Prostate Cancer Support Group

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Comments (2,079)

Ava, That Decipher score speaks volumes for the aggressiveness of your cancer. I am not an...

https://connect.mayoclinic.org/comment/1190130/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 14, 2024

Under the STAMPEDE protocol the only patients who would take it until resistance are those with...

https://connect.mayoclinic.org/comment/1155959/

Discussion: Side effects of going off of abiraterone

Support Group: Prostate Cancer

Posted: Oct 12, 2024

The testosterone is a blood test. I would have hope they took yours prior to your...

https://connect.mayoclinic.org/comment/1098138/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2, 2024

Not sure if the Orgovyx brings it to undetectable or just helps it. It all seems...

https://connect.mayoclinic.org/comment/744066/

Discussion: Rising PSA years after radical prostatectomy

Support Group: Prostate Cancer

Posted: Sep 1, 2022

As a GmRH antagonist, the cardiac profile of Orgovyx is superior to that of the agonists....

https://connect.mayoclinic.org/comment/739823/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 21, 2022

First diagnosed as 3+3 in 2017 and did active surveillance until Stayed there until third biopsy...

https://connect.mayoclinic.org/comment/1223697/

Discussion: My Gleason score is 7 - 3+4. How long can I live without treatment?

Support Group: Prostate Cancer

Posted: Jan 28 8:59am

Hello, Ifusilli, I have been on Orgovyx for 2 1/2 months. I am almost 73. I...

https://connect.mayoclinic.org/comment/1194285/

Discussion: Side effects of Orgovyx (relugolix): Anyone have stomach or GI issues?

Support Group: Prostate Cancer

Posted: Dec 20, 2024

It's definitely not "cut and dry!" My experience with salvage was pretty good. I had 39...

https://connect.mayoclinic.org/comment/1251513/

Discussion: BCR Prostate cancer. Need Opinions

Support Group: Prostate Cancer

Posted: Mar 6 7:04am

I would like to know what kind of ADT your relatives had that caused their complications...

https://connect.mayoclinic.org/comment/1223552/

Discussion: My Gleason score is 7 - 3+4. How long can I live without treatment?

Support Group: Prostate Cancer

Posted: Jan 28 6:31am

Next time I see my RO, I will ask if the plan for me is: "ADT...

https://connect.mayoclinic.org/comment/1270168/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 30 12:38pm

Hey @bozly9999 I've had those aches and pains as well. I've been on the orgovyx almost...

https://connect.mayoclinic.org/comment/1037534/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 21, 2024

Thanks for replies. I'm also going to make one more run at Orgovyx financial support since...

https://connect.mayoclinic.org/comment/943709/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 7, 2023

First congratulations on the PSA reduction since Sept. Hopefully @jeffmarc and @northoftheborder respond to your question....

https://connect.mayoclinic.org/comment/1299571/

Discussion: Completed EBRT recently, first blood test readings done. Any advice?

Support Group: Prostate Cancer

Posted: May 8 7:20am

Completed 5 months of Taxotere 1/10/25 and stopped Orgovyx and Prednisone (iADT) on 1/23/25 . PSA...

https://connect.mayoclinic.org/comment/1332661/

Discussion: Starting Chemo Taxotere/docetaxel, what to expect?

Support Group: Prostate Cancer

Posted: Jun 22 11:14am

Almost two months post-Orgovyx and my T is only back to 267 (started at 620). Is...

https://connect.mayoclinic.org/comment/1192557/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Dec 17, 2024

I'm 76. First diagnosed at age 67. PSA 16, Gleason Score 8. Had surgery and radiation...

https://connect.mayoclinic.org/comment/1142894/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Sep 17, 2024

I started Orgovyx in January. My testosterone was 454 and my PSA was 2.9. In April,...

https://connect.mayoclinic.org/comment/1098485/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 3, 2024

I don't think they'd call my cancer "advanced" they didn't find any metastasis in my PSMA...

https://connect.mayoclinic.org/comment/777848/

Discussion: Eligard - 1 mo. , 3 mo., 6 months: any difference in side effects?

Support Group: Prostate Cancer

Posted: Nov 27, 2022

You can get a one month, 3 month, 4 month or 6 month Lupron shot. No...

https://connect.mayoclinic.org/comment/1142591/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 16, 2024

Had prostatectomy in Jan 2014. PSA gradually increasing, and was 5.5 last Oct 2024. Had PET...

https://connect.mayoclinic.org/comment/1268968/

Discussion: Treatment after prostatectomy

Support Group: Prostate Cancer

Posted: Mar 28 7:40pm

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