Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

3,656 total results

Comments (3,376)

If cost and compliance are not issues, I would recommend Orgovyx based upon my personal experience...

https://connect.mayoclinic.org/comment/1037631/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 21, 2024

And if you were 79 with a gleason score 8 and localized? What about Orgovyx and...

https://connect.mayoclinic.org/comment/958547/

Discussion: Second guessing or being sure.

Support Group: Prostate Cancer

Posted: Nov 3, 2023

I did 90 days orgovyx. Lost muscle mass and energy but no other side effects

https://connect.mayoclinic.org/comment/913541/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Aug 15, 2023

@jeffmarc That was my concern. Too many drugs. Definitely Orgovyx - it's being delivered tomorrow. He's...

https://connect.mayoclinic.org/comment/1526267/

Discussion: Not Good News after prostate biospy when MRI didn't look too bad

Support Group: Prostate Cancer

Posted: Mar 13 5:50pm

@diverjer As long as the capsule is in tact you have a shot with Tulsa Pro...

https://connect.mayoclinic.org/comment/1538254/

Discussion: Going for Tulsa Pro

Support Group: Prostate Cancer

Posted: 3 days ago

I started Orgovyx six weeks prior to nine weeks of radiation. PSA was already down 50%...

https://connect.mayoclinic.org/comment/1531198/

Discussion: Hormone therapy before radiation treatment question....

Support Group: Prostate Cancer

Posted: Mar 20 8:39am

@jime51 I had significant hot flashes for six years on Lupron. At first on Orgovyx I...

https://connect.mayoclinic.org/comment/1452848/

Discussion: How long do the hot flashes last? Another 3 month Eligard shot today

Support Group: Prostate Cancer

Posted: Dec 4, 2025

Yes I have spoken to both the pharm. and doctor. I have been told that muscle...

https://connect.mayoclinic.org/comment/1244307/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 24, 2025

@brianjarvis Yes, I can see how a flare could cause some harm. But this flare situation...

https://connect.mayoclinic.org/comment/1482224/

Discussion: ADT injection: Benefits worth the toll it will take on my body?

Support Group: Prostate Cancer

Posted: Jan 14 1:07pm

You are Right, The Orgovyx did it, In the library, when the lights were out. Now...

https://connect.mayoclinic.org/comment/1332733/

Discussion: Salvage radiation decision: with or without hormone therapy?

Support Group: Prostate Cancer

Posted: Jun 22, 2025

Cost is a big concern with Orgovyx for most people. I was very fortunate in that...

https://connect.mayoclinic.org/comment/1111047/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 24, 2024

If I were you I would ask about three pronged treatment plan as follows: 6 months...

https://connect.mayoclinic.org/comment/1484943/

Discussion: I now will need to decide on SBRT or Brachytherapy

Support Group: Prostate Cancer

Posted: Jan 17 3:33pm

@hlcampb, you're asking good questions, some of which you will also want to ask your cancer...

https://connect.mayoclinic.org/comment/1052732/

Discussion: I want to learn more about ADT

Support Group: Prostate Cancer

Posted: Apr 17, 2024

I did 3 mos of Lupron and then 3 mos of Orgovyx. Lupron made me anemic...

https://connect.mayoclinic.org/comment/1387980/

Discussion: Has anyone gone off hormone therapy (ADT) after radiation?

Support Group: Prostate Cancer

Posted: Sep 6, 2025

@teacherwiz It sounds like your doctor has not kept up with all the side effects. Orgovyx...

https://connect.mayoclinic.org/comment/1524917/

Discussion: ADT Side Effects: Anyone had increased shortness of breath at rest?

Support Group: Prostate Cancer

Posted: Mar 11 8:47pm

@neilmartin Very frustrating indeed…all your parameters portend smooth sailing so something is definitely up. Couldn’t hurt...

https://connect.mayoclinic.org/comment/1484405/

Discussion: Are extreme PSA bounces after radiation due to cancer or inflammation?

Support Group: Prostate Cancer

Posted: Jan 17 6:07am

A one month supply of Orgovyx (30) pills is $2,932.00. Medicare will pay the bulk and...

https://connect.mayoclinic.org/comment/1257294/

Discussion: Does Medicare pay for Orgovyx treatments? What does it cost?

Support Group: Prostate Cancer

Posted: Mar 13, 2025

Side effects from radiation disappeared about 2 - 3 weeks after final treatment on May 3;...

https://connect.mayoclinic.org/comment/1228387/

Discussion: RARP Pathology report questions

Support Group: Prostate Cancer

Posted: Feb 3, 2025

You seem to have a good 8 weeks to gain back most of your strength; I...

https://connect.mayoclinic.org/comment/1527993/

Discussion: Treatment & Travel: Please offer your opinion

Support Group: Prostate Cancer

Posted: Mar 16 7:23am

@beaquilter - If you have not investigated or tried it, I recommend Orgovyx if your MDs...

https://connect.mayoclinic.org/comment/1420874/

Discussion: Dealing with metastatic prostate cancer and other health issues

Support Group: Prostate Cancer

Posted: Oct 22, 2025

Bladder Cancer

1118

35 minutes ago

Visiting Mayo Clinic

6696

41 minutes ago

Osteoporosis & Bone Health

14347

1 hour ago

Aging Well

14809

1 hour ago

Bladder Conditions

751

2 hours ago