Prostate Cancer Support Group

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Comments (2,057)

What a journey, impressive, your willingness to undertake the treatment! I just got my labs back...

https://connect.mayoclinic.org/comment/1102160/

Discussion: Time to Castrate Resistance: Anyone remained castrate sensitive 5+ yrs

Support Group: Prostate Cancer

Posted: Jul 9, 2024

Yes stage 4 A to one nodule and SV. Started on Degarelix last month and switching...

https://connect.mayoclinic.org/comment/1101645/

Discussion: Low baseline testostrone and overall survival after treatment

Support Group: Prostate Cancer

Posted: Jul 8, 2024

May I ask what kind of facility you are going to and what research type hospitals...

https://connect.mayoclinic.org/comment/1347463/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 13 3:56pm

How are you now, 2 years and 7 months post-SBRT? You were intermediate unfavorable, Gleason 3+4,...

https://connect.mayoclinic.org/comment/1343371/

Discussion: PSA after 20 Proton treatments

Support Group: Prostate Cancer

Posted: Jul 7 7:52pm

It’s pretty clear that your problem is abiraterone not Eligard. You could request Orgovyx again, it...

https://connect.mayoclinic.org/comment/1307717/

Discussion: Abiraterone alone for HT ADT therapy for PC

Support Group: Prostate Cancer

Posted: May 19 11:45am

Hey thanks for the info and I will look into it. I do have a 6-month...

https://connect.mayoclinic.org/comment/1321361/

Discussion: Traditional Chinese Medicine (TCM) after treatment completed

Support Group: Prostate Cancer

Posted: Jun 6 8:00am

I asked my RO what he expected my first post SBRT PSA to be.....he said "lower"....

https://connect.mayoclinic.org/comment/1347406/

Discussion: First PSA test after radiation for intact prostate?

Support Group: Prostate Cancer

Posted: Jul 13 2:47pm

Just finishing up 4 months on Orgovyx. Never had a hot flash. Have lost weight, if...

https://connect.mayoclinic.org/comment/1224202/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 28 7:51pm

I recently switched to Orgovyx after being on Lupron for 7 months. I experienced all the...

https://connect.mayoclinic.org/comment/1240010/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 18 1:45pm

I didn't want to do the hormone therapy along with radiation. But, as many have said,...

https://connect.mayoclinic.org/comment/1331345/

Discussion: Salvage radiation decision: with or without hormone therapy?

Support Group: Prostate Cancer

Posted: Jun 20 1:18pm

It’s not just Orgovyx, The same is true of every ADT drug Orgovyx, Lupron, Fermagon, and...

https://connect.mayoclinic.org/comment/1294357/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 1 1:50pm

This depends on age and luck. The older you are the longer it takes to recover...

https://connect.mayoclinic.org/comment/1156041/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Oct 12, 2024

Also 3 months on Orgovyx and Zytiga. I'm sitting here contemplating whether to take a nap...

https://connect.mayoclinic.org/comment/1138330/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 8, 2024

Respectfully, was he on BOTH first generation i.e. Lupron or ORGOVYX and second generation i.e. Zytiga...

https://connect.mayoclinic.org/comment/1111134/

Discussion: Shortest term of ADT needed for G9, non metastatic PCA?

Support Group: Prostate Cancer

Posted: Jul 24, 2024

It’s ORGOVYX - not new in the US. I never had Lupron so I cannot compare...

https://connect.mayoclinic.org/comment/1284436/

Discussion: Newly diagnosed with prostate cancer and still gathering information

Support Group: Prostate Cancer

Posted: Apr 18 7:24am

Here are some of the posts I have put up. I chose SBRT with a boost...

https://connect.mayoclinic.org/comment/1009686/

Discussion: Radiation + ADT

Support Group: Prostate Cancer

Posted: Feb 4, 2024

I was 72 when I stared the treatment’s. I took Orgovyx for 12 months and really...

https://connect.mayoclinic.org/comment/1170251/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 8, 2024

I was given a prescription for 6 months Orgovyx just by asking (but I am in...

https://connect.mayoclinic.org/comment/1145320/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 22, 2024

@aldenrobert, you may also be interested in this related discussion: - Anyone take a Treatment Holiday?...

https://connect.mayoclinic.org/comment/997995/

Discussion: Have you stopped then restarted taking Orgovyx? If so how was it.

Support Group: Prostate Cancer

Posted: Jan 15, 2024

I just ordered one - you can either buy for $299 or rent for $20 per...

https://connect.mayoclinic.org/comment/1266806/

Discussion: Anyone know about a wrist band to help hot flashes?

Support Group: Prostate Cancer

Posted: Mar 25 6:43pm

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