Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,231 total results

Comments (2,063)

What is the "testosterone blocking med" that is being added to your tx protocol, if you...

https://connect.mayoclinic.org/comment/869206/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: May 30, 2023

I started Orgovyx three months ago. SEs include a pounding heart, sleeplessness, a jelly roll developing...

https://connect.mayoclinic.org/comment/1066069/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 11, 2024

That's interesting. It was recommended (at another NCI center) that I take it along with Orgovyx...

https://connect.mayoclinic.org/comment/1155625/

Discussion: Side effects of going off of abiraterone

Support Group: Prostate Cancer

Posted: Oct 11, 2024

Orgovyx/arbiterone is tolerable for me and since it is pill form you can discontinue if intolerable....

https://connect.mayoclinic.org/comment/1114922/

Discussion: Prostate cancer radiation failed

Support Group: Prostate Cancer

Posted: Jul 30, 2024

No. that's probably another poster. I was on Firmagon+Apalutamide from October 2021 (mCSPC), then switched to...

https://connect.mayoclinic.org/comment/1079009/

Discussion: Apalutamide vs abiraterone: which is more effective?

Support Group: Prostate Cancer

Posted: Jun 1, 2024

When I was on Firmagon, most of the time the monthly injection just caused localised swelling,...

https://connect.mayoclinic.org/comment/1161701/

Discussion: Lupron side effect: pain in left rib cage that radiates around to back

Support Group: Prostate Cancer

Posted: Oct 23, 2024

I switched to Orgovyx a couple of months ago, and it made a huge difference for...

https://connect.mayoclinic.org/comment/1095073/

Discussion: Pros and cons from changing from Degeralix to Orgovyx

Support Group: Prostate Cancer

Posted: Jun 27, 2024

You are the care of a good urologist and RO at UCLA! We have to do...

https://connect.mayoclinic.org/comment/1068914/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 16, 2024

I start 6 months on Orgovyx tomorrow. Pharmacist I spoke with last week said alcohol is...

https://connect.mayoclinic.org/comment/1222909/

Discussion: Occasional alcohol during radiation treatment?

Support Group: Prostate Cancer

Posted: Jan 27 9:15am

Orgovyx is a big improvement over monthly Degarelix injections. Side effects are quite similar. Some people...

https://connect.mayoclinic.org/comment/1239999/

Discussion: Anyone switch from monthly Degarelix injection to oral Relugolix?

Support Group: Prostate Cancer

Posted: Feb 18 1:31pm

Hi Jime, thank you for your advice and prayer. Sorry to hear that you experienced each...

https://connect.mayoclinic.org/comment/1339063/

Discussion: Starting Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 1 10:48am

I too live in ATL and had one 3 +4 and one 4 +3 = 7...

https://connect.mayoclinic.org/comment/1340272/

Discussion: Does anyone have any first hand experience with Nanoknife procedure?

Support Group: Prostate Cancer

Posted: Jul 3 9:34am

It's my understanding Orgovyx has a much shorter half-life than Lupron, which is the reason as...

https://connect.mayoclinic.org/comment/1248657/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 2 11:19am

Without a doubt! 74 and 3rd month on ORGOVYX with hot flashes every hour. No energy,...

https://connect.mayoclinic.org/comment/1139517/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 10, 2024

I take Orgovyx and Zytiga when I get up to pee at night. I sleep like...

https://connect.mayoclinic.org/comment/1138638/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 8, 2024

I am a fellow PCa patient. My care team wanted to start ADT 4 to 8...

https://connect.mayoclinic.org/comment/1094813/

Discussion: When to start ADT treatment of 4+3 score?

Support Group: Prostate Cancer

Posted: Jun 26, 2024

Yes. Casodex. It took awhile for me to get the Orgovyx ok’d by my insurance. Had...

https://connect.mayoclinic.org/comment/1075558/

Discussion: Relief for hot flashes during the night

Support Group: Prostate Cancer

Posted: May 27, 2024

On orgovyx/zitiga 13 months Gleason 9 nodal involvement psa undectable since 3rd wk testosterone less than...

https://connect.mayoclinic.org/comment/1048383/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Apr 10, 2024

I'm on orgovyx and hadn't heard of this before. I'm not being test for testosterone but...

https://connect.mayoclinic.org/comment/889276/

Discussion: Husband not responding to ADT

Support Group: Prostate Cancer

Posted: Jul 3, 2023

5 weeks in on 3 month Lupron shot and changing to Orgovyx for the last 3...

https://connect.mayoclinic.org/comment/1237555/

Discussion: Which ADT medication is best?

Support Group: Prostate Cancer

Posted: Feb 15 12:10pm

Cancer

8532

2 minutes ago

Cancer: Managing Symptoms

4685

8 minutes ago

Bladder Cancer

685

9 minutes ago

Aging Well

11836

15 minutes ago

Men's Health

4614

19 minutes ago