Prostate Cancer Support Group

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I read that the device does not work for everyone, and I was not expecting it...

https://connect.mayoclinic.org/comment/1302043/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 11, 2025

My experience, 12 months on Orgovyx. Sie effects: Fatigue Muscle and Joint stiffness Weight gain Genitalia...

https://connect.mayoclinic.org/comment/1273502/

Discussion: Are there withdrawl symptoms immediately after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Apr 3, 2025

I'm almost exactly where you are. I had RP surgery in November 2024, and have a...

https://connect.mayoclinic.org/comment/1458385/

Discussion: Is there an end to this train ride? and how will they know?

Support Group: Prostate Cancer

Posted: Dec 11, 2025

Hello, well I just finished 44 radiation treatments on May 21st. Started Orgovyx on December 5th,...

https://connect.mayoclinic.org/comment/1324681/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: Jun 11, 2025

ADT side effects and length of duration (ADT history below - you can skip to the...

https://connect.mayoclinic.org/comment/1458455/

Discussion: ADT: How long until I can expect the hot flushes to kick in?

Support Group: Prostate Cancer

Posted: Dec 11, 2025

@john1951 ADT is not a lifetime sentence. When you stop it, your testosterone comes back. Have...

https://connect.mayoclinic.org/comment/1525607/

Discussion: Anyone considered bilateral orchiectomy: Why or why not?

Support Group: Prostate Cancer

Posted: Mar 12 8:46pm

Thanks for the links. I have continued to exercise (walk and golf) and recently started back...

https://connect.mayoclinic.org/comment/1007584/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Feb 1, 2024

Yes. The side effects are intense. Fatigue and the hot flashes, and the same as you...

https://connect.mayoclinic.org/comment/807015/

Discussion: Cribriform present: What does this biopsy finding mean?

Support Group: Prostate Cancer

Posted: Feb 6, 2023

Thanks for your response. Regarding the decipher testing I took the Guardant 360 test resulting in...

https://connect.mayoclinic.org/comment/1261259/

Discussion: Is PSA rise inevitable after hormone therapy?

Support Group: Prostate Cancer

Posted: Mar 18, 2025

Thank you. Have been advised Surgery would not get it all due to regional spread, and...

https://connect.mayoclinic.org/comment/866197/

Discussion: 3rd opinion: How many opinions did you get for prostate cancer?

Support Group: Prostate Cancer

Posted: May 24, 2023

I guess everyone is different, but, I've been on orgovyx for 7 mos now. No libido......

https://connect.mayoclinic.org/comment/795614/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 12, 2023

@pesquallie I’ve been off Lupron for 14 months and still have hot flashes, emotional lability, bone...

https://connect.mayoclinic.org/comment/1445856/

Discussion: ADT, Hot Flashes and Ashwagandha: Is it safe?

Support Group: Prostate Cancer

Posted: Nov 23, 2025

Thanks Colleen. I''m doing OK. I have a couple of things worth reporting. First I'm participating...

https://connect.mayoclinic.org/comment/1252209/

Discussion: Best excercise to combat ADT therapy side effects?

Support Group: Prostate Cancer

Posted: Mar 7, 2025

I begin my regimen of orgovyx tablets tomorrow morning (3/11). The radiation oncologist reviewed much of...

https://connect.mayoclinic.org/comment/1139549/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 10, 2024

I had salvage RP January 18th, 2024 Started Orgovyx on 4/22/24. Started Generic Zytiga (Abiraterone acetate)...

https://connect.mayoclinic.org/comment/1120578/

Discussion: Stage 3a, Group 9, just discovered. Dr. gave options but have question

Support Group: Prostate Cancer

Posted: Aug 9, 2024

@jimgaudette Not all of us have all of those side effects while on ADT. I think...

https://connect.mayoclinic.org/comment/1503762/

Discussion: Gay Men with Prostate Cancer

Support Group: Prostate Cancer

Posted: Feb 12 8:08am

As long as you do not have BRCA low dose estrogen can increase desire, which is...

https://connect.mayoclinic.org/comment/1344437/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 9, 2025

Update from Spryguy: I am now 3 yrs from diagnosis. PSA is undetectable. I am off...

https://connect.mayoclinic.org/comment/1261162/

Discussion: Intraductal prostate carcinoma: What is standard treatment?

Support Group: Prostate Cancer

Posted: Mar 18, 2025

I'm 72, and my testosterone was 454 before one year of Orgovyx. During that time, testosterone...

https://connect.mayoclinic.org/comment/1254628/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Mar 10, 2025

RE: All ADT 'users' There is research saying a better target is to keep testosterone below...

https://connect.mayoclinic.org/comment/1249480/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3, 2025

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