Prostate Cancer Support Group

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Comments (3,460)

I was disappointed that they didn’t mention that people who were on Orgovyx recovered their testosterone...

https://connect.mayoclinic.org/comment/1314794/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: May 28, 2025

Hi @daveinflorida , Sounds like you are doing very well with the Orgovyx. Wishing you the...

https://connect.mayoclinic.org/comment/1277018/

Discussion: Proton treatment to prostate and localized node: Anyone else?

Support Group: Prostate Cancer

Posted: Apr 8, 2025

Feel absolutely great!! The SBRT and Orgovyx was a piece of cake. I had it so...

https://connect.mayoclinic.org/comment/1097801/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2, 2024

@glabelle My thoughts mirror yours. If ADT (I’m on Orgovyx and Nubeqa) are working well enough...

https://connect.mayoclinic.org/comment/1541795/

Discussion: Stopping Nubeqa and Orgovyx after 6 months

Support Group: Prostate Cancer

Posted: Apr 3 8:47am

Hello, I had 25 sessions of hypofractionated treatment to prostate bed and pelvic nodes - total...

https://connect.mayoclinic.org/comment/1532713/

Discussion: Please share your salvage radiation experience, especially on VMAT

Support Group: Prostate Cancer

Posted: Mar 22 9:46am

Thanks for that reb1200 and round 5. Eliminating just the testosterone deprivation part is a novel...

https://connect.mayoclinic.org/comment/1549395/

Discussion: Would like to pause Lupron injections. Taking Nubeqa and Lupron.

Support Group: Prostate Cancer

Posted: 4 days ago

Hey surf...is this a repeating trend or just a sample of 2? When you're dealing with...

https://connect.mayoclinic.org/comment/1551464/

Discussion: SHEEESSHHHH - oh well ... : (

Support Group: Prostate Cancer

Posted: 2 days ago

How long do you stay on Orgovyx depends on what kind of cancer you have and...

https://connect.mayoclinic.org/comment/1154444/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 9, 2024

@ecurb Not a low deductible it’s how Medicare pays for prescription drugs. Last year the maximum...

https://connect.mayoclinic.org/comment/1531512/

Discussion: Hubby’s Exhausted

Support Group: Prostate Cancer

Posted: Mar 20 2:00pm

Re Orgovyx: Here is what my radiation oncologist at Mayo PHX, Dr. Keole, told me when...

https://connect.mayoclinic.org/comment/612239/

Discussion: Hot Flashes and Hormonal Therapy for Prostate Cancer

Support Group: Prostate Cancer

Posted: Jun 28, 2021

@jeffmarc thanks for the information. I read somewhere in these comments that Orgovyx loses its effectiveness...

https://connect.mayoclinic.org/comment/1480032/

Discussion: Can a short term of taking Orgovyx cause leg pain and weight gain?

Support Group: Prostate Cancer

Posted: Jan 11 7:48pm

I'm at six months on Orgovyx and I've had every side effect listed on the Orgovyx...

https://connect.mayoclinic.org/comment/1305684/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 16, 2025

FWIW, if you have to go on ADT I would choose an LRNH antagonist over an...

https://connect.mayoclinic.org/comment/1193736/

Discussion: Surgery? Radiation? Can I have an independent suggestion?

Support Group: Prostate Cancer

Posted: Dec 19, 2024

Diagnosis in April, 2023 - localized cancer, Gleason 6. Started with active surveillance, decided on treatment...

https://connect.mayoclinic.org/comment/1378093/

Discussion: How Long Since Your Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 24, 2025

@daveandoneita Were you ever off ADT? By the end of this week, I will be into...

https://connect.mayoclinic.org/comment/1354894/

Discussion: climax loss for radiation treatments

Support Group: Prostate Cancer

Posted: Jul 23, 2025

https://connect.mayoclinic.org/comment/1317123/

Discussion: 4 Weeks on Orgovyx and PSA Undectable

Support Group: Prostate Cancer

Posted: May 31, 2025

@jeffmarc wrote "I am on Orgovyx because it is cheaper than Lupron where I get treated."...

https://connect.mayoclinic.org/comment/1414689/

Discussion: Doublet Therapy Holiday - Option for Oligorecurrent Prostate Cancer?

Support Group: Prostate Cancer

Posted: Oct 13, 2025

I just started ORGOVYX for less than week. Although moderate ethanol consumption may be tolerated I...

https://connect.mayoclinic.org/comment/1263988/

Discussion: Got some answers for stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Mar 22, 2025

That is encouraging! I'm assuming that your ADT was/is ORGOVYX? How is it to have no...

https://connect.mayoclinic.org/comment/1097594/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jul 1, 2024

Hi, I started Orgovyx about 2 weeks ago and I am starting to experience night sweats....

https://connect.mayoclinic.org/comment/1030833/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 10, 2024

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