Prostate Cancer Support Group

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Comments (2,030)

After 11 months on Orgovyx, my psa is 0.03 I am thinking of discontinuing Orgovyx after...

https://connect.mayoclinic.org/comment/1248379/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Mar 1 11:58pm

Dd2312: How has your recovery from Orgovyx progressed? Fatigue and "wooziness " are my issues 4...

https://connect.mayoclinic.org/comment/894394/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: Jul 12, 2023

Gleason 7, N1M0 initial PET eval indicated active Iliac nodes, surgical oncologist disagrees. 5mos .Orgovyx now...

https://connect.mayoclinic.org/comment/1307829/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 19 1:24pm

Statistics...mean, mode, average, standard deviation... My recovery of T with the 18th months of Lupron was...

https://connect.mayoclinic.org/comment/1321321/

Discussion: How long after Lupron will testosterone level return to normal?

Support Group: Prostate Cancer

Posted: Jun 6 7:12am

How long ago did you stop Orgovyx?

https://connect.mayoclinic.org/comment/1327880/

Discussion: Gleason 9: ADT before radiation

Support Group: Prostate Cancer

Posted: Jun 15 3:59pm

The sacral fractures are from the Orgovyx! So, not from a fall or trauma. As we...

https://connect.mayoclinic.org/comment/1246684/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Feb 27 1:19pm

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

Hi @betterhealth2 , My PSA in March 2024 was 7.9, in June 2024 I was diagnosed...

https://connect.mayoclinic.org/comment/1331406/

Discussion: I have been on Orgovyx for last two months.

Support Group: Prostate Cancer

Posted: Jun 20 2:37pm

My oncologist initially wanted to give me the hormone shot. When I said I have anxiety...

https://connect.mayoclinic.org/comment/1347693/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: 3 days ago

Hi, I’m fairly new to the site and just into my treatment and have been on...

https://connect.mayoclinic.org/comment/1224628/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Jan 29 10:51am

toolbelt, did you start orgovyx prior to SBRT? My CT Simulation is on April 1st and...

https://connect.mayoclinic.org/comment/1042659/

Discussion: 3 Month post SBRT PSA

Support Group: Prostate Cancer

Posted: Mar 30, 2024

I'll second that. 2½ years of Firmagon shots in my abdomen was a nasty experience: three...

https://connect.mayoclinic.org/comment/1144713/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20, 2024

Hey @vircet I was Gleason 3+4 and my team had me on ADT (orgovyx) for 2...

https://connect.mayoclinic.org/comment/1287280/

Discussion: Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?

Support Group: Prostate Cancer

Posted: Apr 22 7:16am

I take Apalutamide with my Orgovyx for the same reason. 😉

https://connect.mayoclinic.org/comment/1321947/

Discussion: Surviving prostate cancer

Support Group: Prostate Cancer

Posted: Jun 6 8:02pm

I had 6 months of Orgovyx at age 68 and experienced no brain fog. Stay Strong...

https://connect.mayoclinic.org/comment/1340132/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 3 6:52am

Appreciate your post; I begin Orgovyx Friday, and radiation Jan 13. I was hoping to find...

https://connect.mayoclinic.org/comment/792389/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 4, 2023

How are you now, @gankster ? I had SBRT photon + Orgovyx April 9-21 this year,...

https://connect.mayoclinic.org/comment/1316254/

Discussion: Starting Proton Treatments for Prostate Cancer: Any experiences?

Support Group: Prostate Cancer

Posted: May 30 7:16am

That should say Orgovyx above

https://connect.mayoclinic.org/comment/1200646/

Discussion: Orgovyx Holiday

Support Group: Prostate Cancer

Posted: Dec 30, 2024

Thanks, Phil. the pharmacist and the oncologist said the foods to be avoided, and the herbal...

https://connect.mayoclinic.org/comment/1286893/

Discussion: Beginning EBRT next week. Do I need to follow a low-fiber diet?

Support Group: Prostate Cancer

Posted: Apr 21 2:54pm

Just started a week ago. Urologist said two years of Orgovyx

https://connect.mayoclinic.org/comment/1303740/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 14 6:53am

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