Prostate Cancer Support Group

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Comments (1,101)

Restarting 4 mos regimen of Orgovyx tomorrow (stopped/ interrupted 4 wks ago after 7 days to...

https://connect.mayoclinic.org/comment/808043/

Discussion: MRI Results: What are the chances the lesion is cancer?

Support Group: Prostate Cancer

Posted: Feb 8, 2023

That's great news! I just want to confirm, having Gleason 9 PCa w/ Extraprostatic Extension, your...

https://connect.mayoclinic.org/comment/1023472/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 27 7:12am

Mammoth3414, You are right. I could stay with UCLA. There is a UCLA clinic in Irvine....

https://connect.mayoclinic.org/comment/1055257/

Discussion: Prostate cancer care team

Support Group: Prostate Cancer

Posted: Apr 22 10:46am

Thank you to both @russ777 and @northoftheborder I really want to take the path of least...

https://connect.mayoclinic.org/comment/1096353/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jun 29 1:31pm

I had a radical prostatectomy two years ago, and my PSA has been rising over the...

https://connect.mayoclinic.org/comment/1128289/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 21 5:55pm

Scott, Food for thought: once you’re off Orgovyx for six months and have a track record...

https://connect.mayoclinic.org/comment/1141982/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 15 12:31pm

hmm... When you have prostate surgery, PSa should be undetectable, amy increase after that above .2...

https://connect.mayoclinic.org/comment/897167/

Discussion: PSA rise

Support Group: Prostate Cancer

Posted: Jul 17, 2023

Because you asked specifically: My uPSA test results have been < .02 undetectable following 37 IMRT...

https://connect.mayoclinic.org/comment/1177581/

Discussion: Your PSA Trends after Salvage Radiation & 6 Months of Orgovyx?

Support Group: Prostate Cancer

Posted: Nov 21 1:25pm

A hard no...I will do everything reasonable to not die of PCa. I tend to be...

https://connect.mayoclinic.org/comment/1164071/

Discussion: Confusing Messaging about Prostate Cancer

Support Group: Prostate Cancer

Posted: Oct 28 11:36am

I had not heard that. My PSA got down to 0.1 but the next PSA after...

https://connect.mayoclinic.org/comment/960191/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Nov 6, 2023

rmp321, I found this on the orgovyx site. "Cumulative probability of testosterone recovery to 280 ng/dL...

https://connect.mayoclinic.org/comment/984074/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Dec 20, 2023

Well, if you have read through these comments, you can see common threads: Decipher test Genetic...

https://connect.mayoclinic.org/comment/1190166/

Discussion: PSA is .4 ng/ mL 3 years after prostectomy

Support Group: Prostate Cancer

Posted: 5 days ago

I understand that — if it ain't broke, why try to fix it? Please don't take...

https://connect.mayoclinic.org/comment/1144720/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20 4:35pm

I am 68, retired MD, and have a new diagnosis of prostate cancer, Gleason 4+3, some...

https://connect.mayoclinic.org/comment/739779/

Discussion: Lupron yeah or Lupron nay that is the question.

Support Group: Prostate Cancer

Posted: Aug 20, 2022

No, sorry about the shorthand. My initial treatment (and only treatment thus far) was five fractions...

https://connect.mayoclinic.org/comment/965109/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 15, 2023

Please look at my profile for my posts. The executive summary is; 68, one 3+3, one...

https://connect.mayoclinic.org/comment/1062846/

Discussion: Did Decipher GRID report help guide your treatment decisions?

Support Group: Prostate Cancer

Posted: May 5 6:41pm

I had photon SBRT with a focal boost the the dominant lesion and urethral steering to...

https://connect.mayoclinic.org/comment/1030735/

Discussion: Is SBRT with proton beam now a gold standard for prostate cancer?

Support Group: Prostate Cancer

Posted: Mar 9 7:18pm

Bob65: Hang in there Buddy! It's a setback, and yes, I was hoping for a clear...

https://connect.mayoclinic.org/comment/935339/

Discussion: Rising PSA immediately following RP

Support Group: Prostate Cancer

Posted: Sep 24, 2023

This is the heart of the matter for me. I had three months of Eligard then...

https://connect.mayoclinic.org/comment/1110885/

Discussion: Does ADT actually kill cancer cells?

Support Group: Prostate Cancer

Posted: Jul 24 8:23am

I started orgovyx on 9/2/23 and am on a six month regime. I can only speak...

https://connect.mayoclinic.org/comment/984589/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Dec 21, 2023

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