Prostate Cancer Support Group

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Comments (95)

First, I am sorry to hear this progression for your Dad - this cancer is a...

https://connect.mayoclinic.org/comment/1344933/

Discussion: Prostate cancer stage 4 with bone metastasis now spreaded to liver

Support Group: Prostate Cancer

Posted: Jul 10, 2025

Someone I know is getting a scan to see if qualifies for the neuroendocrine study at...

https://connect.mayoclinic.org/comment/1146374/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

Dpfbanks, ‘Adenocarcinoma’ IS informative; it is a particular type of PCa arising from glandular cells -...

https://connect.mayoclinic.org/comment/1291400/

Discussion: Stopping ADT

Support Group: Prostate Cancer

Posted: Apr 27, 2025

The most common type of prostate cancer that can’t be seen is neuroendocrine. It takes many...

https://connect.mayoclinic.org/comment/1373743/

Discussion: Sugar abstinence for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 18, 2025

Not about that specific drug, but a class concern. Any more information out there: Neuroendocrin cancer...

https://connect.mayoclinic.org/comment/1147571/

Discussion: Enzalutamide (Xtandi): Anyone have experience with this drug?

Support Group: Prostate Cancer

Posted: Sep 26, 2024

@ep1cre - Wife here! I understand what you are going through. March 2022- RP, pathology afterwords...

https://connect.mayoclinic.org/comment/1508951/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 18 1:59pm

A warning. At the latest PCRI conference, they announced that they have found that being on...

https://connect.mayoclinic.org/comment/1144091/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 19, 2024

@dailyeffort The presentation is also available on YouTube now. I searched for "Interpreting Prostate Needle Biopsies...

https://connect.mayoclinic.org/comment/1406655/

Discussion: Dr. Epstein presentation with detailed info on how biopsies work

Support Group: Prostate Cancer

Posted: Oct 2, 2025

Metastatic hormone sensitive prostate cancer with diffuse mets and PSA < 1.0 consistent with neuroendocrine differentiation,...

https://connect.mayoclinic.org/comment/896558/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 16, 2023

There is a phase II trial underway now for using Apalutamide (Erleada) and Cetrelimab (Libtayo) together...

https://connect.mayoclinic.org/comment/1146354/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

I want to give two answers here (as a layperson/non-expert): 1. Having the BRCA mutations isn't...

https://connect.mayoclinic.org/comment/1541172/

Discussion: Cancer spread, genetic testing showed no mutations. more optimistic?

Support Group: Prostate Cancer

Posted: 1 day ago

I would be interested in knowing more about your specific cancer. I am also seeing Dr.Kwon...

https://connect.mayoclinic.org/comment/896554/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 16, 2023

I am doing ok. I completed all 6 cycles immediately followed by 6 cycles of Pluvicto....

https://connect.mayoclinic.org/comment/1270910/

Discussion: Should one consider repeating a cycle of docetaxel?

Support Group: Prostate Cancer

Posted: Mar 31, 2025

I know someone with an advanced case of prostate cancer who stays on chemo, almost constantly....

https://connect.mayoclinic.org/comment/1270049/

Discussion: Should one consider repeating a cycle of docetaxel?

Support Group: Prostate Cancer

Posted: Mar 30, 2025

I think we were talking about prostate cancer that doesn’t produce PSMA. That is different from...

https://connect.mayoclinic.org/comment/1374227/

Discussion: Sugar abstinence for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 19, 2025

This the first i have heard of neuroendocrine prostate cancer, and the potential for morphing. I...

https://connect.mayoclinic.org/comment/1353119/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 21, 2025

I can tell you. You can have a very low or even undetectable PSA and still...

https://connect.mayoclinic.org/comment/900591/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 23, 2023

@johndavis60 I have found some mentions in the literature of the rare neuroendocrine type of prostate...

https://connect.mayoclinic.org/comment/1523767/

Discussion: Scanxiety today: Anyone else have this waiting for scans?

Support Group: Prostate Cancer

Posted: Mar 10 8:37am

Let me answer your other question. A tremendous number of people develop CRPC after being on...

https://connect.mayoclinic.org/comment/1174602/

Discussion: Castration resistant PC CRPC -Neuroendocrine PC linked 2 ADT ?

Support Group: Prostate Cancer

Posted: Nov 16, 2024

I'm still looking, but I haven't found any literature yet about cases of regular advanced prostate...

https://connect.mayoclinic.org/comment/1297052/

Discussion: Is anyone else oligometastatic with low PSA, post surgery?

Support Group: Prostate Cancer

Posted: May 5, 2025

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