Prostate Cancer Support Group

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Comments (739)

I've made an executive decision: I'm no longer waiting. Since the prior PET scan in 2021...

https://connect.mayoclinic.org/comment/1530169/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Mar 18 6:08pm

Hi...Sorry you had to come back. Sounds like we're heading in the same direction at the...

https://connect.mayoclinic.org/comment/1366644/

Discussion: Newly diagnosed with Advanced PC

Support Group: Prostate Cancer

Posted: Aug 8, 2025

Hi. I was thinking Orgovyx, but yes, have been reading good reports about Nubeqa here on...

https://connect.mayoclinic.org/comment/1351963/

Discussion: I am 83 years old with a PSA of 6.5. Will have a prostate biopsy soon.

Support Group: Prostate Cancer

Posted: Jul 19, 2025

I found out I was BRCA2 positive about five years ago. I’ve had prostate cancer for...

https://connect.mayoclinic.org/comment/1478869/

Discussion: What treatment options for paratracheal lymph nodes with BRCA2?

Support Group: Prostate Cancer

Posted: Jan 10 11:48am

I am puzzled by your comments “ The first of several in the pipeline is PLUVICTO...

https://connect.mayoclinic.org/comment/1340350/

Discussion: Brachytherapy or Prostatectomy? How did you choose?

Support Group: Prostate Cancer

Posted: Jul 3, 2025

@rlpostrp In 2010 I was 62 and a biopsy showed Gleason 3+4. My father died of...

https://connect.mayoclinic.org/comment/1529881/

Discussion: Everything quit working

Support Group: Prostate Cancer

Posted: Mar 18 12:00pm

I know a lot of people who have gone on vacations from ADT. They normally do...

https://connect.mayoclinic.org/comment/1515227/

Discussion: What are the risks and benefits of Intermittent ADT?

Support Group: Prostate Cancer

Posted: Feb 26 3:37pm

@heavyphil As you know I became castrate resistant 2 1/2 years after starting ADT. I’ve stayed...

https://connect.mayoclinic.org/comment/1507240/

Discussion: A note from Richard Wassersug PhD About the use of estradiol over ADT

Support Group: Prostate Cancer

Posted: Feb 16 11:14am

Dear jeffmarc, Thanks for such a prompt and encouraging reply. In the last few minutes, insurance...

https://connect.mayoclinic.org/comment/1146205/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

I see my urologist this coming Tuesday not the pcp. I'm on nubeqa and injections every...

https://connect.mayoclinic.org/comment/1367325/

Discussion: Fun with ADT and testosterone

Support Group: Prostate Cancer

Posted: Aug 9, 2025

I know at least 5 people that come to weekly Ancan.org advanced prostate cancer online meetings...

https://connect.mayoclinic.org/comment/1169471/

Discussion: Anyone have Prostate Cancer Stage 4 with good results?

Support Group: Prostate Cancer

Posted: Nov 7, 2024

It also looks like https://www.prostatecancerfree.org/compare-prostate-cancer-treatments/ doesn't include the ARSI "-lutamides" like Apalutamide (Erleada), Enzalutamide (Xtandi), or...

https://connect.mayoclinic.org/comment/1154746/

Discussion: Treatment Decision - Radical Prostatectomy versus Radiation Therapy

Support Group: Prostate Cancer

Posted: Oct 10, 2024

Hi; on 04/15/24 I was diagnosed with PC metastatic to the bones up to my spine...

https://connect.mayoclinic.org/comment/1130498/

Discussion: 11 anniversaries since diagnosis of stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Aug 25, 2024

@denkea Rereading your original comment, I see that you’ve only been on Nubeqa 1 month, and...

https://connect.mayoclinic.org/comment/1467709/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 25, 2025

my exp with ADT ( Orgovyx/Nubeqa) plus 45 EBRT was occasional fatigue but nothing debilitating...even now,...

https://connect.mayoclinic.org/comment/1510628/

Discussion: Lupron & radiation fatigue. Expectations re when it goes away?

Support Group: Prostate Cancer

Posted: Feb 20 3:42pm

@damonk Yes that is why I chose Orgovex over Lupron, as it does not cause a...

https://connect.mayoclinic.org/comment/1525121/

Discussion: Starting ADT

Support Group: Prostate Cancer

Posted: Mar 12 8:00am

I’ve been castrate resistant for six years. I did have one metastasis zapped on my spine....

https://connect.mayoclinic.org/comment/1359980/

Discussion: Where to take Leuprolide infusion? Arm or stomach?

Support Group: Prostate Cancer

Posted: Jul 30, 2025

@carbcounter When my medical oncologist opposed going on a drug holiday before two years I compromised...

https://connect.mayoclinic.org/comment/1468942/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 27, 2025

It sure appears you’re getting the right treatment. This is about all you can hope for,...

https://connect.mayoclinic.org/comment/1402672/

Discussion: Prostate cancer

Support Group: Prostate Cancer

Posted: Sep 27, 2025

I've not had significant brain fog issues in 6 months on Orgovyx. I am having hot...

https://connect.mayoclinic.org/comment/1344595/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 9, 2025

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