Prostate Cancer Support Group

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Comments (785)

@jeffmark - Doc has been preparing me for upcoming Rad Therapy with meds Orgovyx and Nubeqa....

https://connect.mayoclinic.org/comment/1536173/

Discussion: Navigating Biologics by McKesson for D and mail-order 90-day Orgovyx

Support Group: Prostate Cancer

Posted: Mar 26 8:45pm

Staying on an ARSI can be very important. Xtandi Does cause fatigue for a lot of...

https://connect.mayoclinic.org/comment/1385146/

Discussion: Can anyone share their experience with Pluvicto?

Support Group: Prostate Cancer

Posted: Sep 2, 2025

I was diagnosed with De nova metastatic prostate cancer June 2022. After Radiation treatments to my...

https://connect.mayoclinic.org/comment/1056883/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Apr 25, 2024

Not so new. Diagnosed Stage 4b in October 2022. Started Lupron then did chemo and Nubeqa....

https://connect.mayoclinic.org/comment/1328731/

Discussion: Darolutamide Monotherapy

Support Group: Prostate Cancer

Posted: Jun 16, 2025

I was diagnosed stage 4b group 5 in 0ctober 2022. Ten age 72. PSA of 25....

https://connect.mayoclinic.org/comment/1112988/

Discussion: Lupron and Nubeqa (darolutamide): Anyone on this protocol?

Support Group: Prostate Cancer

Posted: Jul 27, 2024

Are you on shots 2? It may not be my nubeqa making me hot, although I'm...

https://connect.mayoclinic.org/comment/1369775/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 13, 2025

@mrd1000 With a PSA of .08 PSMA cannot detect lesions even if they are there and...

https://connect.mayoclinic.org/comment/1550675/

Discussion: Would like to pause Lupron injections. Taking Nubeqa and Lupron.

Support Group: Prostate Cancer

Posted: 6 days ago

Gotta have justification I suppose. A lot of medications require a prior authorization I know my...

https://connect.mayoclinic.org/comment/1393084/

Discussion: Post chemo injection for immune system

Support Group: Prostate Cancer

Posted: Sep 13, 2025

They usually offer Zytiga as the third drug. If you have heart issues they might not...

https://connect.mayoclinic.org/comment/1354151/

Discussion: Should I be seeking extra treatment?

Support Group: Prostate Cancer

Posted: Jul 22, 2025

I did not do well on Yonsa. I took a half dose of Yonsa and methylprednisone...

https://connect.mayoclinic.org/comment/1351166/

Discussion: Adding a second medicine question

Support Group: Prostate Cancer

Posted: Jul 18, 2025

Just dropping Orgovyx would probably be a good thing to try now. Check with your doctor...

https://connect.mayoclinic.org/comment/1523572/

Discussion: Article: Half dose prostate drugs ‘controls cancer minus side effects

Support Group: Prostate Cancer

Posted: Mar 9 9:42pm

You should ask about getting Nubeqa (Darolutamide). The side effects are minimal compared to Xtandi And...

https://connect.mayoclinic.org/comment/1383638/

Discussion: Did you start radiation immediately or wait until PSA was 0.2 ng/ml

Support Group: Prostate Cancer

Posted: Aug 31, 2025

@xahnegrey40 and @northoftheborder, I merged your 2 discussions on the same topic into this discussion: -...

https://connect.mayoclinic.org/comment/1517048/

Discussion: ARSI PR wars: Nubeqa (Bayer) vs Erleada (J & J) lawsuit

Support Group: Prostate Cancer

Posted: Mar 1 9:06am

While Xtandi works quite well It does cause fatigue for many people. I know quite a...

https://connect.mayoclinic.org/comment/1444732/

Discussion: Hiking while on Orgovyx and Xtandi?

Support Group: Prostate Cancer

Posted: Nov 22, 2025

@brianjarvis Yea...I've got a Medigap plan G and for an extra $35/mo. it includes dental, vision,...

https://connect.mayoclinic.org/comment/1492308/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 28 5:40am

I do get hot flashes on nubeqa although they seem to have decreased. I use a...

https://connect.mayoclinic.org/comment/1379285/

Discussion: Anyone taking Nubeqa (darolutamide) have a problem with constipation?

Support Group: Prostate Cancer

Posted: Aug 25, 2025

I never noticed any problems from Nubeqa. I have heard a couple of people say they...

https://connect.mayoclinic.org/comment/1400298/

Discussion: ok just took on Nubeqa after 2 months Orgovyx

Support Group: Prostate Cancer

Posted: Sep 24, 2025

@johndavis60 - Hi John, Thanks! Just the opposite. Somatic testing identified a SPOP alteration which typically...

https://connect.mayoclinic.org/comment/1554026/

Discussion: Rut Roh Rorge - PSA wrong direction

Support Group: Prostate Cancer

Posted: 2 days ago

@ambika Yes, but that is off label since the label says for local should be castrate...

https://connect.mayoclinic.org/comment/1551129/

Discussion: Would like to pause Lupron injections. Taking Nubeqa and Lupron.

Support Group: Prostate Cancer

Posted: 6 days ago

I've been on Nubeqa since March and have not experienced any side effects other than reduced...

https://connect.mayoclinic.org/comment/1369290/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 12, 2025

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