Prostate Cancer Support Group

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Gleason 9, stage IVa. I had prostate removed. ADT for 4 months followed by pelvic radiation...

https://connect.mayoclinic.org/comment/1326216/

Discussion: ADT first then Radiation? Or Surgery?

Support Group: Prostate Cancer

Posted: Jun 13 8:20am

My Decipher score 0.98! I had SBRT radiation at UCLA. I am inclined to stay on...

https://connect.mayoclinic.org/comment/1189946/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

Well, jeff, you nailed it. Orgovyx and Nubequa with a radiation oncology appt in a few...

https://connect.mayoclinic.org/comment/1324448/

Discussion: PSMA PET results 6/6/25

Support Group: Prostate Cancer

Posted: Jun 10 3:57pm

msciulli, Is there a high copay for ORGOVYX for you? what are the side effects from...

https://connect.mayoclinic.org/comment/1048494/

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Apr 10, 2024

I have a 4+3 and a 3+3. My Decipher was .84 and that tripped the trigger...

https://connect.mayoclinic.org/comment/989898/

Discussion: Anyone had a decipher test done? Did the results impact treatment?

Support Group: Prostate Cancer

Posted: Jan 1, 2024

I did exactly this because the side effects of Lupron were too much for me. The...

https://connect.mayoclinic.org/comment/1249252/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3 8:21am

The cancer center pharmacy dispensed my first month's supply of ADT Orgovyx this past Wednesday. My...

https://connect.mayoclinic.org/comment/1269723/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 29 11:49pm

I have Medicare with an Advantage Plan. Orgovyx is not a covered drug for me. For...

https://connect.mayoclinic.org/comment/1271831/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1 1:17pm

First day of fall is officially tomorrow, the 22nd this year. The problem with getting a...

https://connect.mayoclinic.org/comment/1145169/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 21, 2024

I had a gleason score 10, 8 out of 12 cores positive. Was put on Orgovyx...

https://connect.mayoclinic.org/comment/959406/

Discussion: IMRT sessions finished now waiting

Support Group: Prostate Cancer

Posted: Nov 5, 2023

My experience with ADT hormone therapy Orgovyx was not that bad. BCR after RP led to...

https://connect.mayoclinic.org/comment/894746/

Discussion: Has anyone done Proton without Hormonal Therapy (ADT)?

Support Group: Prostate Cancer

Posted: Jul 13, 2023

To reiterate my husband is on blood pressure medication and his numbers are favorable. He sees...

https://connect.mayoclinic.org/comment/1315269/

Discussion: Orgovyx side effect?

Support Group: Prostate Cancer

Posted: May 28 7:41pm

Stage 4 recurrent prostate cancer person here with a non-medical thought for your consideration: You may...

https://connect.mayoclinic.org/comment/1144668/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20, 2024

Hi, Prior to starting treatments, I was taking a low dose (20 mg) of sildenafil "as...

https://connect.mayoclinic.org/comment/1223313/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 27 4:31pm

I am Gleason 9. Dr. SCHOLZ of PCRI, My Oncologist and Radiation Oncologist at UCLA said...

https://connect.mayoclinic.org/comment/1284994/

Discussion: Gleason 9 SO wants me to stop ADT @6 Mos for look see

Support Group: Prostate Cancer

Posted: Apr 18 7:42pm

PSA 2.85 rectal exam by urologist. Soft growth usually growth feels hard so might have ignored....

https://connect.mayoclinic.org/comment/1379574/

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 26 8:36am

2.8 in 2022, 4.4 in 2023, 5.5 and 6.4 in 2024. DRE showed nothing. MRI inconclusive....

https://connect.mayoclinic.org/comment/1378872/

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 25 10:31am

Get monthly tests when you stop. I’ve been getting monthly test for eight years. That’s because...

https://connect.mayoclinic.org/comment/1380004/

Discussion: Can Prostate Cancer "Take a New Trajectory"?

Support Group: Prostate Cancer

Posted: Aug 26 4:54pm

I am taking Orgovyx and still getting radiation treatments, I was having same problem and my...

https://connect.mayoclinic.org/comment/1385045/

Discussion: Bladder cramping

Support Group: Prostate Cancer

Posted: Sep 2 12:21pm

I am on my 11th week of taking Orgovyx. I had similar side effects and my...

https://connect.mayoclinic.org/comment/1099657/

Discussion: Does relugolix (Orgovyx) break the blood brain barrier?

Support Group: Prostate Cancer

Posted: Jul 5, 2024

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