Prostate Cancer Support Group

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Comments (3,374)

On orgovyx/xytiga 13months psa undectable after 3wks . Testosterone 10. Went to consult Dr Kwon he...

https://connect.mayoclinic.org/comment/1048426/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Apr 10, 2024

For the seven months on Orgovyx, I have been unable to have adequate erections or any...

https://connect.mayoclinic.org/comment/1372509/

Discussion: Side effect of Radiation +ADT Orgovyx on Sexual function

Support Group: Prostate Cancer

Posted: Aug 17, 2025

Wondering if CoQ10 might help. I take a statin and was experiencing leg and hip pain...

https://connect.mayoclinic.org/comment/1247977/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 1, 2025

@seasuite I don't know if this exactly addresses your concern since I'm on a year+ vacation...

https://connect.mayoclinic.org/comment/1532478/

Discussion: What causes sore nipples on a male in prostate cancer treatment?

Support Group: Prostate Cancer

Posted: Mar 22 5:17am

@capatov It is likely your testosterone will rise higher soon. Here are the results of a...

https://connect.mayoclinic.org/comment/1478344/

Discussion: Anyone get PSA Test Angst days before that post-treatment PSA test?

Support Group: Prostate Cancer

Posted: Jan 9 3:22pm

I am on my 11th week of taking Orgovyx. I had similar side effects and my...

https://connect.mayoclinic.org/comment/1099657/

Discussion: Does relugolix (Orgovyx) break the blood brain barrier?

Support Group: Prostate Cancer

Posted: Jul 5, 2024

I have been on Orgovyx for 13 months. I go to the gym 3 times a...

https://connect.mayoclinic.org/comment/941002/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Oct 3, 2023

Thanks for your suggestion. Is this to replace Orgovyx? I started with Lupron monthly shots (for...

https://connect.mayoclinic.org/comment/1305986/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 17, 2025

@myash What was your PSA and Gleason Score when you started treatment? I read in another...

https://connect.mayoclinic.org/comment/1292435/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29, 2025

msciulli, Is there a high copay for ORGOVYX for you? what are the side effects from...

https://connect.mayoclinic.org/comment/1048494/

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Apr 10, 2024

I have a 4+3 and a 3+3. My Decipher was .84 and that tripped the trigger...

https://connect.mayoclinic.org/comment/989898/

Discussion: Anyone had a decipher test done? Did the results impact treatment?

Support Group: Prostate Cancer

Posted: Jan 1, 2024

I had no major issues with Orgovyx. If it were up to me, I'd still be...

https://connect.mayoclinic.org/comment/1390806/

Discussion: PSA Rise After ADT

Support Group: Prostate Cancer

Posted: Sep 10, 2025

Well, jeff, you nailed it. Orgovyx and Nubequa with a radiation oncology appt in a few...

https://connect.mayoclinic.org/comment/1324448/

Discussion: PSMA PET results 6/6/25

Support Group: Prostate Cancer

Posted: Jun 10, 2025

My Decipher score 0.98! I had SBRT radiation at UCLA. I am inclined to stay on...

https://connect.mayoclinic.org/comment/1189946/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

@mjp0512 I took Orgovyx from March to late September 2025(six months) and didn't experience leg pain....

https://connect.mayoclinic.org/comment/1479113/

Discussion: Can a short term of taking Orgovyx cause leg pain and weight gain?

Support Group: Prostate Cancer

Posted: Jan 10 4:26pm

I've been on Orgovyx about 4 months. I'm experiencing intermittent fairly severe thigh pain in my...

https://connect.mayoclinic.org/comment/1528284/

Discussion: Has anyone experienced leg pain while taking Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 16 12:03pm

I am on Orgovyx And Darolutamide. I did stop Orgovyx For six months, and my testosterone...

https://connect.mayoclinic.org/comment/1397389/

Discussion: Lupron side effects a year after one injection

Support Group: Prostate Cancer

Posted: Sep 20, 2025

To reiterate my husband is on blood pressure medication and his numbers are favorable. He sees...

https://connect.mayoclinic.org/comment/1315269/

Discussion: Orgovyx side effect?

Support Group: Prostate Cancer

Posted: May 28, 2025

Hi, Prior to starting treatments, I was taking a low dose (20 mg) of sildenafil "as...

https://connect.mayoclinic.org/comment/1223313/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 27, 2025

Stage 4 recurrent prostate cancer person here with a non-medical thought for your consideration: You may...

https://connect.mayoclinic.org/comment/1144668/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20, 2024

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