Prostate Cancer Support Group

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Comments (794)

@stevesien Thanks for this encouraging post. I am currently on hormone therapy (Orgovyx) and scheduled for...

https://connect.mayoclinic.org/comment/1417759/

Discussion: Starting Proton Treatments for Prostate Cancer: Any experiences?

Support Group: Prostate Cancer

Posted: Oct 17, 2025

Hi @gsd, please read over my experience https://connect.mayoclinic.org/discussion/tulsa-pro-initial-experience/ When I was at Mayo they were complaining...

https://connect.mayoclinic.org/comment/1227486/

Discussion: Best Prostate Cancer Treatment Options If You Have BPH Symptoms?

Support Group: Prostate Cancer

Posted: Feb 2, 2025

@ucfron it is constrained for a few months after treatment but I definitely have better stream...

https://connect.mayoclinic.org/comment/1427378/

Discussion: Who saw Dr. Ram Pathak at Mayo Jacksonville for Tulsa Pro?

Support Group: Prostate Cancer

Posted: Oct 31, 2025

My VA Dr. referred me to a local hospital for an MRI. Had the MRI but...

https://connect.mayoclinic.org/comment/1230671/

Discussion: Upcoming Second biopsy: Nervous but better prepared this time

Support Group: Prostate Cancer

Posted: Feb 6, 2025

For the record, I’m a fellow prostate cancer patient and not a doctor so I’m not...

https://connect.mayoclinic.org/comment/1127783/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 20, 2024

Go immediately to a center of excellence. You may not need to be carved up and...

https://connect.mayoclinic.org/comment/1501308/

Discussion: Go with local prostectomy surgeon or pursue big center 2.5 hours away

Support Group: Prostate Cancer

Posted: Feb 8 9:46pm

I was diagnosed two weeks ago via TRUS biopsy. 1 of 12 with Gleason of 7...

https://connect.mayoclinic.org/comment/1131908/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 27, 2024

@tdoriausername I wouldn’t rule out Tulsa at UCLA if you are in AZ. Drive over, spend...

https://connect.mayoclinic.org/comment/1495816/

Discussion: Going for Tulsa Pro

Support Group: Prostate Cancer

Posted: Feb 1 4:17pm

I am in the same situation as you . I have been on Active Surveillance for...

https://connect.mayoclinic.org/comment/1204526/

Discussion: Not sure test results and recommended treatment match up

Support Group: Prostate Cancer

Posted: Jan 5, 2025

@survivor5280 Tulsa Pro is a real good option right now See my experience here: https://connect.mayoclinic.org/discussion/tulsa-pro-initial-experience/ The...

https://connect.mayoclinic.org/comment/1164842/

Discussion: Newly Diagnosed: Removal vs Radiation

Support Group: Prostate Cancer

Posted: Oct 29, 2024

I went to Mayo for two years before they had Tulsa and while on active surveillance,...

https://connect.mayoclinic.org/comment/1060103/

Discussion: Tulsa Pro - share your experiences

Support Group: Prostate Cancer

Posted: May 1, 2024

Since the Medicare code exists and will be in place Jan 1 2025, some say the...

https://connect.mayoclinic.org/comment/1010180/

Discussion: Anyone do Tulsa Pro, newer laser ablation procedure?

Support Group: Prostate Cancer

Posted: Feb 5, 2024

Focal therapies may not qualify as common yet, but they are rapidly gaining favor for those...

https://connect.mayoclinic.org/comment/1245111/

Discussion: PSA went from 3.9 in November to 4.3 yesterday

Support Group: Prostate Cancer

Posted: Feb 25, 2025

As mentioned in previous post I have had both hips replaced, One 12 years ago and...

https://connect.mayoclinic.org/comment/1511881/

Discussion: Maximum time I can postpone treatment after biopsy?

Support Group: Prostate Cancer

Posted: Feb 22 9:15am

I did hemi gland Tulsa Pro in Dec at Mayo Jacksonville and tolerated it well without...

https://connect.mayoclinic.org/comment/1503240/

Discussion: Pros & cons of brachytherapy, HIFU, Tulsa treatment options?

Support Group: Prostate Cancer

Posted: Feb 11 12:54pm

Thanks everyone for their inputs. If things workout here I will probably opt for Tulsa Pro...

https://connect.mayoclinic.org/comment/910484/

Discussion: What is the longest time after Proton therapy without ED?

Support Group: Prostate Cancer

Posted: Aug 10, 2023

I had Tulsa Pro for Gleason 7 (4+3) at Mayo Rochester (I am part of a...

https://connect.mayoclinic.org/comment/1206568/

Discussion: Usage of Immunotherapy , HIFU , Cryoabalation , NanoKnife , TULSA PRO.

Support Group: Prostate Cancer

Posted: Jan 8, 2025

I'm finding treatment proposals are different from doctor to doctor. My doctor simply said he could...

https://connect.mayoclinic.org/comment/1348241/

Discussion: Has anyone had TULSA?

Support Group: Prostate Cancer

Posted: Jul 14, 2025

I'm pretty sure TULSA-PRO would not be appropriate for a cancer with extra prostatic extension and...

https://connect.mayoclinic.org/comment/1314789/

Discussion: What would be best course of treatment

Support Group: Prostate Cancer

Posted: May 28, 2025

Thank you for the mention of Tulsa, it's good for me to know options! And I...

https://connect.mayoclinic.org/comment/1164874/

Discussion: Newly Diagnosed: Removal vs Radiation

Support Group: Prostate Cancer

Posted: Oct 29, 2024

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