Prostate Cancer Support Group

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I would also like to add that I'm experiencing lots of muscle cramps in the upper...

https://connect.mayoclinic.org/comment/1247445/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 28, 2025

I went to see Dr. Mulhall in New York about this exact issue. I lost the...

https://connect.mayoclinic.org/comment/1221384/

Discussion: Have erection but can't have an orgasm

Support Group: Prostate Cancer

Posted: Jan 25, 2025

I changed from Lupron to Orgovyx in March. I was on Lupron for almost 7 years....

https://connect.mayoclinic.org/comment/1155019/

Discussion: Looking for feedback - Lupron vs Orgovyx

Support Group: Prostate Cancer

Posted: Oct 10, 2024

You seem to have a good 8 weeks to gain back most of your strength; I...

https://connect.mayoclinic.org/comment/1527993/

Discussion: Treatment & Travel: Please offer your opinion

Support Group: Prostate Cancer

Posted: Mar 16 7:23am

I was Gleason 9, Decipher .99 and Stage 4a. Surgery + ADT (Orgovyx) + pelvic radiation....

https://connect.mayoclinic.org/comment/1334364/

Discussion: Switching from Orgovyx to Bicalutamide

Support Group: Prostate Cancer

Posted: Jun 24, 2025

The doctors at Georgetown recommended Cyberknife a couple of years ago, but said that treatment wasn't...

https://connect.mayoclinic.org/comment/777081/

Discussion: Any diet restrictions with radiation? What were your side effects?

Support Group: Prostate Cancer

Posted: Nov 24, 2022

Thanks Jack. We got this. And as advertised Orgovyx resulted in a quick testosterone recovery. Stay...

https://connect.mayoclinic.org/comment/1097763/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2, 2024

@brianjarvis Yea...I've got a Medigap plan G and for an extra $35/mo. it includes dental, vision,...

https://connect.mayoclinic.org/comment/1492308/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 28 5:40am

@myash How are your symptoms? I'm just starting my 2nd month on Orgovyx and the only...

https://connect.mayoclinic.org/comment/1291261/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 27, 2025

There is a previous discussion that may be of interest https://connect.mayoclinic.org/discussion/looking-for-feedback-lupron-va-orgovyx/ A radiation oncologist at Mayo...

https://connect.mayoclinic.org/comment/1235320/

Discussion: Which ADT medication is best?

Support Group: Prostate Cancer

Posted: Feb 12, 2025

Almost 4 months after starting Orgovyx overall I’m happy with my experience. PSA is undetectable (...

https://connect.mayoclinic.org/comment/1117351/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 3, 2024

5 months IMRT + HDR + 6 months Orgovyx and I have lost my underarm hair

https://connect.mayoclinic.org/comment/1436828/

Discussion: Anyone lose Body Hair while on ADT?

Support Group: Prostate Cancer

Posted: Nov 12, 2025

I am on ADT (Orgovyx) and have been before the start of RT. I was considering...

https://connect.mayoclinic.org/comment/1145549/

Discussion: RT + 3 years ADT + 2 years Zytiga initial treatment?

Support Group: Prostate Cancer

Posted: Sep 22, 2024

I was 52 when diagnosed with prostate cancer (Gleason Score 7, 3/4). I went with a...

https://connect.mayoclinic.org/comment/1247742/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Mar 1, 2025

Thanks Jeff! What about Orgovyx + Darulamitide and then after radiation docetaxel to get anything in...

https://connect.mayoclinic.org/comment/1346098/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 11, 2025

how long can you stay off orgovyx? how soon will the Cancer begin to grow again?

https://connect.mayoclinic.org/comment/1318460/

Discussion: Testosterone Recovery after stopping orgovyx

Support Group: Prostate Cancer

Posted: Jun 2, 2025

When you say side effects of Orgovyx was not pleasant - can you elaborate? What were...

https://connect.mayoclinic.org/comment/1270850/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31, 2025

I have now been on Orgovyx for about 3.5 months of a 6 month regimen. I...

https://connect.mayoclinic.org/comment/1301027/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 10, 2025

Got some great news this week regarding my cost for Orgovyx. First I was told my...

https://connect.mayoclinic.org/comment/1186466/

Discussion: Stage 4 Prostate Cancer and Hormone Therapy quit working

Support Group: Prostate Cancer

Posted: Dec 7, 2024

@jeffmarc initially after my radiation treatment my OSA was 0.04 but it was artificially low due...

https://connect.mayoclinic.org/comment/1507339/

Discussion: Anyone have HDR Brachytherapy and Proton beam therapy combo?

Support Group: Prostate Cancer

Posted: Feb 16 12:21pm

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