic.org/comment/1534967/

Discussion: 3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?

Support Group: Prostate Cancer

Posted: 3 days ago

I went on Nubeqa and Orgovyx in March last year (2025) and my PSA went from...

https://connect.mayoclinic.org/comment/1483742/

Discussion: Is an ADT Treatment PSA Drop From 25 to 0.63 in 2.5 months Fast?

Support Group: Prostate Cancer

Posted: Jan 16 10:06am

@jeffmarc yes..brainfog..I dont think I am any more foggy than before I started ADT...again, thank you...

https://connect.mayoclinic.org/comment/1517221/

Discussion: ARSI PR wars: Nubeqa (Bayer) vs Erleada (J & J) lawsuit

Support Group: Prostate Cancer

Posted: Mar 1 12:48pm

Abiraterone definitely isn’t the friend of the person using it. Causes a lot of side effects....

https://connect.mayoclinic.org/comment/1342934/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 7, 2025

Not yet, going thru SCO: ADT(Nubeqa)+Docetaxel+Eligard. Last chemo will be Jan 2023, after it will see...

https://connect.mayoclinic.org/comment/785039/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Dec 15, 2022

Yes, just the Firmagon injection alone, given at the infusion center. The Nubeqa is additional, so...

https://connect.mayoclinic.org/comment/1367496/

Discussion: Started Hormone Therapy Today

Support Group: Prostate Cancer

Posted: Aug 10, 2025

Also need to keep in mind that all part D plans are not the same. I...

https://connect.mayoclinic.org/comment/1491859/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 27 12:57pm

I have been on Nubeqa for about 3 years plus ADT. I'm denovo stage 4 metastatic...

https://connect.mayoclinic.org/comment/1370279/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 14, 2025

Is there any reason to care about rising Testosterone unless PSA rises? I understand that this...

https://connect.mayoclinic.org/comment/1394024/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Sep 15, 2025

Thanks . I am on Darolutamide and can switch to Enzalutamide after 12 weeks if I...

https://connect.mayoclinic.org/comment/1261328/

Discussion: Is PSA rise inevitable after hormone therapy?

Support Group: Prostate Cancer

Posted: Mar 18, 2025

My medical oncologist recently told me the standard care today is to use 2 drug combinations...

https://connect.mayoclinic.org/comment/1333345/

Discussion: Adding a second medicine question

Support Group: Prostate Cancer

Posted: Jun 23, 2025

While I'm hesitant to share with a large group, I noticed your are "director". So I...

https://connect.mayoclinic.org/comment/1356195/

Discussion: Darolutamide Impact on Testosterone Utilization

Support Group: Prostate Cancer

Posted: Jul 25, 2025

@denis76 My BRCA2 mutation makes this cancer, very aggressive. When I was on Zytiga, I stopped...

https://connect.mayoclinic.org/comment/1474436/

Discussion: What helps to slow testosterone growth?

Support Group: Prostate Cancer

Posted: Jan 4 2:07pm

Sorry not sure of nubeqa but I take herb Black Cohosh which is helping. Had been...

https://connect.mayoclinic.org/comment/1431626/

Discussion: Anyone taken Effexor (venlafaxine) to manage hot flashes?

Support Group: Prostate Cancer

Posted: Nov 5, 2025

They are taking Nubeqa (Darolutamide) which has lower side effects and other lutamides and strains the...

https://connect.mayoclinic.org/comment/1134413/

Discussion: 11 anniversaries since diagnosis of stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Sep 1, 2024

@jime51 Just one point. Nubeqa Doesn’t pass the blood brain barrier, all of the other ARPI...

https://connect.mayoclinic.org/comment/1468594/

Discussion: Darolutamide Monotherapy

Support Group: Prostate Cancer

Posted: Dec 27, 2025

Is it possible for my nubeqa to be reduced if my next psa level is good?...

https://connect.mayoclinic.org/comment/1361719/

Discussion: How long were you on Orgovyx, Xtandi, Talzenna? Fatigue unbearable

Support Group: Prostate Cancer

Posted: Aug 1, 2025

@sbd It is not mandatory to have an ARSI but if your PSA starts rising, it...

https://connect.mayoclinic.org/comment/1435241/

Discussion: Anyone considered bilateral orchiectomy: Why or why not?

Support Group: Prostate Cancer

Posted: Nov 10, 2025

I found a hive over the counter product and hive went away after about three days....

https://connect.mayoclinic.org/comment/1354541/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Jul 23, 2025