Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

99 total results

Comments (94)

The first time I said it was possible to get neuroendocrine cancer. The second time I...

https://connect.mayoclinic.org/comment/1144232/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 19, 2024

By aggressive, you may mean small cell or neuroendocrine prostate cancer. It cannot be seen on...

https://connect.mayoclinic.org/comment/1278801/

Discussion: Monitoring PSA post surgery with Gleason 9

Support Group: Prostate Cancer

Posted: Apr 10, 2025

No experience here but this is exactly the type of information Decipher will help with. "In...

https://connect.mayoclinic.org/comment/1250650/

Discussion: Anyone get the Decipher test: RNA Tumor RNA Expression Analysis?

Support Group: Prostate Cancer

Posted: Mar 4, 2025

@suzystation You know, with all he (and you!) has gone thru, he is a lucky man!...

https://connect.mayoclinic.org/comment/1509536/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 19 9:13am

@brianjarvis Neuroendocrine prostate cancer is another exception FDG can be good for highly aggressive NEPC due...

https://connect.mayoclinic.org/comment/1464534/

Discussion: Why does PSMA Pet Scan show no evidence of mets? Missing something?

Support Group: Prostate Cancer

Posted: Dec 20, 2025

Checked with my friend who went to the PCRI conference and sure enough taking Zytiga for...

https://connect.mayoclinic.org/comment/1144162/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 19, 2024

@stup1dwaz You say your surgery was in 2001. Six months later, your PSA went up to...

https://connect.mayoclinic.org/comment/1521748/

Discussion: Does Pluvicto work?

Support Group: Prostate Cancer

Posted: Mar 7 11:57am

I have heard that the FDG scan will detect neuroendocrine cancer, here is some information about...

https://connect.mayoclinic.org/comment/1306910/

Discussion: Testing for subtypes and neuroendocrine prostate cancer

Support Group: Prostate Cancer

Posted: May 18, 2025

No, the cancer killed him. Unfortunately, the two treatments didn’t help at all. It may have...

https://connect.mayoclinic.org/comment/1376322/

Discussion: Metastatic Castration Resistant Prostate Cancer (mCRPC)

Support Group: Prostate Cancer

Posted: Aug 21, 2025

PSA 0.62 PSMA Showed stage 4 metastatic most metastases to left shoulder area. Oncologist dx of...

https://connect.mayoclinic.org/comment/899469/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 21, 2023

@thmssllvn At the recent PCRI conference they mentioned that the choline PET scan is not worth...

https://connect.mayoclinic.org/comment/1402702/

Discussion: SF Bay Area provider recommendations

Support Group: Prostate Cancer

Posted: Sep 27, 2025

I encourage you to do a search of the Internet using this search what causes prostate...

https://connect.mayoclinic.org/comment/1344064/

Discussion: Prostate cancer stage 4 with bone metastasis now spreaded to liver

Support Group: Prostate Cancer

Posted: Jul 8, 2025

After six years on Lupron, I switched to Orgovyx. After 2.5 years of Abbie I switched...

https://connect.mayoclinic.org/comment/1354843/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 23, 2025

Husband had a double whammy- PC at 67 - Gleason 9 , RP 3/22. 6 months...

https://connect.mayoclinic.org/comment/1052830/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Apr 18, 2024

Some people’s prostate cancer does not produce PSMA. In those cases, a PSMA PET scan can’t...

https://connect.mayoclinic.org/comment/1373402/

Discussion: Sugar abstinence for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 18, 2025

I have not heard of the change to neuroendocrine. I have prostate cancer that metastasized to...

https://connect.mayoclinic.org/comment/1345347/

Discussion: Prostate cancer stage 4 with bone metastasis now spreaded to liver

Support Group: Prostate Cancer

Posted: Jul 10, 2025

someoneelse, some prostate cancers don't produce PSA, not to worry you, but I'd want a biopsy....

https://connect.mayoclinic.org/comment/1363533/

Discussion: Opinions wanted

Support Group: Prostate Cancer

Posted: Aug 4, 2025

It was announced at one of the recent conferences that staying on ADT, Zytiga or one...

https://connect.mayoclinic.org/comment/1174360/

Discussion: Castration resistant PC CRPC -Neuroendocrine PC linked 2 ADT ?

Support Group: Prostate Cancer

Posted: Nov 16, 2024

I was told it applies to ADT and ARSI drugs. They didn’t get to the point...

https://connect.mayoclinic.org/comment/1356403/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 25, 2025

I am presently in Japan and will be meeting with my oncologist the day after I...

https://connect.mayoclinic.org/comment/840491/

Discussion: Prostate Cancer with Neuroendocrine involvement found on pathology

Support Group: Prostate Cancer

Posted: Apr 9, 2023