Prostate Cancer Support Group

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Overall, great.... In early June I did the Garmin Unbound with my sister, a 52 mike...

https://connect.mayoclinic.org/comment/897394/

Discussion: 3rd time around. Now stage IVb: What are my treatment options?

Support Group: Prostate Cancer

Posted: Jul 17, 2023

I got a shot of Lupron prior to PBT 4 years ago at PHX Mayo, “6...

https://connect.mayoclinic.org/comment/811760/

Discussion: Proton Beam Therapy - Comments on adding ADT? Yes or No?

Support Group: Prostate Cancer

Posted: Feb 15, 2023

I second the embrlabs cooling “watch.” I purchased one a few weeks ago and do notice...

https://connect.mayoclinic.org/comment/1392715/

Discussion: How long do the hot flashes last? Another 3 month Eligard shot today

Support Group: Prostate Cancer

Posted: Sep 13, 2025

Just wondering if those of us on Orgovyx would relay if they've found any better times...

https://connect.mayoclinic.org/comment/1292742/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29, 2025

My oncologist is recommending acupuncture for my hot flashes as well. I won't meet with acupuncturist...

https://connect.mayoclinic.org/comment/1253692/

Discussion: Acupuncture for ADT Night Sweats: Did it help you?

Support Group: Prostate Cancer

Posted: Mar 9, 2025

My first side effect, hot flashes, occurred on day 28. Having said that I did have...

https://connect.mayoclinic.org/comment/1189502/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

Just an update, had my 90 day labs (8 July) and consult (10 July) after coming...

https://connect.mayoclinic.org/comment/1119305/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Aug 7, 2024

@jeffmarc we agree with Jeff. Hubby Gleason 8, stage 3. Radiation and 3 years (so far)...

https://connect.mayoclinic.org/comment/1427091/

Discussion: ADT, maybe not? Anyone opted out of ADT?

Support Group: Prostate Cancer

Posted: Oct 30, 2025

When you get the Embr device set it up so that one button cools down the...

https://connect.mayoclinic.org/comment/1144761/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20, 2024

Hi, My husband is taking Orgovyx and Zytiga, and did not experience any side effects until...

https://connect.mayoclinic.org/comment/913110/

Discussion: Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?

Support Group: Prostate Cancer

Posted: Aug 14, 2023

The Lupron shot that I get stops the body from producing testosterone. Because of almost no...

https://connect.mayoclinic.org/comment/307820/

Discussion: Effects of Zoladex

Support Group: Prostate Cancer

Posted: Apr 19, 2020

My results after one month of Orgovyx (started second bottle yesterday)....testosterone dropped from 582 to 2.5,...

https://connect.mayoclinic.org/comment/1139747/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 11, 2024

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

I flew to South America eight weeks after having brachytherapy and five weeks of IMRT. At...

https://connect.mayoclinic.org/comment/1526100/

Discussion: Treatment & Travel: Please offer your opinion

Support Group: Prostate Cancer

Posted: Mar 13 1:49pm

@surftohealth88 I know at least four people that are using estradiol instead of ADT. One of...

https://connect.mayoclinic.org/comment/1521179/

Discussion: Anyone had success with estrogen patch + radiation for stage 3C?

Support Group: Prostate Cancer

Posted: Mar 6 4:21pm

I’ve been on orgovyx for over a year and completed 8 weeks of daily radiation last...

https://connect.mayoclinic.org/comment/1529754/

Discussion: ADT & Radiation, next part of the adventure!

Support Group: Prostate Cancer

Posted: Mar 18 9:57am

I was on ADT for 2 1/2 years before I started Abiraterone. I had no fatigue...

https://connect.mayoclinic.org/comment/1536611/

Discussion: Exercise and abiraterone

Support Group: Prostate Cancer

Posted: 3 days ago

@tazman482 Fortunately, by ramping up my resistance-training exercises prior to starting ADT, I was able to...

https://connect.mayoclinic.org/comment/1483005/

Discussion: How long before Orgovyx side effects begin to arise?

Support Group: Prostate Cancer

Posted: Jan 15 11:30am

How are you doing now @myash ? I started on Orgovyx March 26. I am not...

https://connect.mayoclinic.org/comment/1271748/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1, 2025

I’m on my third month and other than hot flashes, not much else to report. No...

https://connect.mayoclinic.org/comment/1140361/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 12, 2024