Prostate Cancer Support Group

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I did 3 mos of Lupron and then 3 mos of Orgovyx. Lupron made me anemic...

https://connect.mayoclinic.org/comment/1387980/

Discussion: Has anyone gone off hormone therapy (ADT) after radiation?

Support Group: Prostate Cancer

Posted: Sep 6, 2025

@myash How are your symptoms? I'm just starting my 2nd month on Orgovyx and the only...

https://connect.mayoclinic.org/comment/1291261/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 27, 2025

There is a previous discussion that may be of interest https://connect.mayoclinic.org/discussion/looking-for-feedback-lupron-va-orgovyx/ A radiation oncologist at Mayo...

https://connect.mayoclinic.org/comment/1235320/

Discussion: Which ADT medication is best?

Support Group: Prostate Cancer

Posted: Feb 12, 2025

Almost 4 months after starting Orgovyx overall I’m happy with my experience. PSA is undetectable (...

https://connect.mayoclinic.org/comment/1117351/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 3, 2024

I'm hoping to be off Orgovyx in another 5 weeks and am encouraged by the replies...

https://connect.mayoclinic.org/comment/1485798/

Discussion: How long after stopping Orgovyx did you notice a difference?

Support Group: Prostate Cancer

Posted: Jan 18 3:01pm

@brianjarvis Yea...I've got a Medigap plan G and for an extra $35/mo. it includes dental, vision,...

https://connect.mayoclinic.org/comment/1492308/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 28 5:40am

The doctors at Georgetown recommended Cyberknife a couple of years ago, but said that treatment wasn't...

https://connect.mayoclinic.org/comment/777081/

Discussion: Any diet restrictions with radiation? What were your side effects?

Support Group: Prostate Cancer

Posted: Nov 24, 2022

I was Gleason 9, Decipher .99 and Stage 4a. Surgery + ADT (Orgovyx) + pelvic radiation....

https://connect.mayoclinic.org/comment/1334364/

Discussion: Switching from Orgovyx to Bicalutamide

Support Group: Prostate Cancer

Posted: Jun 24, 2025

Thanks Jack. We got this. And as advertised Orgovyx resulted in a quick testosterone recovery. Stay...

https://connect.mayoclinic.org/comment/1097763/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2, 2024

@ambika I did lupron for 3 months and went anemic and switched to Orgovyx for 3...

https://connect.mayoclinic.org/comment/1532338/

Discussion: How fast does Orgovyx work to reduce PSA?

Support Group: Prostate Cancer

Posted: Mar 21 6:30pm

@brianjarvis Here in Ontario, Orgovyx doesn't cost any more per month than Firmagon or Lupron, so...

https://connect.mayoclinic.org/comment/1482197/

Discussion: ADT injection: Benefits worth the toll it will take on my body?

Support Group: Prostate Cancer

Posted: Jan 14 12:36pm

@beaquilter - If you have not investigated or tried it, I recommend Orgovyx if your MDs...

https://connect.mayoclinic.org/comment/1420874/

Discussion: Dealing with metastatic prostate cancer and other health issues

Support Group: Prostate Cancer

Posted: Oct 22, 2025

wzm, Are you stopping Orgovyx after 6 months? I will be completing 12 months of Orgovyx...

https://connect.mayoclinic.org/comment/1266790/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Mar 25, 2025

I would also like to add that I'm experiencing lots of muscle cramps in the upper...

https://connect.mayoclinic.org/comment/1247445/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 28, 2025

I went to see Dr. Mulhall in New York about this exact issue. I lost the...

https://connect.mayoclinic.org/comment/1221384/

Discussion: Have erection but can't have an orgasm

Support Group: Prostate Cancer

Posted: Jan 25, 2025

I changed from Lupron to Orgovyx in March. I was on Lupron for almost 7 years....

https://connect.mayoclinic.org/comment/1155019/

Discussion: Looking for feedback - Lupron vs Orgovyx

Support Group: Prostate Cancer

Posted: Oct 10, 2024

I was 52 when diagnosed with prostate cancer (Gleason Score 7, 3/4). I went with a...

https://connect.mayoclinic.org/comment/1247742/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Mar 1, 2025

@franciekid You will find out what I’m saying is true. They cannot give you both Lupron...

https://connect.mayoclinic.org/comment/1526668/

Discussion: Not Good News after prostate biospy when MRI didn't look too bad

Support Group: Prostate Cancer

Posted: Mar 14 10:42am

5 months IMRT + HDR + 6 months Orgovyx and I have lost my underarm hair

https://connect.mayoclinic.org/comment/1436828/

Discussion: Anyone lose Body Hair while on ADT?

Support Group: Prostate Cancer

Posted: Nov 12, 2025

I am on ADT (Orgovyx) and have been before the start of RT. I was considering...

https://connect.mayoclinic.org/comment/1145549/

Discussion: RT + 3 years ADT + 2 years Zytiga initial treatment?

Support Group: Prostate Cancer

Posted: Sep 22, 2024

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